Are cf people doomed?

[Ender]

hahah doomed in style...I like that.

I dunno, I guess it's hard to take an outside perspective on something like this...because we live that life that these books and commercials depict as a death sentence. I never thought of it like that...and i didn't see myself the way they portrayed cf people (they as the media).

I think sometimes i dwell on the fact that i have cf a bit too much. It comes in waves though.

If I didn't have cf though, and I read about it, saw the ads, media coverage...I think I might feel sorry for people with cf hehe. But to live it is a different story i think.

<img src="i/expressions/face-icon-small-tongue.gif" border="0">

 

[coltsfan715]

I have had pretty much every friend I have had over the years say to me oh my gosh you could die ... TOMORROW because of CF or is it true? Are you going to die at 16?... All the Science books had 16 .. even when the ave. age exp. started rising. Every thing that is in books is all facts and numbers. They don't take into account each and every different case.

I too used to tell my friends hey ... you could die tomorrow too. As for the are you going to die at 16 I would just say most likely no. Then I would tell them the NEW ave. life exp. numbers. I had so many people arguing with our teachers it was hysterical.

I sometimes have my moments when I get down .. not so much for not doing meds, because I expect to get worse when I don't do my meds. I get down when I do EVERYTHING I am supposed to do (take all my meds) and I am still getting sick and still getting worse. THAT is what gets me down. Then I start feeling better and I mentally snap out of it. It is a road with many ups and downs, but then again everyone's life is that way. Our ups and downs are just a little rockier at times.

No I do not feel doomed ... just a bit unlucky when it comes to having CF.

Lindsey

 

[anonymous]

I feel encouraged from reading the posts.

I would hate that people think of my 2 year old as "doomed". This kid has more spunk and love of life than 50 people put together! I feel so blessed to have him and so lucky that I get to be his parent. It is incredibly hard at times because I know he may have some rocky times but who doesn't? He is in a loving, supportive family- many kids don't even have that. I really try to focus on the positive. It is hard esp when he has the PICC and all those other lovely CF things but people with CF seem to have that "extra spunk" that get them through the hard times.

Warwick has also done studies that show people with CF are on average smarter than the average person! I still can't always log on so I think I may be anon again.

Megan, mom to Aidan almost 2 with CF Double Delta

 

[Ender]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i>


Warwick has also done studies that show people with CF are on average smarter than the average person! I still can't always log on so I think I may be anon again.

Megan, mom to Aidan almost 2 with CF Double Delta</end quote></div>

ya maybe it has something to do about being more aware of their bodies, and trying to figure out circumstance...and just the whole..why? I guess it just makes you question things a lot earlier

 

[anonymous]

I think if one views CF as a doomed fate, then they should look at everyone as being doomed. All humans must die eventually, whether it's at age 1 or 120. In essence, all humans are "doomed" if you interpret doom to be death. Everyone's body begins to slowly die at a certain age, CFers' just die faster and have a harder time in life. To me that's not doomed, it's bad luck. Sure it sucks but there's too much about life that is great to focus on the bad and let it consume you. Death isn't the real doom, it's letting the disease consume your mind and spirit that is. No one can ever be sure when they're going to die, whether they have CF or are as healthy as healthy can be. They might tell you you'll only live til 30, but maybe you'll live twice as long. Sure it may not be likely, but that hope is there, and abandoning hope is a doom I would hate to face.