What's new
By:
Filters
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Asthma and CF

E

ERINSBIZ

New member
Yeah, I feel the same way. I am weezing and the more stuff I do for it; tends to loosen the junk in the lungs and cause more noise. But, if I let it go and don't do any treatment then I dry up in the lungs and eventually the PA flares up. I am just as baffled.

I guess I have learned with this go around with iv antibiotics treatment is that I have "cf" and it can't be ignored any longer. I have to ignored "cf" because I have been able to. But now I can't. I have to do all my treatments faithfully.

This is my fourth week of antibiotics and I would have never thought of the treatment lasting this long. I felt great and was almost to my baseline goal of FEV 3.3 and I blew a 2.6. That was even worse than when I went in for my hospital stay. So three weeks later I am still on iv. My last hospital stay a year and half ago; I was done with iv's in a week. But primarily I have a weeze and my numbers aren't at my norm.

It's very frustrating and I question the whole aggressive therapy. But, I wouldn't change it because I would rather be aggressive than passive with my health. That's for sure. Hang in there because you are not alone in this ride.
 
E

ERINSBIZ

New member
Yeah, I feel the same way. I am weezing and the more stuff I do for it; tends to loosen the junk in the lungs and cause more noise. But, if I let it go and don't do any treatment then I dry up in the lungs and eventually the PA flares up. I am just as baffled.

I guess I have learned with this go around with iv antibiotics treatment is that I have "cf" and it can't be ignored any longer. I have to ignored "cf" because I have been able to. But now I can't. I have to do all my treatments faithfully.

This is my fourth week of antibiotics and I would have never thought of the treatment lasting this long. I felt great and was almost to my baseline goal of FEV 3.3 and I blew a 2.6. That was even worse than when I went in for my hospital stay. So three weeks later I am still on iv. My last hospital stay a year and half ago; I was done with iv's in a week. But primarily I have a weeze and my numbers aren't at my norm.

It's very frustrating and I question the whole aggressive therapy. But, I wouldn't change it because I would rather be aggressive than passive with my health. That's for sure. Hang in there because you are not alone in this ride.
 
E

ERINSBIZ

New member
Yeah, I feel the same way. I am weezing and the more stuff I do for it; tends to loosen the junk in the lungs and cause more noise. But, if I let it go and don't do any treatment then I dry up in the lungs and eventually the PA flares up. I am just as baffled.

I guess I have learned with this go around with iv antibiotics treatment is that I have "cf" and it can't be ignored any longer. I have to ignored "cf" because I have been able to. But now I can't. I have to do all my treatments faithfully.

This is my fourth week of antibiotics and I would have never thought of the treatment lasting this long. I felt great and was almost to my baseline goal of FEV 3.3 and I blew a 2.6. That was even worse than when I went in for my hospital stay. So three weeks later I am still on iv. My last hospital stay a year and half ago; I was done with iv's in a week. But primarily I have a weeze and my numbers aren't at my norm.

It's very frustrating and I question the whole aggressive therapy. But, I wouldn't change it because I would rather be aggressive than passive with my health. That's for sure. Hang in there because you are not alone in this ride.
 
E

ERINSBIZ

New member
Yeah, I feel the same way. I am weezing and the more stuff I do for it; tends to loosen the junk in the lungs and cause more noise. But, if I let it go and don't do any treatment then I dry up in the lungs and eventually the PA flares up. I am just as baffled.

I guess I have learned with this go around with iv antibiotics treatment is that I have "cf" and it can't be ignored any longer. I have to ignored "cf" because I have been able to. But now I can't. I have to do all my treatments faithfully.

This is my fourth week of antibiotics and I would have never thought of the treatment lasting this long. I felt great and was almost to my baseline goal of FEV 3.3 and I blew a 2.6. That was even worse than when I went in for my hospital stay. So three weeks later I am still on iv. My last hospital stay a year and half ago; I was done with iv's in a week. But primarily I have a weeze and my numbers aren't at my norm.

It's very frustrating and I question the whole aggressive therapy. But, I wouldn't change it because I would rather be aggressive than passive with my health. That's for sure. Hang in there because you are not alone in this ride.
 
E

ERINSBIZ

New member
Yeah, I feel the same way. I am weezing and the more stuff I do for it; tends to loosen the junk in the lungs and cause more noise. But, if I let it go and don't do any treatment then I dry up in the lungs and eventually the PA flares up. I am just as baffled.
<br />
<br />I guess I have learned with this go around with iv antibiotics treatment is that I have "cf" and it can't be ignored any longer. I have to ignored "cf" because I have been able to. But now I can't. I have to do all my treatments faithfully.
<br />
<br />This is my fourth week of antibiotics and I would have never thought of the treatment lasting this long. I felt great and was almost to my baseline goal of FEV 3.3 and I blew a 2.6. That was even worse than when I went in for my hospital stay. So three weeks later I am still on iv. My last hospital stay a year and half ago; I was done with iv's in a week. But primarily I have a weeze and my numbers aren't at my norm.
<br />
<br />It's very frustrating and I question the whole aggressive therapy. But, I wouldn't change it because I would rather be aggressive than passive with my health. That's for sure. Hang in there because you are not alone in this ride.
 
