Are you more susceptible when....

[CowTown]

This might seem very basic, but I am wondering what the relationship between lower lung function and higher susceptibility rates to bacteria (bugs).

The water parks thread make me question this. For me, growing up I did tons of activities in any form and never worried about what kind of water I was jumping into or anything. My PFTs have always been nice and high (80-90% or whatever). I think b/c of the high lung function I used to always have, my CF was hardly ever on my mind.

Now that I'm at 46% and certain activies are a challenge and I feel the CF more then ever, I have started to be more aware of protecting myself from things.

As your lung function decreases, should you be more aware of "where the bugs are"? Are you more susceptible to bacteria and further lung damage once your PFTs drop and damage increases? Is it a snowball effect with susceptibility?

For instance, in the water park thread right now, there are some people saying, what the heck have fun it won't hurt you, etc, and I just wonder if that's the case for people with PFTs over a certain number (whatever that # is) and for others who are under a certain # that it's actually not a good idea for. Am I making sense? If someone is around 20% , would you still tell them "go for it, go to a water park, enjoy the lakes, etc, it won't make a difference"? (fyi, I'm not mad here, just really curious.)

thanks.

 

[CowTown]

This might seem very basic, but I am wondering what the relationship between lower lung function and higher susceptibility rates to bacteria (bugs).

The water parks thread make me question this. For me, growing up I did tons of activities in any form and never worried about what kind of water I was jumping into or anything. My PFTs have always been nice and high (80-90% or whatever). I think b/c of the high lung function I used to always have, my CF was hardly ever on my mind.

Now that I'm at 46% and certain activies are a challenge and I feel the CF more then ever, I have started to be more aware of protecting myself from things.

As your lung function decreases, should you be more aware of "where the bugs are"? Are you more susceptible to bacteria and further lung damage once your PFTs drop and damage increases? Is it a snowball effect with susceptibility?

For instance, in the water park thread right now, there are some people saying, what the heck have fun it won't hurt you, etc, and I just wonder if that's the case for people with PFTs over a certain number (whatever that # is) and for others who are under a certain # that it's actually not a good idea for. Am I making sense? If someone is around 20% , would you still tell them "go for it, go to a water park, enjoy the lakes, etc, it won't make a difference"? (fyi, I'm not mad here, just really curious.)

thanks.

 

[CowTown]

This might seem very basic, but I am wondering what the relationship between lower lung function and higher susceptibility rates to bacteria (bugs).

The water parks thread make me question this. For me, growing up I did tons of activities in any form and never worried about what kind of water I was jumping into or anything. My PFTs have always been nice and high (80-90% or whatever). I think b/c of the high lung function I used to always have, my CF was hardly ever on my mind.

Now that I'm at 46% and certain activies are a challenge and I feel the CF more then ever, I have started to be more aware of protecting myself from things.

As your lung function decreases, should you be more aware of "where the bugs are"? Are you more susceptible to bacteria and further lung damage once your PFTs drop and damage increases? Is it a snowball effect with susceptibility?

For instance, in the water park thread right now, there are some people saying, what the heck have fun it won't hurt you, etc, and I just wonder if that's the case for people with PFTs over a certain number (whatever that # is) and for others who are under a certain # that it's actually not a good idea for. Am I making sense? If someone is around 20% , would you still tell them "go for it, go to a water park, enjoy the lakes, etc, it won't make a difference"? (fyi, I'm not mad here, just really curious.)

thanks.

 

[CowTown]

This might seem very basic, but I am wondering what the relationship between lower lung function and higher susceptibility rates to bacteria (bugs).

The water parks thread make me question this. For me, growing up I did tons of activities in any form and never worried about what kind of water I was jumping into or anything. My PFTs have always been nice and high (80-90% or whatever). I think b/c of the high lung function I used to always have, my CF was hardly ever on my mind.

Now that I'm at 46% and certain activies are a challenge and I feel the CF more then ever, I have started to be more aware of protecting myself from things.

As your lung function decreases, should you be more aware of "where the bugs are"? Are you more susceptible to bacteria and further lung damage once your PFTs drop and damage increases? Is it a snowball effect with susceptibility?

For instance, in the water park thread right now, there are some people saying, what the heck have fun it won't hurt you, etc, and I just wonder if that's the case for people with PFTs over a certain number (whatever that # is) and for others who are under a certain # that it's actually not a good idea for. Am I making sense? If someone is around 20% , would you still tell them "go for it, go to a water park, enjoy the lakes, etc, it won't make a difference"? (fyi, I'm not mad here, just really curious.)

thanks.

 

[CowTown]

This might seem very basic, but I am wondering what the relationship between lower lung function and higher susceptibility rates to bacteria (bugs).

The water parks thread make me question this. For me, growing up I did tons of activities in any form and never worried about what kind of water I was jumping into or anything. My PFTs have always been nice and high (80-90% or whatever). I think b/c of the high lung function I used to always have, my CF was hardly ever on my mind.

Now that I'm at 46% and certain activies are a challenge and I feel the CF more then ever, I have started to be more aware of protecting myself from things.

As your lung function decreases, should you be more aware of "where the bugs are"? Are you more susceptible to bacteria and further lung damage once your PFTs drop and damage increases? Is it a snowball effect with susceptibility?

For instance, in the water park thread right now, there are some people saying, what the heck have fun it won't hurt you, etc, and I just wonder if that's the case for people with PFTs over a certain number (whatever that # is) and for others who are under a certain # that it's actually not a good idea for. Am I making sense? If someone is around 20% , would you still tell them "go for it, go to a water park, enjoy the lakes, etc, it won't make a difference"? (fyi, I'm not mad here, just really curious.)

thanks.

