Cayston affecting Pancreatic Sufficiency

[mamaScarlett]

I guess its a long shot, but anyone hear of Cayston affecting their pancreatic sufficiency for the better, even slightly?
My stomach woes of late are really making me scratch my head.
I just want to figure out whats going on.

I've switched back to my Pancreaze and I'm still not feeling well. It may just be taking more time, and I know thats the more likely explanation.
But the other day I was reading the dosage info for Pancreaze and I see that the dosage should begin at about 500 units of lipase per kg-which puts my dosage at about 28,000 units of lipase, SO-that about 2-3 enzymes. (i take mt16s)
BUT I've been taking 4-5 units.
My nurse said that taking too high of an enzyme dose can cause these horrible symptoms-even though you'd typically think taking not enough would cause them.
Thing is, I've been on 4-5 enzymes for years now. Other than the Creon messing me up lately, the only other thing that has changed is beginning Cayston...For a few days now I took less enzymes. I feel better.
I heard through the grapevine of one patient that started Cayston and her GI symptoms improved-Could that be possible?

Its irritating that we have to be detectives. <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[mamaScarlett]

I guess its a long shot, but anyone hear of Cayston affecting their pancreatic sufficiency for the better, even slightly?
My stomach woes of late are really making me scratch my head.
I just want to figure out whats going on.

I've switched back to my Pancreaze and I'm still not feeling well. It may just be taking more time, and I know thats the more likely explanation.
But the other day I was reading the dosage info for Pancreaze and I see that the dosage should begin at about 500 units of lipase per kg-which puts my dosage at about 28,000 units of lipase, SO-that about 2-3 enzymes. (i take mt16s)
BUT I've been taking 4-5 units.
My nurse said that taking too high of an enzyme dose can cause these horrible symptoms-even though you'd typically think taking not enough would cause them.
Thing is, I've been on 4-5 enzymes for years now. Other than the Creon messing me up lately, the only other thing that has changed is beginning Cayston...For a few days now I took less enzymes. I feel better.
I heard through the grapevine of one patient that started Cayston and her GI symptoms improved-Could that be possible?

Its irritating that we have to be detectives. <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[mamaScarlett]

I guess its a long shot, but anyone hear of Cayston affecting their pancreatic sufficiency for the better, even slightly?
<br />My stomach woes of late are really making me scratch my head.
<br />I just want to figure out whats going on.
<br />
<br />I've switched back to my Pancreaze and I'm still not feeling well. It may just be taking more time, and I know thats the more likely explanation.
<br />But the other day I was reading the dosage info for Pancreaze and I see that the dosage should begin at about 500 units of lipase per kg-which puts my dosage at about 28,000 units of lipase, SO-that about 2-3 enzymes. (i take mt16s)
<br />BUT I've been taking 4-5 units.
<br />My nurse said that taking too high of an enzyme dose can cause these horrible symptoms-even though you'd typically think taking not enough would cause them.
<br />Thing is, I've been on 4-5 enzymes for years now. Other than the Creon messing me up lately, the only other thing that has changed is beginning Cayston...For a few days now I took less enzymes. I feel better.
<br />I heard through the grapevine of one patient that started Cayston and her GI symptoms improved-Could that be possible?
<br />
<br />Its irritating that we have to be detectives. <img src="i/expressions/face-icon-small-smile.gif" border="0">