What's new
By:
Filters
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

C Average

N

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Rokiss12</b></i>
also, TOBI. right now i really truthfully only have time to do it once a day and i never really did it until now, now i do it almost every single day.



i leave for school at 7 and dont get back till 7 usually...sooo one TOBI is all i can do.
</end quote></div>

you're crazy girl. you are going to develop resistance to TOBI so quickly....
 
N

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Rokiss12</b></i>
also, TOBI. right now i really truthfully only have time to do it once a day and i never really did it until now, now i do it almost every single day.



i leave for school at 7 and dont get back till 7 usually...sooo one TOBI is all i can do.
</end quote></div>

you're crazy girl. you are going to develop resistance to TOBI so quickly....
 
E

EnergyGal

New member
This topic rings home with me. When I was in college, I did not get to study as much because I put my CF first including cpt and exercise. Back then there was no vest so doing treatments depended on a therapist. Good company if you liked your therapist. I always would joke with my friends and said that I got an A+ with my health and gave myself a B average in school. I remember telling a friend with CF it is better to graduate with honors in CF.

I jogged faithfully and did my treatments sometimes back to back if I was congested. I had rules for myself. They told me that I was very compliant with my CF when I went for my eval both times.

edited to add: When I would get depressed, I realized if I did not do my treatments it was like a slow suicide and when this thought came to mind, I quickly did the treatments.

When someone is depressed it would make sense that they would skip treatments or not take them seriously.

I wish you the best with your health and I hope you find a way to manage your depression Calisally
 
E

EnergyGal

New member
This topic rings home with me. When I was in college, I did not get to study as much because I put my CF first including cpt and exercise. Back then there was no vest so doing treatments depended on a therapist. Good company if you liked your therapist. I always would joke with my friends and said that I got an A+ with my health and gave myself a B average in school. I remember telling a friend with CF it is better to graduate with honors in CF.

I jogged faithfully and did my treatments sometimes back to back if I was congested. I had rules for myself. They told me that I was very compliant with my CF when I went for my eval both times.

edited to add: When I would get depressed, I realized if I did not do my treatments it was like a slow suicide and when this thought came to mind, I quickly did the treatments.

When someone is depressed it would make sense that they would skip treatments or not take them seriously.

I wish you the best with your health and I hope you find a way to manage your depression Calisally
 
E

EnergyGal

New member
This topic rings home with me. When I was in college, I did not get to study as much because I put my CF first including cpt and exercise. Back then there was no vest so doing treatments depended on a therapist. Good company if you liked your therapist. I always would joke with my friends and said that I got an A+ with my health and gave myself a B average in school. I remember telling a friend with CF it is better to graduate with honors in CF.

I jogged faithfully and did my treatments sometimes back to back if I was congested. I had rules for myself. They told me that I was very compliant with my CF when I went for my eval both times.

edited to add: When I would get depressed, I realized if I did not do my treatments it was like a slow suicide and when this thought came to mind, I quickly did the treatments.

When someone is depressed it would make sense that they would skip treatments or not take them seriously.

I wish you the best with your health and I hope you find a way to manage your depression Calisally
 
C

CaliSally

New member
Thank you all - I appreciate your imput and thoughts....

I had clinic yesterday - it went well. I'm holding (pfts and weight was the same).

I once was an F, now I'm a C...I'm working on a B - and I do know and see how it keeps me out of the hospital. My biggest hurdle is exercise. I get none. I bought a yoga video, and it's still sitting here. I guess I should also bite the bullet and buy a treadmill.
 
C

CaliSally

New member
Thank you all - I appreciate your imput and thoughts....

I had clinic yesterday - it went well. I'm holding (pfts and weight was the same).

I once was an F, now I'm a C...I'm working on a B - and I do know and see how it keeps me out of the hospital. My biggest hurdle is exercise. I get none. I bought a yoga video, and it's still sitting here. I guess I should also bite the bullet and buy a treadmill.
 
C

CaliSally

New member
Thank you all - I appreciate your imput and thoughts....

I had clinic yesterday - it went well. I'm holding (pfts and weight was the same).

I once was an F, now I'm a C...I'm working on a B - and I do know and see how it keeps me out of the hospital. My biggest hurdle is exercise. I get none. I bought a yoga video, and it's still sitting here. I guess I should also bite the bullet and buy a treadmill.
 
