Anyone not inhaling antibiotics?

[Chaggie]

yep, can't inhale any of them. I'm waiting for aztreonam to see if that's any better.

 

[Chaggie]

yep, can't inhale any of them. I'm waiting for aztreonam to see if that's any better.

 

[Chaggie]

yep, can't inhale any of them. I'm waiting for aztreonam to see if that's any better.

 

[Chaggie]

yep, can't inhale any of them. I'm waiting for aztreonam to see if that's any better.

 

[Chaggie]

yep, can't inhale any of them. I'm waiting for aztreonam to see if that's any better.

 

[jfarel]

Me too Chris. I keep badgering the docs about getting me some of the Aztreonam. Should be out sometime next year though---I'm praying!

 

[jfarel]

Me too Chris. I keep badgering the docs about getting me some of the Aztreonam. Should be out sometime next year though---I'm praying!

 

[jfarel]

Me too Chris. I keep badgering the docs about getting me some of the Aztreonam. Should be out sometime next year though---I'm praying!

 

[jfarel]

Me too Chris. I keep badgering the docs about getting me some of the Aztreonam. Should be out sometime next year though---I'm praying!

 

[jfarel]

Me too Chris. I keep badgering the docs about getting me some of the Aztreonam. Should be out sometime next year though---I'm praying!

 

[blindhearted]

I dont take Tobi anymore. I was having trouble with bad SOB, chest tightness and coughing. I've never been on Colistin so I dont know how that would do. I asked them what good was it doing since both of my bugs are resistant to Tobra, they agreed to see how I did without it. I havent been on Tobi for a little over a year. My PFTs, even though they are low, have been stable. They have no plans to put me on any inhaled antibiotics anytime soon. I am on Zithromax orally 3x a week and any other oral antibiotics when needed.

 

[blindhearted]

I dont take Tobi anymore. I was having trouble with bad SOB, chest tightness and coughing. I've never been on Colistin so I dont know how that would do. I asked them what good was it doing since both of my bugs are resistant to Tobra, they agreed to see how I did without it. I havent been on Tobi for a little over a year. My PFTs, even though they are low, have been stable. They have no plans to put me on any inhaled antibiotics anytime soon. I am on Zithromax orally 3x a week and any other oral antibiotics when needed.

 

[blindhearted]

I dont take Tobi anymore. I was having trouble with bad SOB, chest tightness and coughing. I've never been on Colistin so I dont know how that would do. I asked them what good was it doing since both of my bugs are resistant to Tobra, they agreed to see how I did without it. I havent been on Tobi for a little over a year. My PFTs, even though they are low, have been stable. They have no plans to put me on any inhaled antibiotics anytime soon. I am on Zithromax orally 3x a week and any other oral antibiotics when needed.

 

[blindhearted]

I dont take Tobi anymore. I was having trouble with bad SOB, chest tightness and coughing. I've never been on Colistin so I dont know how that would do. I asked them what good was it doing since both of my bugs are resistant to Tobra, they agreed to see how I did without it. I havent been on Tobi for a little over a year. My PFTs, even though they are low, have been stable. They have no plans to put me on any inhaled antibiotics anytime soon. I am on Zithromax orally 3x a week and any other oral antibiotics when needed.

 

[blindhearted]

I dont take Tobi anymore. I was having trouble with bad SOB, chest tightness and coughing. I've never been on Colistin so I dont know how that would do. I asked them what good was it doing since both of my bugs are resistant to Tobra, they agreed to see how I did without it. I havent been on Tobi for a little over a year. My PFTs, even though they are low, have been stable. They have no plans to put me on any inhaled antibiotics anytime soon. I am on Zithromax orally 3x a week and any other oral antibiotics when needed.

