What's new
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

B. Cepacia

sue35

New member
I have been reading up on it and was wondering just how you get B. Cepacia. I know you can get it from other people, soil, and water but anything else? Most importantly, does this mean I should not have tap water or ever rinse out my nebulizers with water?<img src="i/expressions/face-icon-small-confused.gif" border="0">
 

JustDucky

New member
I have been culturing B. cepacia for the last year or so now...I think I got my cootie from the hospital personally because I didn't have much contact with other people until I got sick enough to be put into the slammer. Needless to say, I was surprised. I don't think it is in tap water...but hey, I have been wrong before. As you know, this bug is really hearty...I read articles about B. cepacia being cultured out from mouthwashes (used in hospitals), in neb cups where resp. therapists use the multivial dose of albuterol. I even read an article about B. cepacia surviving in some disinfecting solutions that were used in hospitals. I don't mean to scare you, I am sorry I did if you are. But when I did some research, I realized just how vigilant we must be with any bug, not just B. cepacia. Not to be a germaphobe, which I am not, but I am most certainly more aware how procedures are being done on me and extremely aware of health personell washing their hands and demand it if I don't see them do it. Hope I have helped...hugs, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sue35</b></i>

I have been reading up on it and was wondering just how you get B. Cepacia. I know you can get it from other people, soil, and water but anything else? Most importantly, does this mean I should not have tap water or ever rinse out my nebulizers with water?<img src="i/expressions/face-icon-small-confused.gif" border="0"></end quote></div>

pleaes please please don't rinse your nebs with tap water!!!! PA grows there and as well as Strep and other bugs.

sterile water only please.
 

thelizardqueen

New member
I think rinsing your nebs with tap water is fine, so long as you're boiling them afterwards. I'm just glad that so far (fingers crossed) there have been no cases of Cepacia at my clinic. Doesn't mean that there never will be any cases, but so far so good.
 

JustDucky

New member
I should have said that you should boil your nebs after rinsing...sometimes I hit that send button before my thoughts are complete LOL. Thanks Liz for that one...my doc said it was fine to rinse in regular water as long as the neb cups were boiled, just like you said. Hugs, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Cepaciagal</b></i>

I should have said that you should boil your nebs after rinsing...sometimes I hit that send button before my thoughts are complete LOL. Thanks Liz for that one...my doc said it was fine to rinse in regular water as long as the neb cups were boiled, just like you said. Hugs, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0"></end quote></div>

ah yes, the one little phrase, boilding, can change the whole picture.

definitely fine to use tap as long as you boil afterwards <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

anonymous

New member
Gosh, thanks for letting me know about the tap water thing! Here's me with a low immune system and not knowing that...whoops! Not to worry, I shall rectify my ways, phew! Lol!

Shamrock, x
 

anonymous

New member
So I am supposed to boil them after everytime I use them? That means boiling them two times a day?

Sue (not logged in)
 

NoExcuses

New member
i do.....

it may sound excessive, but think about it.

most of us probably have 10-12 hours between treatments (if you do BID). maybe 3-4 hours if you do TID or QID.

In just a few hours, PA, Staph, Strep, MRSA, Cepacia can multiple exponentially on your mouth piece and inside the holding chamber of your neb. Then you BREATH ALL OF THAT IN when you use the neb again. Not what we need - additional bacteria introduced to the lungs.

So boil. It's an investment of time in your health. It destroys all bacteria (as long as you wash your hands thoroughly while touching post-boiling nebs) so your lungs can avoid re-introduction of bacteria.

Or you can invest in an auto-clave.

Either way, it has to be done to maintain healthy lungs.
 
S

Shoshanna

Guest
I heard that anything put in the microwave for 2 minutes kills all
the bacteria. Every few days we do this with our sponge...<br>
Anyway, that is how I keep my mouth piece clean. I wash with soap
and tap water and then I put it in the microwave for 2 minutes. It'
pretty hot when it comes out so I assume the germs are gone.<br>
Does anyone else do this? Think it's OK? Certainly easier than
boiling it in water daily.
 

thelizardqueen

New member
I got this link from the CCF website about how to/not to clean your nebs, and to stop the spread of infection (this is in PFD form):

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/UploadedFiles/living_with_cf/Files/Respiratory%20--%20Stopping%20the%20Spread%20of%20Germs.pdf
">http://www.cff.org/UploadedFil...read%20of%20Germs.pdf
</a>
Here are ways to clean your neb cups:

Clean with hot soapy water using a paper towel, then rinse with water. Then follow with one of the following ways to clean your neb cups:

1. Boil for 5 minutes;

2. Microwave in water for 5 minutes;

3. Dishwasher if the water is hotter then 158 F for 30 minutes;

4. Soaking in a solution of 1 part household bleach, and 50 parts water for 3 minutes;

5. Soaking in 70% Isopropyl alcohol for 5 minutes or;

6. Soaking in 3% Hydrogen Peroxide for 30 minutes

If you decide to disinfect with the peroxide or alcohol, make sure that you rinse your nebs afterwards with STERILE water. DO NOT USE WATER FROM THE TAP, DISTILLED WATER, OR BOTTLED WATER. To make sterile water, simply let water boil for 5 minutes before putting your neb cups in.

DO NOT USE VINEGAR. Vinegar is not strong enough to kill bacteria.

The resusable nebs such as PARI LC Plus can be reused for up to 6 months and then need to be replaced. They can be handwashed, or washed in a dishwasher. Cleaning should take place after everyuse to prevent buildup. Plus, not cleaning your nebs after every use causes build up which hampers the effectiveness of your treatments, or increase the risk of infection. Disposable neb cups like Acorn II need to be replaced after every use.

Tubing does not need to be washed, as air is continually pushed through during treatment, so after every treatment, simply let the compressor run for a few minutes to get any trapped moisture out.

I don't wash my nebs daily, as I have 3 neb cups that I alternate. When I'm down to my last one, that's when I wash all the other ones.
 

anonymous

New member
I am sorry i am so confused.

I have the reuseable LC plus. So each time i use them i should clean them then pop them in the microwave for 5 minutes? Is that what I am supposed to do?

Sue
 

thelizardqueen

New member
The LC Plus nebs can be handwashed with sterile hot water, or you can put them in the dishwasher. There should also be instructions on how to wash them with the original packaging you would have gotten I think. But they should be washed after every use.
 

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i>

I am sorry i am so confused.



I have the reuseable LC plus. So each time i use them i should clean them then pop them in the microwave for 5 minutes? Is that what I am supposed to do?



Sue</end quote></div>

yes. you need to disinfect (put them in the microwave) after each use. or else you'll be re-introducing bacteria that's growing in your nebulizer.
 

anonymous

New member
Just wondering if the same goes for those masks and holding chambers for inhalers. I wash my sons and disinfect once a day, but should I be doing it twice a day if he uses the inhaler twice a day?

Amber
 

sue35

New member
Ok I know everyone is getting sick of my questions on this, but does this mean I shouldn't drink tap water also? I just want to do anything possible to not get it right now or in the future. Thanks!
 

Bumblebee

New member
errm i wouldn't be putting my nebs in the dishwasher.  You
clean dirty plates with that!  Probably small particles of
food floating about even if they are "clean".
 

Jane

Digital opinion leader
I agree about not using the dishwasher. It gets hot enough to sterilize but there is always little particles floating in water left behind- gross.

I never thought to clean out the chamber too. Are those parts ok to boil?

Sue, I asked this question a while back too. It seems that the bacteria in tap water will be a problem if you breathe them in (like in a neb, a steamy shower or hot tub). Drinking tap water is ok.
 
Top