What's new
By:
Filters
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

ATTENTION THOSE OF YOU WITH HEART ISSUES!

L

Lilith

New member
Alright, just got back from the doc. As some of you may know, I've been having a slight tacycardia going on. I've seen a few others on this forum having the same issue. Well, I had both an EKG and a heart echo done.

Bottom line; nothing's wrong!

My cardiologist looked at the readings and said that everything looked and sounded just fine. I have a perfectly healthy heart! No infections, no regurgitation, no nothing.

The reason for the fast heartbeat, he said, is probably basic CF complications. Albuterol, exercise, even 'normal' hard coughing (especially caused by the hypertonic saline). The heart simply compensates for the lack of oxygen. Basically, I just run in the high-normal range because of these complications.

Even though it was an obvious answer, I'm glad I had it done just to make sure. So for those of you who've experienced a pounding heart lately, its probably nothing more than CF-related issues. But otherwise, the heart is healthy. If you want to go ahead and have your heart checked, I say do it. But more than likely, everything's fine. Don't have a panic attack like I did.

Hope this helps!
 
S

Seana30

New member
Lisa,

I am glad to hear everything went well for you!!

I am one of the ones having heart issues right now. Pounding heart, palpatations, etc. I do not have CF though. I go in for a echo stress test on May 31. I hope I get a clean bill of health like you did.

It is quite scary to have this happen!

Seana
 
L

Lilith

New member
Seana,

I hope your heart is okay, then! My father had a stress test done a while ago. His issues were due to high blood pressure. Hopefully, yours is as simple as that, if it has to be anything. It does come as a rather nasty surprise, doesn't it?

Let us know what your doc says!
 
A

anonymous

New member
I am a bit surprised that those of you who have tachycardia because of "lack of oxygen" are not considered candidates for supplemental O2.
What are your O2 sat levels when at rest and during the 6 minute walk?
Can your body keep O2 sats above 91 without your heart beating like a bandit?
Do the docs ever discuss the possibility of developing enlarged heart from it working too hard?

Tachycardia and low O2 sats were the reason that my husband was put on O2 (very early) so that his heart wouldn't be hurt.

-LisaV
 
J

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i>

I am a bit surprised that those of you who have tachycardia because of "lack of oxygen" are not considered candidates for supplemental O2.

What are your O2 sat levels when at rest and during the 6 minute walk?

Can your body keep O2 sats above 91 without your heart beating like a bandit?

Do the docs ever discuss the possibility of developing enlarged heart from it working too hard?



Tachycardia and low O2 sats were the reason that my husband was put on O2 (very early) so that his heart wouldn't be hurt.



-LisaV</end quote></div>



This was my first thought on another thread about the same topic. It would be my concern giving the fact that were are dealing with lungs in CF. We dont always "feel" the needs to check our sats or use O2 until we actually do & then the light bulb goes on....or at least for me that has been the case!
 
L

Lilith

New member
LisaV,

My O2 sats are usually around 96-97 at rest. After a long walk, they usually hang right around 95.
My heartbeat yesterday (at rest) was 105. After exercise, it shoots up to the 120's-130's.
I haven't been to see my pulmonologist (sp?) yet since the test, but my cardiologist never said a word about the possibility of an enlarged heart or the use of supplemental O2. Maybe my CF specialist will say something (god, I hope not!), but so far, nothing's been mentioned. I don't think he will, though. My sats are still pretty good, and my heartbeat isn't that high at rest.

That is food for thought, though...
 
J

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Lilith</b></i>

LisaV,



My O2 sats are usually around 96-97 at rest. After a long walk, they usually hang right around 95.

My heartbeat yesterday (at rest) was 105. After exercise, it shoots up to the 120's-130's.

I haven't been to see my pulmonologist (sp?) yet since the test, but my cardiologist never said a word about the possibility of an enlarged heart or the use of supplemental O2. Maybe my CF specialist will say something (god, I hope not!), but so far, nothing's been mentioned. I don't think he will, though. My sats are still pretty good, and my heartbeat isn't that high at rest.



That is food for thought, though...</end quote></div>




Your sats are that high at rest, but do you know what they DURING exercise or activity......not after as you indicated with a long walk? That might be where the O2 can come in. Doesnt hurt to ask!
 
L

Lilith

New member
Melissa,

During activity, I have no idea what my sats run. I've never had a stress test or anything of the sort, so I have no clue what that number might be.

When I see my doc, I'll be sure to bring these things up. Thanks for the tip!
 
A

anonymous

New member
My 02 SATS were 92-94 in the hospital a couple months ago. They didn't change when I was on the exercise bike, even after 20 minutes. Sometimes they went up. My heart rate resting was around 100-110 and during exercise was 140-160. (No oxygen.)

John
 
You must log in or register to reply here.
Top