I remember Luke's first hospitalization for IV's after his diagnois. We had gone for our regular clinic appointment and they told me he had to be admitted and I cried. I remember thinking the same thing--this is real now, our son is actually sick. But, as others have already said, I think the first year and the first couple of hospital stays are the worse.
I am not sure your hospitals policy on pic lines, but I would ask for it right away. I did not know about pic lines at Luke's first admission and after they had completely run out of veins to attempt an IV in, they offered a PIC. It should have been done earlier than that and now I know when we go in to ask them to schedule him for one ASAP.
Luke has horrible reflux and seemed to be aspirating and he eventually ended up having the nissen fundiplication procedure done for his reflux. If they recommend that--it is not a bad surgery and a pretty easy recovery. If her reflux is bad enough, it is worth considering. Luke was 8 months old when he had it done.
That is awesome about her weight gain, though. It seems that is a never ending battle for us. Luke will get to a certain weight and we get so excited and then he stays at that weight for almost 2 months and doesn't gain an ounce! It is so frustrating.
I can sympathize with your husband, because on the day Luke was diagnosed I told my husband he had to call that day to schedule a vasectomy. But the first year is not the time to really make any major decisions about that, I think. It is just so overwhelming and emotionally and physically draining at first. Almost two years after Luke's diagnosis, I can tell you that we still don't think we will try again for another biological child, but that is mainly because we already had 5 adopted children when Luke was born (we were the classic could not get pregnant, started adopting, got pregnant story!). Anyway, I just wanted to tell you that did we not already have a house full I would certainly try again and I would have never thought that I would ever have gotten to that point during the first year of Luke's life. And even if you and your husband decide not to go that route, there are other ways to add children to your family if you want to. We have had awesome adoption experiences, so that can always be an option for you, too.
I pray things go well for you during the hospital stay!
Angela, Mom to 7 terrific kids, including Luke, 2 years old, w/cf