fondreflections
New member
I need some opinions...
December 2007, I had an amazing FEV1 of 68%. I actually had that FEV1 value for the past 3 years so it's not like it was a fluke or anything.
In February, I managed to get a really bad cold which killed my chest. My FEV1 dropped to 58%. I was immediately placed on Tobramyacin and Cefapine (sp?) for 2 weeks.
In June, I went for my first follow-up since the IVs, and my FEV1 was only back up to 64%. I was placed on 2 weeks of Cipro 750 mg.
One week ago, I scored an FEV1 of 61% the first time then 64% the second...
My doctor didn't seem to be concerned and didn't suggest anything else. He feels that my CF may be advancing...He could be right considering I was at a nice standstill for the past 3 years...
Other comments...It's now full-blown summer, my worst time of year!!! 3/4 of all hospital admissions have been during this time. I can't handle the heat and humidity or anything...
Another comment...I always do my morning nebs around 8:30 am and do my evening ones around 7:00 pm. For the past few months, I feel like I 'need' to do another Albuterol by about 4:00. I get much more short of breath out of nowhere.
Also, I have been trying to get back into shape on my treadmill. Well, I start out okay. By the 10th minute in, I feel like I can't catch my breath whatsoever. It's like my lower airways are shot. My lower lobes hurt, and I managed to cough up some blood for the first time in my life!!! I tried to take a deep breath and was greeted with a cough and ugly taste.
Yes, I have coughed up pink-tinged mucus before while sick but not blood. It was only the amount of my pinky nail yet the very sight has stuck with me. After I stopped working out, my whole chest from front to back hurt, and I had a 100F fever. I felt terrible for 3 days after that and debated going to the hospital. I lived on Advil, and each day seemed to get a little bit better until gone.
I'm not too sure what to think. I did tell my CF doctor about the blood episode, and again he wasn't really concerned. He still feels it's my CF advancing...
Any thoughts??? Any new things to try???
I only do Albuterol, Hypertonic Saline, and Pulmozyme. That's it! Thank you!
December 2007, I had an amazing FEV1 of 68%. I actually had that FEV1 value for the past 3 years so it's not like it was a fluke or anything.
In February, I managed to get a really bad cold which killed my chest. My FEV1 dropped to 58%. I was immediately placed on Tobramyacin and Cefapine (sp?) for 2 weeks.
In June, I went for my first follow-up since the IVs, and my FEV1 was only back up to 64%. I was placed on 2 weeks of Cipro 750 mg.
One week ago, I scored an FEV1 of 61% the first time then 64% the second...
My doctor didn't seem to be concerned and didn't suggest anything else. He feels that my CF may be advancing...He could be right considering I was at a nice standstill for the past 3 years...
Other comments...It's now full-blown summer, my worst time of year!!! 3/4 of all hospital admissions have been during this time. I can't handle the heat and humidity or anything...
Another comment...I always do my morning nebs around 8:30 am and do my evening ones around 7:00 pm. For the past few months, I feel like I 'need' to do another Albuterol by about 4:00. I get much more short of breath out of nowhere.
Also, I have been trying to get back into shape on my treadmill. Well, I start out okay. By the 10th minute in, I feel like I can't catch my breath whatsoever. It's like my lower airways are shot. My lower lobes hurt, and I managed to cough up some blood for the first time in my life!!! I tried to take a deep breath and was greeted with a cough and ugly taste.
Yes, I have coughed up pink-tinged mucus before while sick but not blood. It was only the amount of my pinky nail yet the very sight has stuck with me. After I stopped working out, my whole chest from front to back hurt, and I had a 100F fever. I felt terrible for 3 days after that and debated going to the hospital. I lived on Advil, and each day seemed to get a little bit better until gone.
I'm not too sure what to think. I did tell my CF doctor about the blood episode, and again he wasn't really concerned. He still feels it's my CF advancing...
Any thoughts??? Any new things to try???
I only do Albuterol, Hypertonic Saline, and Pulmozyme. That's it! Thank you!