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Anyone diagnosed PI before being diagnosed w/CF

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beccasmom

New member
My daughter was diagnosed a PI several months before she was diagnosed with CF. She actually had the gene testing for CF and only had a single mutation so the GI thought it was just PI but then she started having Respiratory issues and the Pulmonologist did a sweat test which was very positive. So she got diagnosed with CF then. I would do the sweat test first.
 
B

beccasmom

New member
My daughter was diagnosed a PI several months before she was diagnosed with CF. She actually had the gene testing for CF and only had a single mutation so the GI thought it was just PI but then she started having Respiratory issues and the Pulmonologist did a sweat test which was very positive. So she got diagnosed with CF then. I would do the sweat test first.
 
B

beccasmom

New member
My daughter was diagnosed a PI several months before she was diagnosed with CF. She actually had the gene testing for CF and only had a single mutation so the GI thought it was just PI but then she started having Respiratory issues and the Pulmonologist did a sweat test which was very positive. So she got diagnosed with CF then. I would do the sweat test first.
 
B

beccasmom

New member
My daughter was diagnosed a PI several months before she was diagnosed with CF. She actually had the gene testing for CF and only had a single mutation so the GI thought it was just PI but then she started having Respiratory issues and the Pulmonologist did a sweat test which was very positive. So she got diagnosed with CF then. I would do the sweat test first.
 
B

beccasmom

New member
My daughter was diagnosed a PI several months before she was diagnosed with CF. She actually had the gene testing for CF and only had a single mutation so the GI thought it was just PI but then she started having Respiratory issues and the Pulmonologist did a sweat test which was very positive. So she got diagnosed with CF then. I would do the sweat test first.
 
M

Mommafirst

Guest
My daughter was born with a meconium plug and has not developed any other symptoms since (though she does struggle to gain weight). She is 2 and a half. I would be very surprised if your son who is PI and born with the plug doesn't have CF. I'm sorry. I know this is hard, but know that my daughter is doing great with all her CF meds, I'm sure your son will do well too.
 
M

Mommafirst

Guest
My daughter was born with a meconium plug and has not developed any other symptoms since (though she does struggle to gain weight). She is 2 and a half. I would be very surprised if your son who is PI and born with the plug doesn't have CF. I'm sorry. I know this is hard, but know that my daughter is doing great with all her CF meds, I'm sure your son will do well too.
 
M

Mommafirst

Guest
My daughter was born with a meconium plug and has not developed any other symptoms since (though she does struggle to gain weight). She is 2 and a half. I would be very surprised if your son who is PI and born with the plug doesn't have CF. I'm sorry. I know this is hard, but know that my daughter is doing great with all her CF meds, I'm sure your son will do well too.
 
M

Mommafirst

Guest
My daughter was born with a meconium plug and has not developed any other symptoms since (though she does struggle to gain weight). She is 2 and a half. I would be very surprised if your son who is PI and born with the plug doesn't have CF. I'm sorry. I know this is hard, but know that my daughter is doing great with all her CF meds, I'm sure your son will do well too.
 
M

Mommafirst

Guest
My daughter was born with a meconium plug and has not developed any other symptoms since (though she does struggle to gain weight). She is 2 and a half. I would be very surprised if your son who is PI and born with the plug doesn't have CF. I'm sorry. I know this is hard, but know that my daughter is doing great with all her CF meds, I'm sure your son will do well too.
 
V

valigirl21

Guest
It was my son's PI status that lead to his being treated for CF. He has had lung issues since birth, but still is not "definitely " dx w/ CF for lack of identifiable genetic mutations. IMHO you should persue the sweat test, and go from there once you know your son's number.
 
V

valigirl21

Guest
It was my son's PI status that lead to his being treated for CF. He has had lung issues since birth, but still is not "definitely " dx w/ CF for lack of identifiable genetic mutations. IMHO you should persue the sweat test, and go from there once you know your son's number.
 
V

valigirl21

Guest
It was my son's PI status that lead to his being treated for CF. He has had lung issues since birth, but still is not "definitely " dx w/ CF for lack of identifiable genetic mutations. IMHO you should persue the sweat test, and go from there once you know your son's number.
 
V

valigirl21

Guest
It was my son's PI status that lead to his being treated for CF. He has had lung issues since birth, but still is not "definitely " dx w/ CF for lack of identifiable genetic mutations. IMHO you should persue the sweat test, and go from there once you know your son's number.
 
V

valigirl21

Guest
It was my son's PI status that lead to his being treated for CF. He has had lung issues since birth, but still is not "definitely " dx w/ CF for lack of identifiable genetic mutations. IMHO you should persue the sweat test, and go from there once you know your son's number.
 
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