Are they all this clueless on CF?

[Rickiesmom]

I just wanted to say that I totally understand-I have spent most of the winter in the hospital with our son (who is 6 as well) and sometimes they seem to be clueless on many cf related issues. I'm no expert but I seem to know a lot more than some in the hospital!

I hope your little guy gets out soon. (((hugs)))) to you and your family.

Carey

 

[Rickiesmom]

I just wanted to say that I totally understand-I have spent most of the winter in the hospital with our son (who is 6 as well) and sometimes they seem to be clueless on many cf related issues. I'm no expert but I seem to know a lot more than some in the hospital!

I hope your little guy gets out soon. (((hugs)))) to you and your family.

Carey

 

[Rickiesmom]

I just wanted to say that I totally understand-I have spent most of the winter in the hospital with our son (who is 6 as well) and sometimes they seem to be clueless on many cf related issues. I'm no expert but I seem to know a lot more than some in the hospital!

I hope your little guy gets out soon. (((hugs)))) to you and your family.

Carey

 

[Rickiesmom]

I just wanted to say that I totally understand-I have spent most of the winter in the hospital with our son (who is 6 as well) and sometimes they seem to be clueless on many cf related issues. I'm no expert but I seem to know a lot more than some in the hospital!

I hope your little guy gets out soon. (((hugs)))) to you and your family.

Carey

 

[Rickiesmom]

I just wanted to say that I totally understand-I have spent most of the winter in the hospital with our son (who is 6 as well) and sometimes they seem to be clueless on many cf related issues. I'm no expert but I seem to know a lot more than some in the hospital!
<br />
<br />I hope your little guy gets out soon. (((hugs)))) to you and your family.
<br />
<br />Carey

 

[babynataliesmommy]

ok, so my daughter has cf also and she is almost 3 months old. We have been in the hospital 4 a week now and the 1st day we were here they put a picc line in. She wast able to eat 4 about 7 hours. i hated it cuz i just wanted to feed her. so anyways just 2 days ago we had to bring her to the picu becuz she was at risk to stop breathing becuz she has a respatory infection. she wasnt allowed to eat 4 about 24 hours then they finaly decided to give her a feeding tube. So i know how u feel!! i flipped out on one of the nurses cuz i felt like i wasnt able to do anything about it and then they were like do u want us to put her on a feeding tube and i was like why didnt u do that wen we firstgot down here. i was so mad becuz she lost 12 ouces. soi know just how u feel. thank god she isdoing much better!!
-helena
babynataliesmommy

 

[babynataliesmommy]

ok, so my daughter has cf also and she is almost 3 months old. We have been in the hospital 4 a week now and the 1st day we were here they put a picc line in. She wast able to eat 4 about 7 hours. i hated it cuz i just wanted to feed her. so anyways just 2 days ago we had to bring her to the picu becuz she was at risk to stop breathing becuz she has a respatory infection. she wasnt allowed to eat 4 about 24 hours then they finaly decided to give her a feeding tube. So i know how u feel!! i flipped out on one of the nurses cuz i felt like i wasnt able to do anything about it and then they were like do u want us to put her on a feeding tube and i was like why didnt u do that wen we firstgot down here. i was so mad becuz she lost 12 ouces. soi know just how u feel. thank god she isdoing much better!!
-helena
babynataliesmommy

 

[babynataliesmommy]

ok, so my daughter has cf also and she is almost 3 months old. We have been in the hospital 4 a week now and the 1st day we were here they put a picc line in. She wast able to eat 4 about 7 hours. i hated it cuz i just wanted to feed her. so anyways just 2 days ago we had to bring her to the picu becuz she was at risk to stop breathing becuz she has a respatory infection. she wasnt allowed to eat 4 about 24 hours then they finaly decided to give her a feeding tube. So i know how u feel!! i flipped out on one of the nurses cuz i felt like i wasnt able to do anything about it and then they were like do u want us to put her on a feeding tube and i was like why didnt u do that wen we firstgot down here. i was so mad becuz she lost 12 ouces. soi know just how u feel. thank god she isdoing much better!!
-helena
babynataliesmommy

 

[babynataliesmommy]

ok, so my daughter has cf also and she is almost 3 months old. We have been in the hospital 4 a week now and the 1st day we were here they put a picc line in. She wast able to eat 4 about 7 hours. i hated it cuz i just wanted to feed her. so anyways just 2 days ago we had to bring her to the picu becuz she was at risk to stop breathing becuz she has a respatory infection. she wasnt allowed to eat 4 about 24 hours then they finaly decided to give her a feeding tube. So i know how u feel!! i flipped out on one of the nurses cuz i felt like i wasnt able to do anything about it and then they were like do u want us to put her on a feeding tube and i was like why didnt u do that wen we firstgot down here. i was so mad becuz she lost 12 ouces. soi know just how u feel. thank god she isdoing much better!!
-helena
babynataliesmommy

 

[babynataliesmommy]

ok, so my daughter has cf also and she is almost 3 months old. We have been in the hospital 4 a week now and the 1st day we were here they put a picc line in. She wast able to eat 4 about 7 hours. i hated it cuz i just wanted to feed her. so anyways just 2 days ago we had to bring her to the picu becuz she was at risk to stop breathing becuz she has a respatory infection. she wasnt allowed to eat 4 about 24 hours then they finaly decided to give her a feeding tube. So i know how u feel!! i flipped out on one of the nurses cuz i felt like i wasnt able to do anything about it and then they were like do u want us to put her on a feeding tube and i was like why didnt u do that wen we firstgot down here. i was so mad becuz she lost 12 ouces. soi know just how u feel. thank god she isdoing much better!!
<br />-helena
<br />babynataliesmommy