 

[Scarlett81]

i haven't been on oral abx or inhaled in 2 yrs. my doc felt that my health could tolerate not using them in planning my preg and that to test my overall health it would be good to see if i could do without them for 1 yr prior to conception-mainly bc the danger of infection during preg, and also that obviously avoiding abx during preg is best (if u can). the baby is 4 mos and I'm still off all abx bc I'm bf and just haven't had the need for abx. BUT-I am religious with my therapies and exercise. I do albuterol, hypertonic saline, and pulmozyme.
I will do a round of abx soon to prepare for winter though. And when I am done BF I'd like to go back on Tobi, just bc it works good for me and I tolerate it well since i have cepacia.
Overall I have found that you can do it without abx if you have to, but only if you are very disciplined with your therapies. In the 2 yrs off of abx, my fev1 increased by 25 points.
Hope this helped, or answered some questions.

 

[Scarlett81]

i haven't been on oral abx or inhaled in 2 yrs. my doc felt that my health could tolerate not using them in planning my preg and that to test my overall health it would be good to see if i could do without them for 1 yr prior to conception-mainly bc the danger of infection during preg, and also that obviously avoiding abx during preg is best (if u can). the baby is 4 mos and I'm still off all abx bc I'm bf and just haven't had the need for abx. BUT-I am religious with my therapies and exercise. I do albuterol, hypertonic saline, and pulmozyme.
I will do a round of abx soon to prepare for winter though. And when I am done BF I'd like to go back on Tobi, just bc it works good for me and I tolerate it well since i have cepacia.
Overall I have found that you can do it without abx if you have to, but only if you are very disciplined with your therapies. In the 2 yrs off of abx, my fev1 increased by 25 points.
Hope this helped, or answered some questions.

 

[Scarlett81]

i haven't been on oral abx or inhaled in 2 yrs. my doc felt that my health could tolerate not using them in planning my preg and that to test my overall health it would be good to see if i could do without them for 1 yr prior to conception-mainly bc the danger of infection during preg, and also that obviously avoiding abx during preg is best (if u can). the baby is 4 mos and I'm still off all abx bc I'm bf and just haven't had the need for abx. BUT-I am religious with my therapies and exercise. I do albuterol, hypertonic saline, and pulmozyme.
I will do a round of abx soon to prepare for winter though. And when I am done BF I'd like to go back on Tobi, just bc it works good for me and I tolerate it well since i have cepacia.
Overall I have found that you can do it without abx if you have to, but only if you are very disciplined with your therapies. In the 2 yrs off of abx, my fev1 increased by 25 points.
Hope this helped, or answered some questions.

 

[Scarlett81]

i haven't been on oral abx or inhaled in 2 yrs. my doc felt that my health could tolerate not using them in planning my preg and that to test my overall health it would be good to see if i could do without them for 1 yr prior to conception-mainly bc the danger of infection during preg, and also that obviously avoiding abx during preg is best (if u can). the baby is 4 mos and I'm still off all abx bc I'm bf and just haven't had the need for abx. BUT-I am religious with my therapies and exercise. I do albuterol, hypertonic saline, and pulmozyme.
I will do a round of abx soon to prepare for winter though. And when I am done BF I'd like to go back on Tobi, just bc it works good for me and I tolerate it well since i have cepacia.
Overall I have found that you can do it without abx if you have to, but only if you are very disciplined with your therapies. In the 2 yrs off of abx, my fev1 increased by 25 points.
Hope this helped, or answered some questions.

 

[Scarlett81]

i haven't been on oral abx or inhaled in 2 yrs. my doc felt that my health could tolerate not using them in planning my preg and that to test my overall health it would be good to see if i could do without them for 1 yr prior to conception-mainly bc the danger of infection during preg, and also that obviously avoiding abx during preg is best (if u can). the baby is 4 mos and I'm still off all abx bc I'm bf and just haven't had the need for abx. BUT-I am religious with my therapies and exercise. I do albuterol, hypertonic saline, and pulmozyme.
I will do a round of abx soon to prepare for winter though. And when I am done BF I'd like to go back on Tobi, just bc it works good for me and I tolerate it well since i have cepacia.
Overall I have found that you can do it without abx if you have to, but only if you are very disciplined with your therapies. In the 2 yrs off of abx, my fev1 increased by 25 points.
Hope this helped, or answered some questions.