What's new
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Astreonam Lysine

Skye

New member
To those of you who know anything about the expanded access program, I have a few questions. When you look on the government site for clinical trial contacts, there are only a few cities to choose from. The closest one for me is about a 7 hour drive. Do you have to go to that center or contact place to participate? If so, how often? Can you be followed at your regular CF clinic? Do I have wrong information, are there more participating centers that I may not be aware of? Thanks for any help.
 

Skye

New member
To those of you who know anything about the expanded access program, I have a few questions. When you look on the government site for clinical trial contacts, there are only a few cities to choose from. The closest one for me is about a 7 hour drive. Do you have to go to that center or contact place to participate? If so, how often? Can you be followed at your regular CF clinic? Do I have wrong information, are there more participating centers that I may not be aware of? Thanks for any help.
 

Skye

New member
To those of you who know anything about the expanded access program, I have a few questions. When you look on the government site for clinical trial contacts, there are only a few cities to choose from. The closest one for me is about a 7 hour drive. Do you have to go to that center or contact place to participate? If so, how often? Can you be followed at your regular CF clinic? Do I have wrong information, are there more participating centers that I may not be aware of? Thanks for any help.
 

Skye

New member
To those of you who know anything about the expanded access program, I have a few questions. When you look on the government site for clinical trial contacts, there are only a few cities to choose from. The closest one for me is about a 7 hour drive. Do you have to go to that center or contact place to participate? If so, how often? Can you be followed at your regular CF clinic? Do I have wrong information, are there more participating centers that I may not be aware of? Thanks for any help.
 

Skye

New member
To those of you who know anything about the expanded access program, I have a few questions. When you look on the government site for clinical trial contacts, there are only a few cities to choose from. The closest one for me is about a 7 hour drive. Do you have to go to that center or contact place to participate? If so, how often? Can you be followed at your regular CF clinic? Do I have wrong information, are there more participating centers that I may not be aware of? Thanks for any help.
 
M

MCGrad2006

Guest
Ok I will try to answer some of your questions. I am in the Expanded Access Program at MGH in Boston. Not sure if that is listed. I know that during the regular trial someone from a different clinic did participate with MGH. I am NOT SURE if this person had to go to MGH every time or was followed at his or her regular clinic. I would assume the person went to MGH every time, but dont quote me.
 
M

MCGrad2006

Guest
Ok I will try to answer some of your questions. I am in the Expanded Access Program at MGH in Boston. Not sure if that is listed. I know that during the regular trial someone from a different clinic did participate with MGH. I am NOT SURE if this person had to go to MGH every time or was followed at his or her regular clinic. I would assume the person went to MGH every time, but dont quote me.
 
M

MCGrad2006

Guest
Ok I will try to answer some of your questions. I am in the Expanded Access Program at MGH in Boston. Not sure if that is listed. I know that during the regular trial someone from a different clinic did participate with MGH. I am NOT SURE if this person had to go to MGH every time or was followed at his or her regular clinic. I would assume the person went to MGH every time, but dont quote me.
 
M

MCGrad2006

Guest
Ok I will try to answer some of your questions. I am in the Expanded Access Program at MGH in Boston. Not sure if that is listed. I know that during the regular trial someone from a different clinic did participate with MGH. I am NOT SURE if this person had to go to MGH every time or was followed at his or her regular clinic. I would assume the person went to MGH every time, but dont quote me.
 
M

MCGrad2006

Guest
Ok I will try to answer some of your questions. I am in the Expanded Access Program at MGH in Boston. Not sure if that is listed. I know that during the regular trial someone from a different clinic did participate with MGH. I am NOT SURE if this person had to go to MGH every time or was followed at his or her regular clinic. I would assume the person went to MGH every time, but dont quote me.
 
M

MCGrad2006

Guest
BTW...feel free to PM if you have other questions. I would be happy to answer, I just had to run after that previous msg.
 
M

MCGrad2006

Guest
BTW...feel free to PM if you have other questions. I would be happy to answer, I just had to run after that previous msg.
 
M

MCGrad2006

Guest
BTW...feel free to PM if you have other questions. I would be happy to answer, I just had to run after that previous msg.
 
M

MCGrad2006

Guest
BTW...feel free to PM if you have other questions. I would be happy to answer, I just had to run after that previous msg.
 
M

MCGrad2006

Guest
BTW...feel free to PM if you have other questions. I would be happy to answer, I just had to run after that previous msg.
 
Top