What's new
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Care Center Data Released

princessjdc

New member
I was able to find my clinic, I didnt know that wichita kansas had one, so if I wanted I could transfer to over there, bc the radius is 100 on both ways. But I think Ill stay where Iam at, Tulsa is like my second home.
 

Ratatosk

Administrator
Staff member
Noticed the local non-accreditted clinic we used to go to is now an "affiliate". Although there wasn't any data available regarding patients. Past appointments they kept stressing how they were going to be a satellite of one of the top clinics in the nation. I thought they were blowing smoke, but looks like they're making an effort.
 

Ratatosk

Administrator
Staff member
Noticed the local non-accreditted clinic we used to go to is now an "affiliate". Although there wasn't any data available regarding patients. Past appointments they kept stressing how they were going to be a satellite of one of the top clinics in the nation. I thought they were blowing smoke, but looks like they're making an effort.
 

Ratatosk

Administrator
Staff member
Noticed the local non-accreditted clinic we used to go to is now an "affiliate". Although there wasn't any data available regarding patients. Past appointments they kept stressing how they were going to be a satellite of one of the top clinics in the nation. I thought they were blowing smoke, but looks like they're making an effort.
 

jfarel

New member
Most of the clinics in my area VA, MD, DC look about the same. FEV1 for adults in Portsmouth VA is very high at over 70 percent. I wonder if they just have 1 patient. Also, there adult BMI is very high.
 

jfarel

New member
Most of the clinics in my area VA, MD, DC look about the same. FEV1 for adults in Portsmouth VA is very high at over 70 percent. I wonder if they just have 1 patient. Also, there adult BMI is very high.
 

jfarel

New member
Most of the clinics in my area VA, MD, DC look about the same. FEV1 for adults in Portsmouth VA is very high at over 70 percent. I wonder if they just have 1 patient. Also, there adult BMI is very high.
 
2

2perfectboys

Guest
Louisville tops Minnesota!!! 98.1 mean for FEV1 for under 18. Minnesoata's guideline for care are actually sad. I can't believe that a clinic that is suppose to be so proactive is only reaching their required visits of peds and adults at 65% and 58%, sounds like a lot of non-compliance especially compared to Cinti clinic that had a peds rae of almost 75%. Too me, theses new #s are not really that useful and don't tell the whole story.
 
2

2perfectboys

Guest
Louisville tops Minnesota!!! 98.1 mean for FEV1 for under 18. Minnesoata's guideline for care are actually sad. I can't believe that a clinic that is suppose to be so proactive is only reaching their required visits of peds and adults at 65% and 58%, sounds like a lot of non-compliance especially compared to Cinti clinic that had a peds rae of almost 75%. Too me, theses new #s are not really that useful and don't tell the whole story.
 
2

2perfectboys

Guest
Louisville tops Minnesota!!! 98.1 mean for FEV1 for under 18. Minnesoata's guideline for care are actually sad. I can't believe that a clinic that is suppose to be so proactive is only reaching their required visits of peds and adults at 65% and 58%, sounds like a lot of non-compliance especially compared to Cinti clinic that had a peds rae of almost 75%. Too me, theses new #s are not really that useful and don't tell the whole story.
 

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>2perfectboys</b></i>

Louisville tops Minnesota!!! 98.1 mean for FEV1 for under 18. Minnesoata's guideline for care are actually sad. I can't believe that a clinic that is suppose to be so proactive is only reaching their required visits of peds and adults at 65% and 58%, sounds like a lot of non-compliance especially compared to Cinti clinic that had a peds rae of almost 75%. Too me, theses new #s are not really that useful and don't tell the whole story.</end quote></div>

I agree with the non-complaince.

I spoke to my doc yesterday about our Center's rate of non-compliance.

He has been "requiring" each of our 150 patients to come to the clinic quarterly for the past 2 years. And he explains why it's a good idea to each and every one of them.

But he admitted that he can't force patients to come in. He can't show up at their house and drag them by the earlobe to the clinic. It's ultimately up to the patient to show up to clinic.

He admits he is always trying to find ways to help patients understand why quarterly visits are so important and it pains him when patients don't comply. But ultimately he has little control over it.
 

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>2perfectboys</b></i>

Louisville tops Minnesota!!! 98.1 mean for FEV1 for under 18. Minnesoata's guideline for care are actually sad. I can't believe that a clinic that is suppose to be so proactive is only reaching their required visits of peds and adults at 65% and 58%, sounds like a lot of non-compliance especially compared to Cinti clinic that had a peds rae of almost 75%. Too me, theses new #s are not really that useful and don't tell the whole story.</end quote></div>

I agree with the non-complaince.

I spoke to my doc yesterday about our Center's rate of non-compliance.

He has been "requiring" each of our 150 patients to come to the clinic quarterly for the past 2 years. And he explains why it's a good idea to each and every one of them.

But he admitted that he can't force patients to come in. He can't show up at their house and drag them by the earlobe to the clinic. It's ultimately up to the patient to show up to clinic.

He admits he is always trying to find ways to help patients understand why quarterly visits are so important and it pains him when patients don't comply. But ultimately he has little control over it.
 

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>2perfectboys</b></i>

Louisville tops Minnesota!!! 98.1 mean for FEV1 for under 18. Minnesoata's guideline for care are actually sad. I can't believe that a clinic that is suppose to be so proactive is only reaching their required visits of peds and adults at 65% and 58%, sounds like a lot of non-compliance especially compared to Cinti clinic that had a peds rae of almost 75%. Too me, theses new #s are not really that useful and don't tell the whole story.</end quote></div>

I agree with the non-complaince.

I spoke to my doc yesterday about our Center's rate of non-compliance.

He has been "requiring" each of our 150 patients to come to the clinic quarterly for the past 2 years. And he explains why it's a good idea to each and every one of them.

But he admitted that he can't force patients to come in. He can't show up at their house and drag them by the earlobe to the clinic. It's ultimately up to the patient to show up to clinic.

He admits he is always trying to find ways to help patients understand why quarterly visits are so important and it pains him when patients don't comply. But ultimately he has little control over it.
 
2

2perfectboys

Guest
Almost all of the Florida numbers are well below others, wonder why that is?
 
2

2perfectboys

Guest
Almost all of the Florida numbers are well below others, wonder why that is?
 
2

2perfectboys

Guest
Almost all of the Florida numbers are well below others, wonder why that is?
 

Rokiss12

New member
thing that bothered me was the diabetes testing MGH. its horrible, and when i was diagnosed, i'd never been tested before. it makes me think that maybe if i was at another hospital they would have caught it sooner? hmm...
 

Rokiss12

New member
thing that bothered me was the diabetes testing MGH. its horrible, and when i was diagnosed, i'd never been tested before. it makes me think that maybe if i was at another hospital they would have caught it sooner? hmm...
 

Rokiss12

New member
thing that bothered me was the diabetes testing MGH. its horrible, and when i was diagnosed, i'd never been tested before. it makes me think that maybe if i was at another hospital they would have caught it sooner? hmm...
 

Ratatosk

Administrator
Staff member
I also wonder if U of MN's numbers regarding going to appointments quarterly goes down because of recent articles about quality of care and the number of patients from around the world going to the clinic to meet Dr. Warwick. Plus with travel times/costs, maybe some are only able to afford going once or twice a year, but still got to a clinic closer to home.

Found it interesting that the BMI was lower. L
 
Top