 

[CowTown]

This might seem very basic, but I am wondering what the relationship between lower lung function and higher susceptibility rates to bacteria (bugs).

The water parks thread make me question this. For me, growing up I did tons of activities in any form and never worried about what kind of water I was jumping into or anything. My PFTs have always been nice and high (80-90% or whatever). I think b/c of the high lung function I used to always have, my CF was hardly ever on my mind.

Now that I'm at 46% and certain activies are a challenge and I feel the CF more then ever, I have started to be more aware of protecting myself from things.

As your lung function decreases, should you be more aware of "where the bugs are"? Are you more susceptible to bacteria and further lung damage once your PFTs drop and damage increases? Is it a snowball effect with susceptibility?

For instance, in the water park thread right now, there are some people saying, what the heck have fun it won't hurt you, etc, and I just wonder if that's the case for people with PFTs over a certain number (whatever that # is) and for others who are under a certain # that it's actually not a good idea for. Am I making sense? If someone is around 20% , would you still tell them "go for it, go to a water park, enjoy the lakes, etc, it won't make a difference"? (fyi, I'm not mad here, just really curious.)

thanks.

 

[AnD]

That's a good question! For me, it has been the less lung function, the more paranoid I am (less of a cushion to recover with). I also worry that there are more "spots" for it to take hold...

 

[AnD]

That's a good question! For me, it has been the less lung function, the more paranoid I am (less of a cushion to recover with). I also worry that there are more "spots" for it to take hold...

 

[AnD]

That's a good question! For me, it has been the less lung function, the more paranoid I am (less of a cushion to recover with). I also worry that there are more "spots" for it to take hold...

 

[AnD]

That's a good question! For me, it has been the less lung function, the more paranoid I am (less of a cushion to recover with). I also worry that there are more "spots" for it to take hold...

 

[AnD]

That's a good question! For me, it has been the less lung function, the more paranoid I am (less of a cushion to recover with). I also worry that there are more "spots" for it to take hold...

 

[AnD]

That's a good question! For me, it has been the less lung function, the more paranoid I am (less of a cushion to recover with). I also worry that there are more "spots" for it to take hold...

 

[Jane]

That's a good question. I've wondered which came first with my boys, their overall health decline (low weight, sinus infections) that caused them to get that myco bacteria OR was it that bug that caused the health issues.

In our case, our doctor guesses it was the bug only because she pinpointed the timing of their downward turn, and thinks it was at the same time they were exposed. No way to know for sure, but it makes you crazy speculating.

BTW, did you see my blog on the environmental testing results?

 

[Jane]

That's a good question. I've wondered which came first with my boys, their overall health decline (low weight, sinus infections) that caused them to get that myco bacteria OR was it that bug that caused the health issues.

In our case, our doctor guesses it was the bug only because she pinpointed the timing of their downward turn, and thinks it was at the same time they were exposed. No way to know for sure, but it makes you crazy speculating.

BTW, did you see my blog on the environmental testing results?

 

[Jane]

That's a good question. I've wondered which came first with my boys, their overall health decline (low weight, sinus infections) that caused them to get that myco bacteria OR was it that bug that caused the health issues.

In our case, our doctor guesses it was the bug only because she pinpointed the timing of their downward turn, and thinks it was at the same time they were exposed. No way to know for sure, but it makes you crazy speculating.

BTW, did you see my blog on the environmental testing results?

 

[Jane]

That's a good question. I've wondered which came first with my boys, their overall health decline (low weight, sinus infections) that caused them to get that myco bacteria OR was it that bug that caused the health issues.

In our case, our doctor guesses it was the bug only because she pinpointed the timing of their downward turn, and thinks it was at the same time they were exposed. No way to know for sure, but it makes you crazy speculating.

BTW, did you see my blog on the environmental testing results?

 

[Jane]

That's a good question. I've wondered which came first with my boys, their overall health decline (low weight, sinus infections) that caused them to get that myco bacteria OR was it that bug that caused the health issues.

In our case, our doctor guesses it was the bug only because she pinpointed the timing of their downward turn, and thinks it was at the same time they were exposed. No way to know for sure, but it makes you crazy speculating.

BTW, did you see my blog on the environmental testing results?

 

[Jane]

That's a good question. I've wondered which came first with my boys, their overall health decline (low weight, sinus infections) that caused them to get that myco bacteria OR was it that bug that caused the health issues.

In our case, our doctor guesses it was the bug only because she pinpointed the timing of their downward turn, and thinks it was at the same time they were exposed. No way to know for sure, but it makes you crazy speculating.

BTW, did you see my blog on the environmental testing results?

 

[JazzysMom]

Good ??.....you can have lower lung function & be stable meaning your overall health is good considering. Maybe once you require O2 etc then your defense goes down more. I mean if it was just about lung function vs susceptability some of us wouldnt culture PA, MRSA or Cepacia until further down the line. Like so many other things in CF I am sure it plays a part, but has to how much I would think just varies!

 

[JazzysMom]

Good ??.....you can have lower lung function & be stable meaning your overall health is good considering. Maybe once you require O2 etc then your defense goes down more. I mean if it was just about lung function vs susceptability some of us wouldnt culture PA, MRSA or Cepacia until further down the line. Like so many other things in CF I am sure it plays a part, but has to how much I would think just varies!