Burkholderia cepacia

[Claudia]

Hi,

I'm new here. I'm Claudia van Broekhoven and I am from Holland. But I have a question about the Burkholderia cepacia. In the Netherlands there are 3% of the people which have cf, infected with the Burkholderia cepacia. I also have the Burkholderia cepacia. Does anybody now how many people with cf are infected with this bacterie in your country? It's just a question, I'm curious.

Thanks,

Claudia

 

[Claudia]

Hi,

I'm new here. I'm Claudia van Broekhoven and I am from Holland. But I have a question about the Burkholderia cepacia. In the Netherlands there are 3% of the people which have cf, infected with the Burkholderia cepacia. I also have the Burkholderia cepacia. Does anybody now how many people with cf are infected with this bacterie in your country? It's just a question, I'm curious.

Thanks,

Claudia

 

[Claudia]

Hi,

I'm new here. I'm Claudia van Broekhoven and I am from Holland. But I have a question about the Burkholderia cepacia. In the Netherlands there are 3% of the people which have cf, infected with the Burkholderia cepacia. I also have the Burkholderia cepacia. Does anybody now how many people with cf are infected with this bacterie in your country? It's just a question, I'm curious.

Thanks,

Claudia

 

[lightNlife]

Hi Claudia,
Welcome to the group!

I'm 26 years old and I have B. Cepacia, so I'm glad to meet someone else with it! Here in the United States we also have 3% of the CF population with cepacia. This is according to the most recent information available by the Cystic Fibrosis Foundation.

-Lauren

 

[lightNlife]

Hi Claudia,
Welcome to the group!

I'm 26 years old and I have B. Cepacia, so I'm glad to meet someone else with it! Here in the United States we also have 3% of the CF population with cepacia. This is according to the most recent information available by the Cystic Fibrosis Foundation.

-Lauren

 

[lightNlife]

Hi Claudia,
Welcome to the group!

I'm 26 years old and I have B. Cepacia, so I'm glad to meet someone else with it! Here in the United States we also have 3% of the CF population with cepacia. This is according to the most recent information available by the Cystic Fibrosis Foundation.

-Lauren

 

[Scarlett81]

Hi Claudia!
I have B. Cep. I caught it about 12 years ago. It doesn't give me too much trouble. Of cours there are some meds I am resistant to, but I'm doing good.
Welcome again.

 

[Scarlett81]

Hi Claudia!
I have B. Cep. I caught it about 12 years ago. It doesn't give me too much trouble. Of cours there are some meds I am resistant to, but I'm doing good.
Welcome again.

 

[Scarlett81]

Hi Claudia!
I have B. Cep. I caught it about 12 years ago. It doesn't give me too much trouble. Of cours there are some meds I am resistant to, but I'm doing good.
Welcome again.

 

[Diane]

Hi Claudia,
Welcome to the site <img src="i/expressions/face-icon-small-smile.gif" border="0"> I have had b.cepacia about 10 years now. It sure can be a handfull at times. Its amazing how they say only 3% have it here in the U.S. Yet there seems to be sooooo many. I wish they would start doing some research on how to better help those of us with it .

 

[Diane]

Hi Claudia,
Welcome to the site <img src="i/expressions/face-icon-small-smile.gif" border="0"> I have had b.cepacia about 10 years now. It sure can be a handfull at times. Its amazing how they say only 3% have it here in the U.S. Yet there seems to be sooooo many. I wish they would start doing some research on how to better help those of us with it .

 

[Diane]

Hi Claudia,
Welcome to the site <img src="i/expressions/face-icon-small-smile.gif" border="0"> I have had b.cepacia about 10 years now. It sure can be a handfull at times. Its amazing how they say only 3% have it here in the U.S. Yet there seems to be sooooo many. I wish they would start doing some research on how to better help those of us with it .

 

[Allie]

My husband had B. Cepacia, too. It does seem like a lot more than 3%...

 

[Allie]

My husband had B. Cepacia, too. It does seem like a lot more than 3%...

 

[Allie]

My husband had B. Cepacia, too. It does seem like a lot more than 3%...

 

[JustDucky]

Hi! Yep, include myself in the B. cepacia club...not that I want it that's for sure! I have read varying percentages, still not too common a bug for us. In fact, when I first cultured B. cepacia, that is when my doc suspected CF with me. Some people have problems (I am on IV's 3-4 times a year), some don't..... Hugs to you, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[JustDucky]

Hi! Yep, include myself in the B. cepacia club...not that I want it that's for sure! I have read varying percentages, still not too common a bug for us. In fact, when I first cultured B. cepacia, that is when my doc suspected CF with me. Some people have problems (I am on IV's 3-4 times a year), some don't..... Hugs to you, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[JustDucky]

Hi! Yep, include myself in the B. cepacia club...not that I want it that's for sure! I have read varying percentages, still not too common a bug for us. In fact, when I first cultured B. cepacia, that is when my doc suspected CF with me. Some people have problems (I am on IV's 3-4 times a year), some don't..... Hugs to you, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Claudia]

Hi everybody,

Thanks for your reactions! I caught BC about 10 years ago. Here in Holland the people which are infected with BC may not met eachother in hospitals and special cf congresses. There is a special segregation policy and appointments in the hospitals.

 

[Claudia]

Hi everybody,

Thanks for your reactions! I caught BC about 10 years ago. Here in Holland the people which are infected with BC may not met eachother in hospitals and special cf congresses. There is a special segregation policy and appointments in the hospitals.