Beyond the Medical Descriptions

[lightNlife]

<span style=" color: rgb(0, 0, 0);">I found this story online and
was very impressed by how well it metaphorically describes life
with chronic illness. Those of us who live each day with CF
sometimes have a hard time explaining to others what exactly it
takes to maintain a sense of normalcy. If you find yourself at a
loss for words when asked what it's like to live with CF, perhaps
calling this story to mind will help you. <br>
<a href=
"http://livingwellwithcf.blogspot.com/2006/09/understanding-whats-chronic-about.html">
<br>
The Spoon Theory</a> (link to the story on my blog)<br>
<a href="http://butyoudontlooksick.com">But You Don't Look Sick</a>
(a site about living life to the fullest with disabilities and
invisible chronic disease)<a href=
"http://livingwellwithcf.blogspot.com/2006/09/understanding-whats-chronic-about.html">
<br>
</a><br>

 

[NoExcuses]

.

 

[EnergyGal]

Thank you for sharing. Great Theory

 

[coltsfan715]

Thank you so much for posting this.
I have emailed a link to your site to my parents, Kurt and my best friends. I actually started to tear up as I was reading that because it is truly how I feel most days. Thank you again.

Lindsey

 

[lightNlife]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>coltsfan715</b></i> I actually
started to tear up as I was reading that because it is truly how I
feel most days. Thank you again. Lindsey</end quote></div><br>
<br>
Lindsey, I was in awe the first time I read it. It was such a great
description of the ways that chronic illness imposes itself on
every last aspect of our lives. I know we cannot ever make someone
fully understand what we go through, but I'm glad there are things
like "the spoon theory" that help somewhat.

 

[kayleesgrandma]

What a great story, but I feel that I "know" kind of what it's like just from reading about everything you all go through here on the site. Reading how you take your nebs, your IV treatments, your hospital stays, your vest likes and dislikes, trying to gain weight, keep your pft's up, losing family members to cf, losing possible mates because of fears of cf...Not a day goes by that I don't think of the bravery and strength that it takes you all to just get out of bed each morning. I have to stop myself in thinkig about it, because I have come to care about you all, and it literally makes my heart physically hurt. My you all have enough spoons in your day.