L

LeneSouthAfrica

New member
yes my asthma, altho very mild, makes a difference in the #'s. The treatment that works for me is a disk inhaler, something called Seretide 50/500, (contains salmeterol+fluticasone propionate - one has a anti-inflammatory effect and the other long action bronchodilator from what i understand). It takes a few days to start working, as it is a long term therapy, not short acting. It has the unfortunate side-effect for me that it makes my lungs burn when I exercise, but hey, it takes away the tightness and wheezing the rest of the 24 hr day.
 
L

LeneSouthAfrica

New member
yes my asthma, altho very mild, makes a difference in the #'s. The treatment that works for me is a disk inhaler, something called Seretide 50/500, (contains salmeterol+fluticasone propionate - one has a anti-inflammatory effect and the other long action bronchodilator from what i understand). It takes a few days to start working, as it is a long term therapy, not short acting. It has the unfortunate side-effect for me that it makes my lungs burn when I exercise, but hey, it takes away the tightness and wheezing the rest of the 24 hr day.
 
L

LeneSouthAfrica

New member
yes my asthma, altho very mild, makes a difference in the #'s. The treatment that works for me is a disk inhaler, something called Seretide 50/500, (contains salmeterol+fluticasone propionate - one has a anti-inflammatory effect and the other long action bronchodilator from what i understand). It takes a few days to start working, as it is a long term therapy, not short acting. It has the unfortunate side-effect for me that it makes my lungs burn when I exercise, but hey, it takes away the tightness and wheezing the rest of the 24 hr day.
 
L

LeneSouthAfrica

New member
yes my asthma, altho very mild, makes a difference in the #'s. The treatment that works for me is a disk inhaler, something called Seretide 50/500, (contains salmeterol+fluticasone propionate - one has a anti-inflammatory effect and the other long action bronchodilator from what i understand). It takes a few days to start working, as it is a long term therapy, not short acting. It has the unfortunate side-effect for me that it makes my lungs burn when I exercise, but hey, it takes away the tightness and wheezing the rest of the 24 hr day.
 
L

LeneSouthAfrica

New member
yes my asthma, altho very mild, makes a difference in the #'s. The treatment that works for me is a disk inhaler, something called Seretide 50/500, (contains salmeterol+fluticasone propionate - one has a anti-inflammatory effect and the other long action bronchodilator from what i understand). It takes a few days to start working, as it is a long term therapy, not short acting. It has the unfortunate side-effect for me that it makes my lungs burn when I exercise, but hey, it takes away the tightness and wheezing the rest of the 24 hr day.
 
J

JORDYSMOM

New member
Jordan's asthma does cause him more trouble than the CF. His severe allergies complicate both on top of that. He uses Asmanex instead of Advair. It seems to work best for him. You might try it?

Also, the xoepenex doesn't work as well for Jordan. He has to use Albuterol or his airways don't open up enough to cough out the gunk. If you have been on the same allergy meds for years, maybe you are building up a tolerance? Singulair used to work for Jordan, but it doesn't even touch his allergies anymore. Nasonex seems to help him some.

I hope you find the right combo of meds to get you feeling better.

Stacey
 
J

JORDYSMOM

New member
Jordan's asthma does cause him more trouble than the CF. His severe allergies complicate both on top of that. He uses Asmanex instead of Advair. It seems to work best for him. You might try it?

Also, the xoepenex doesn't work as well for Jordan. He has to use Albuterol or his airways don't open up enough to cough out the gunk. If you have been on the same allergy meds for years, maybe you are building up a tolerance? Singulair used to work for Jordan, but it doesn't even touch his allergies anymore. Nasonex seems to help him some.

I hope you find the right combo of meds to get you feeling better.

Stacey
 
J

JORDYSMOM

New member
Jordan's asthma does cause him more trouble than the CF. His severe allergies complicate both on top of that. He uses Asmanex instead of Advair. It seems to work best for him. You might try it?

Also, the xoepenex doesn't work as well for Jordan. He has to use Albuterol or his airways don't open up enough to cough out the gunk. If you have been on the same allergy meds for years, maybe you are building up a tolerance? Singulair used to work for Jordan, but it doesn't even touch his allergies anymore. Nasonex seems to help him some.

I hope you find the right combo of meds to get you feeling better.

Stacey
 
J

JORDYSMOM

New member
Jordan's asthma does cause him more trouble than the CF. His severe allergies complicate both on top of that. He uses Asmanex instead of Advair. It seems to work best for him. You might try it?

Also, the xoepenex doesn't work as well for Jordan. He has to use Albuterol or his airways don't open up enough to cough out the gunk. If you have been on the same allergy meds for years, maybe you are building up a tolerance? Singulair used to work for Jordan, but it doesn't even touch his allergies anymore. Nasonex seems to help him some.

I hope you find the right combo of meds to get you feeling better.

Stacey
 
J

JORDYSMOM

New member
Jordan's asthma does cause him more trouble than the CF. His severe allergies complicate both on top of that. He uses Asmanex instead of Advair. It seems to work best for him. You might try it?
<br />
<br />Also, the xoepenex doesn't work as well for Jordan. He has to use Albuterol or his airways don't open up enough to cough out the gunk. If you have been on the same allergy meds for years, maybe you are building up a tolerance? Singulair used to work for Jordan, but it doesn't even touch his allergies anymore. Nasonex seems to help him some.
<br />
<br />I hope you find the right combo of meds to get you feeling better.
<br />
<br />Stacey
 
You must log in or register to reply here.
Top