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anybody have the gene R117H?

M

Momtana

New member
Jada, I just want to let you know that I have been thinking of you and that I love this picture of you and Zoe.
 
M

marcijo

Guest
Hi Jada-
I have DF508 and R117H also-although I am not sure what my modifier gene is (5t, 7t, or 9t). I was diagnosed at age 20 (12, almost 13 years ago!). Growing up I had nasal polyps at age 12, and had them taken out when I got my tonils out. I guess they didn't think of CF at that time!
I have no digestive issues so far and (knock on wood) have had a fairly normal life! My lung function is at about 85%....I get lung infections a few times per year but its nothing that Keflex can't cure!
Good luck with everything-I am sure this was quite a shock to your whole family!
 
M

marcijo

Guest
Hi Jada-
I have DF508 and R117H also-although I am not sure what my modifier gene is (5t, 7t, or 9t). I was diagnosed at age 20 (12, almost 13 years ago!). Growing up I had nasal polyps at age 12, and had them taken out when I got my tonils out. I guess they didn't think of CF at that time!
I have no digestive issues so far and (knock on wood) have had a fairly normal life! My lung function is at about 85%....I get lung infections a few times per year but its nothing that Keflex can't cure!
Good luck with everything-I am sure this was quite a shock to your whole family!
 
M

marcijo

Guest
Hi Jada-
I have DF508 and R117H also-although I am not sure what my modifier gene is (5t, 7t, or 9t). I was diagnosed at age 20 (12, almost 13 years ago!). Growing up I had nasal polyps at age 12, and had them taken out when I got my tonils out. I guess they didn't think of CF at that time!
I have no digestive issues so far and (knock on wood) have had a fairly normal life! My lung function is at about 85%....I get lung infections a few times per year but its nothing that Keflex can't cure!
Good luck with everything-I am sure this was quite a shock to your whole family!
 
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