D

Diane

New member
I used to be an "F" because i never did any type of treatments except for taking my enzymes and maybe vitamins. My cf was very mild and i lived as though i didnt have it because it seemed like i didnt. Then i got cepacia and i became a "D". I took my oral antibiotics, inhaled my Pulmozyme and did my inhaled Tobramycin ( before they came out with Tobi). Then after my first embolization i became a "C". I started doing the vest and becoming more aware of what cf really can do to you. Now after 3 embolizations i would call myself a "B-" or a "C+". I do my vest daily at least once a day ( sometimes twice) i walk on the treadmill, and generally take better care of myself. The only thing i have never changed thru all of my life is my diet. If i changed my diet i would give myself an "A-" or a "B+"....But it most likely wont happen.
 
D

Diane

New member
I used to be an "F" because i never did any type of treatments except for taking my enzymes and maybe vitamins. My cf was very mild and i lived as though i didnt have it because it seemed like i didnt. Then i got cepacia and i became a "D". I took my oral antibiotics, inhaled my Pulmozyme and did my inhaled Tobramycin ( before they came out with Tobi). Then after my first embolization i became a "C". I started doing the vest and becoming more aware of what cf really can do to you. Now after 3 embolizations i would call myself a "B-" or a "C+". I do my vest daily at least once a day ( sometimes twice) i walk on the treadmill, and generally take better care of myself. The only thing i have never changed thru all of my life is my diet. If i changed my diet i would give myself an "A-" or a "B+"....But it most likely wont happen.
 
D

Diane

New member
I used to be an "F" because i never did any type of treatments except for taking my enzymes and maybe vitamins. My cf was very mild and i lived as though i didnt have it because it seemed like i didnt. Then i got cepacia and i became a "D". I took my oral antibiotics, inhaled my Pulmozyme and did my inhaled Tobramycin ( before they came out with Tobi). Then after my first embolization i became a "C". I started doing the vest and becoming more aware of what cf really can do to you. Now after 3 embolizations i would call myself a "B-" or a "C+". I do my vest daily at least once a day ( sometimes twice) i walk on the treadmill, and generally take better care of myself. The only thing i have never changed thru all of my life is my diet. If i changed my diet i would give myself an "A-" or a "B+"....But it most likely wont happen.
 
D

dbtoo

New member
IMHO - It's all graded on a weighted average. As long as you are still living, you get at least a C. <img src="">

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CaliSally</b></i>

Anyone else not self disciplined, like myself?

How much does depression play a key role in this?

Give me your thoughts



P.S. NO criticism from those who are A+ students or the like...<img src="i/expressions/face-icon-small-wink.gif" border="0"></end quote></div>

I'm not disciplined well either. I guess I wasn't smacked hard enough with the newspaper. After 30 years, I still forget to take enzymes. If I had a hectic day, I skip an aerosole treatment at night. If I wake up late, skip it in the morning. Never done PT.

Really, I see it as what does your life alow you to 'get away with'? Some can't afford to skip a treatment, others can go days. I've even gone months without doing anything, but then, I suffered for that. At first I was fine, but things degraded after a while. So grading, I guess, depends on the ciricullum. Some have it easy, some hard.
 
D

dbtoo

New member
IMHO - It's all graded on a weighted average. As long as you are still living, you get at least a C. <img src="">

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CaliSally</b></i>

Anyone else not self disciplined, like myself?

How much does depression play a key role in this?

Give me your thoughts



P.S. NO criticism from those who are A+ students or the like...<img src="i/expressions/face-icon-small-wink.gif" border="0"></end quote></div>

I'm not disciplined well either. I guess I wasn't smacked hard enough with the newspaper. After 30 years, I still forget to take enzymes. If I had a hectic day, I skip an aerosole treatment at night. If I wake up late, skip it in the morning. Never done PT.

Really, I see it as what does your life alow you to 'get away with'? Some can't afford to skip a treatment, others can go days. I've even gone months without doing anything, but then, I suffered for that. At first I was fine, but things degraded after a while. So grading, I guess, depends on the ciricullum. Some have it easy, some hard.
 
D

dbtoo

New member
IMHO - It's all graded on a weighted average. As long as you are still living, you get at least a C. <img src="">

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CaliSally</b></i>

Anyone else not self disciplined, like myself?

How much does depression play a key role in this?

Give me your thoughts



P.S. NO criticism from those who are A+ students or the like...<img src="i/expressions/face-icon-small-wink.gif" border="0"></end quote></div>

I'm not disciplined well either. I guess I wasn't smacked hard enough with the newspaper. After 30 years, I still forget to take enzymes. If I had a hectic day, I skip an aerosole treatment at night. If I wake up late, skip it in the morning. Never done PT.

Really, I see it as what does your life alow you to 'get away with'? Some can't afford to skip a treatment, others can go days. I've even gone months without doing anything, but then, I suffered for that. At first I was fine, but things degraded after a while. So grading, I guess, depends on the ciricullum. Some have it easy, some hard.
 
You must log in or register to reply here.
Top