Hi there,
Most people here know me as a mom with a CF son. However, I also lost my mother to CF two days before Andrew was born. Well, I should clarify that she was undiagnosed, but when my son was diagnosed all of the puzzle pieces fell into place and her doctor finally had his answer. (He had been trying to diagnose her for years before genotying was common, and also treated her as a CF patient most of her life.) My mom was ill all of my life. I knew frequent hospitalizations, hemoptysis in the middle of the night, picc lines and visiting nurses from the time I was very young. I have often thought of starting a blog about my experiences growing up,,in hopes that it may help other children. The illness of a parent requires kids to grow up must faster and mature very quickly. I have a special place in my heart for children and young adults dealing with this. At any time if you would like to talk to me, please don't hestitate to contact me. I would benefit just as much as hopefully you and your family would!