I decided to go back on iv's today. I had been running low grade fevers for a few weeks which isnt too uncommon for me with cepacia. Thank God they arent high. But i went to work today and realized quickly i was way too short of breath to do what i normally do so i made the decision right then and there to call my Dr. and go back on iv's.
In one way i am happy because i am not really "sick", just having shortness of breath and low stamina. My blood sugars have been a bit high so i imagine an infection is brewing and before it gets to the point i need o2 more than just to sleep at night i better do something about it.
The part that makes me unhappy is i just got off iv's Sept 3rd. I never really had this kind of shortness of breath in the past till my first hospitalization in April where i required O2 for the first time 24/7 till i got better. I was sicker than sick that time and was scared out of my mind. I did however get my pft's back to the low 40's so i thought i was out of the woods for a while but 2 months later, i got sick again and needed o2 24/7 again. That really had me full of anxiety for a while till i got off the O2 ( except for sleeping and exercising).
This time around though my numbers have not reflected how good i had been feeling. I only got them back to 39% at the hghest and last wed. 37%. I was very surprised because i didnt feel crappy but a few days later i started with the shortnes of breath on exertion. So todays terrible stamina at work made me decide its time to do something about it before it gets out of hand ....
I just dont want to let this get me down because i sure need to stay motivated to get those numbers back up in the mid 40's and beyond in order for me to feel comfortable in this body of mine again.<img src="i/expressions/face-icon-small-confused.gif" border="0">
In one way i am happy because i am not really "sick", just having shortness of breath and low stamina. My blood sugars have been a bit high so i imagine an infection is brewing and before it gets to the point i need o2 more than just to sleep at night i better do something about it.
The part that makes me unhappy is i just got off iv's Sept 3rd. I never really had this kind of shortness of breath in the past till my first hospitalization in April where i required O2 for the first time 24/7 till i got better. I was sicker than sick that time and was scared out of my mind. I did however get my pft's back to the low 40's so i thought i was out of the woods for a while but 2 months later, i got sick again and needed o2 24/7 again. That really had me full of anxiety for a while till i got off the O2 ( except for sleeping and exercising).
This time around though my numbers have not reflected how good i had been feeling. I only got them back to 39% at the hghest and last wed. 37%. I was very surprised because i didnt feel crappy but a few days later i started with the shortnes of breath on exertion. So todays terrible stamina at work made me decide its time to do something about it before it gets out of hand ....
I just dont want to let this get me down because i sure need to stay motivated to get those numbers back up in the mid 40's and beyond in order for me to feel comfortable in this body of mine again.<img src="i/expressions/face-icon-small-confused.gif" border="0">