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Camping

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robert321

New member
As far as backpacking i go some but not a whole lot, when you backpack you want your pack as light as you can get it and a portable neb gets really heavy fast so i avoid backpacking, shouldn't but it is a hassle. I have gone on a couple of 25mile hikes that i drug the portable neb with me
 
R

robert321

New member
As far as backpacking i go some but not a whole lot, when you backpack you want your pack as light as you can get it and a portable neb gets really heavy fast so i avoid backpacking, shouldn't but it is a hassle. I have gone on a couple of 25mile hikes that i drug the portable neb with me
 
R

robert321

New member
As far as backpacking i go some but not a whole lot, when you backpack you want your pack as light as you can get it and a portable neb gets really heavy fast so i avoid backpacking, shouldn't but it is a hassle. I have gone on a couple of 25mile hikes that i drug the portable neb with me
 
R

robert321

New member
As far as backpacking i go some but not a whole lot, when you backpack you want your pack as light as you can get it and a portable neb gets really heavy fast so i avoid backpacking, shouldn't but it is a hassle. I have gone on a couple of 25mile hikes that i drug the portable neb with me
 
R

robert321

New member
As far as backpacking i go some but not a whole lot, when you backpack you want your pack as light as you can get it and a portable neb gets really heavy fast so i avoid backpacking, shouldn't but it is a hassle. I have gone on a couple of 25mile hikes that i drug the portable neb with me
 
R

robert321

New member
As far as backpacking i go some but not a whole lot, when you backpack you want your pack as light as you can get it and a portable neb gets really heavy fast so i avoid backpacking, shouldn't but it is a hassle. I have gone on a couple of 25mile hikes that i drug the portable neb with me
 
W

Wheezie

New member
Thank you all so much for these replies!! I was going to go anyway, but now I can actually feel good about it instead of thinking I'd have to compromise my compliance (and then feel guilty about it). GREAT suggestions - thanks again. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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Wheezie

New member
Thank you all so much for these replies!! I was going to go anyway, but now I can actually feel good about it instead of thinking I'd have to compromise my compliance (and then feel guilty about it). GREAT suggestions - thanks again. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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Wheezie

New member
Thank you all so much for these replies!! I was going to go anyway, but now I can actually feel good about it instead of thinking I'd have to compromise my compliance (and then feel guilty about it). GREAT suggestions - thanks again. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
W

Wheezie

New member
Thank you all so much for these replies!! I was going to go anyway, but now I can actually feel good about it instead of thinking I'd have to compromise my compliance (and then feel guilty about it). GREAT suggestions - thanks again. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
W

Wheezie

New member
Thank you all so much for these replies!! I was going to go anyway, but now I can actually feel good about it instead of thinking I'd have to compromise my compliance (and then feel guilty about it). GREAT suggestions - thanks again. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
W

Wheezie

New member
Thank you all so much for these replies!! I was going to go anyway, but now I can actually feel good about it instead of thinking I'd have to compromise my compliance (and then feel guilty about it). GREAT suggestions - thanks again. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
M

madisonsmom

New member
Great suggestions......... mydaughter was just camping at a state park, they used the car battery for nebs and she went to the closest ranger stationto do her vest.. she had a great time. Of course we had lots of preparation for all the meds, insulin....list goes on. kw
 
M

madisonsmom

New member
Great suggestions......... mydaughter was just camping at a state park, they used the car battery for nebs and she went to the closest ranger stationto do her vest.. she had a great time. Of course we had lots of preparation for all the meds, insulin....list goes on. kw
 
M

madisonsmom

New member
Great suggestions......... mydaughter was just camping at a state park, they used the car battery for nebs and she went to the closest ranger stationto do her vest.. she had a great time. Of course we had lots of preparation for all the meds, insulin....list goes on. kw
 
M

madisonsmom

New member
Great suggestions......... mydaughter was just camping at a state park, they used the car battery for nebs and she went to the closest ranger stationto do her vest.. she had a great time. Of course we had lots of preparation for all the meds, insulin....list goes on. kw
 
M

madisonsmom

New member
Great suggestions......... mydaughter was just camping at a state park, they used the car battery for nebs and she went to the closest ranger stationto do her vest.. she had a great time. Of course we had lots of preparation for all the meds, insulin....list goes on. kw
 
M

madisonsmom

New member
Great suggestions......... mydaughter was just camping at a state park, they used the car battery for nebs and she went to the closest ranger stationto do her vest.. she had a great time. Of course we had lots of preparation for all the meds, insulin....list goes on. kw
 
L

L

New member
<img src="i/expressions/face-icon-small-happy.gif" border="0">Camping? You bet! We never let CF stand in the way. We take the battery compressor ( also plugged into the cigarette lighter in the car ) and do CPT or flutter/ acapella instead of vest ( before we bought the generator ).
We have camped in Yellowstone and all over the Pacific Northwest starting when Andrew was 6 months old.

Call us crazy, but a few years ago, Andrew was discharged from the hospital the day before the opener for Deer season ( prior agreement with the CF doc ).
You guessed it, we had everything together, packed up the IV supplies and , with the CF doc's blessing, took Andrew up deer hunting for the weekend. He never missed a treatment. The only concession he made was, he came back to the camper where I could wash up to hook up his antiobiotics, then took off back out hunting with the antibiotics infusing.
<img src="i/expressions/face-icon-small-happy.gif" border="0"> Yep, he got a deer that year!
It does take some preparation and planning ahead, but it is worth it!
 
L

L

New member
<img src="i/expressions/face-icon-small-happy.gif" border="0">Camping? You bet! We never let CF stand in the way. We take the battery compressor ( also plugged into the cigarette lighter in the car ) and do CPT or flutter/ acapella instead of vest ( before we bought the generator ).
We have camped in Yellowstone and all over the Pacific Northwest starting when Andrew was 6 months old.

Call us crazy, but a few years ago, Andrew was discharged from the hospital the day before the opener for Deer season ( prior agreement with the CF doc ).
You guessed it, we had everything together, packed up the IV supplies and , with the CF doc's blessing, took Andrew up deer hunting for the weekend. He never missed a treatment. The only concession he made was, he came back to the camper where I could wash up to hook up his antiobiotics, then took off back out hunting with the antibiotics infusing.
<img src="i/expressions/face-icon-small-happy.gif" border="0"> Yep, he got a deer that year!
It does take some preparation and planning ahead, but it is worth it!
 
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