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CF and climate

W

welshwitch

Guest
So I've been thinking a lot about CF and its effects on climate.

I lived in Oregon for five years, and rarely experienced severe effects of CF. In fact, every time I visit I feel as if I can breathe easier. Now that I live in California I feel (and it's subtle) but I feel a little gunkier, a little more irritated in the lungs. My lung function has not declined, though. (still at 114%)

So I was wondering if there could be any data out there on the relationship between climate and CF success. I would think logically that the rain and humidity in Oregon could be healthy for the lungs. But in CA I live closer to the water.

Perhaps it could be an allergy issue.

Any thoughts? Insights from Pacific Northwestern CF-ers?

--Welshwitch, 27, f, cf
 
W

welshwitch

Guest
So I've been thinking a lot about CF and its effects on climate.

I lived in Oregon for five years, and rarely experienced severe effects of CF. In fact, every time I visit I feel as if I can breathe easier. Now that I live in California I feel (and it's subtle) but I feel a little gunkier, a little more irritated in the lungs. My lung function has not declined, though. (still at 114%)

So I was wondering if there could be any data out there on the relationship between climate and CF success. I would think logically that the rain and humidity in Oregon could be healthy for the lungs. But in CA I live closer to the water.

Perhaps it could be an allergy issue.

Any thoughts? Insights from Pacific Northwestern CF-ers?

--Welshwitch, 27, f, cf
 
W

welshwitch

Guest
So I've been thinking a lot about CF and its effects on climate.

I lived in Oregon for five years, and rarely experienced severe effects of CF. In fact, every time I visit I feel as if I can breathe easier. Now that I live in California I feel (and it's subtle) but I feel a little gunkier, a little more irritated in the lungs. My lung function has not declined, though. (still at 114%)

So I was wondering if there could be any data out there on the relationship between climate and CF success. I would think logically that the rain and humidity in Oregon could be healthy for the lungs. But in CA I live closer to the water.

Perhaps it could be an allergy issue.

Any thoughts? Insights from Pacific Northwestern CF-ers?

--Welshwitch, 27, f, cf
 
W

welshwitch

Guest
So I've been thinking a lot about CF and its effects on climate.

I lived in Oregon for five years, and rarely experienced severe effects of CF. In fact, every time I visit I feel as if I can breathe easier. Now that I live in California I feel (and it's subtle) but I feel a little gunkier, a little more irritated in the lungs. My lung function has not declined, though. (still at 114%)

So I was wondering if there could be any data out there on the relationship between climate and CF success. I would think logically that the rain and humidity in Oregon could be healthy for the lungs. But in CA I live closer to the water.

Perhaps it could be an allergy issue.

Any thoughts? Insights from Pacific Northwestern CF-ers?

--Welshwitch, 27, f, cf
 
W

welshwitch

Guest
So I've been thinking a lot about CF and its effects on climate.

I lived in Oregon for five years, and rarely experienced severe effects of CF. In fact, every time I visit I feel as if I can breathe easier. Now that I live in California I feel (and it's subtle) but I feel a little gunkier, a little more irritated in the lungs. My lung function has not declined, though. (still at 114%)

So I was wondering if there could be any data out there on the relationship between climate and CF success. I would think logically that the rain and humidity in Oregon could be healthy for the lungs. But in CA I live closer to the water.

Perhaps it could be an allergy issue.

Any thoughts? Insights from Pacific Northwestern CF-ers?

--Welshwitch, 27, f, cf
 
A

Alyssa

New member
Our doc in Seattle says there is no clear data to substantiate any one climate being better than another for people with CF. He says the more important items are compliance, regular visits & proximity to a certified CF center (tied closely to regular visits if getting there is easier) Of course we are all aware of the benefits of living near salt water (at least for the Australian surfers with CF - since that's how they figured out everyone should be doing hypertonic saline) so perhaps the coastal lines are better for people.

Having said that - many people claim all sorts of differences - some do better in hot dry, others do better in cool moist. I would imagine that allergies do play a big part in this since I've seen the maps/charts at the allergists office - different things in different parts of the county at different times of the years.... could be problems for one person and not the next.

On another interesting side note -- my son had little to no symptoms while living in Seattle (he is 21 years old) - Now that we have moved to North Dakota, he started having a productive cough -- and his PFT's fell 10% or more. He started all the usual CF treatments (vest, pulmozyme, saline and symbicort - similar to advair) His PFT's came back up -- was it climate change? or was it just his time? Was it that he was spending too much time in the basement (good environment for mold) Who knows for sure.

Good luck in your search for answers :)
 
A

Alyssa

New member
Our doc in Seattle says there is no clear data to substantiate any one climate being better than another for people with CF. He says the more important items are compliance, regular visits & proximity to a certified CF center (tied closely to regular visits if getting there is easier) Of course we are all aware of the benefits of living near salt water (at least for the Australian surfers with CF - since that's how they figured out everyone should be doing hypertonic saline) so perhaps the coastal lines are better for people.

Having said that - many people claim all sorts of differences - some do better in hot dry, others do better in cool moist. I would imagine that allergies do play a big part in this since I've seen the maps/charts at the allergists office - different things in different parts of the county at different times of the years.... could be problems for one person and not the next.

On another interesting side note -- my son had little to no symptoms while living in Seattle (he is 21 years old) - Now that we have moved to North Dakota, he started having a productive cough -- and his PFT's fell 10% or more. He started all the usual CF treatments (vest, pulmozyme, saline and symbicort - similar to advair) His PFT's came back up -- was it climate change? or was it just his time? Was it that he was spending too much time in the basement (good environment for mold) Who knows for sure.

Good luck in your search for answers :)
 
A

Alyssa

New member
Our doc in Seattle says there is no clear data to substantiate any one climate being better than another for people with CF. He says the more important items are compliance, regular visits & proximity to a certified CF center (tied closely to regular visits if getting there is easier) Of course we are all aware of the benefits of living near salt water (at least for the Australian surfers with CF - since that's how they figured out everyone should be doing hypertonic saline) so perhaps the coastal lines are better for people.

Having said that - many people claim all sorts of differences - some do better in hot dry, others do better in cool moist. I would imagine that allergies do play a big part in this since I've seen the maps/charts at the allergists office - different things in different parts of the county at different times of the years.... could be problems for one person and not the next.

On another interesting side note -- my son had little to no symptoms while living in Seattle (he is 21 years old) - Now that we have moved to North Dakota, he started having a productive cough -- and his PFT's fell 10% or more. He started all the usual CF treatments (vest, pulmozyme, saline and symbicort - similar to advair) His PFT's came back up -- was it climate change? or was it just his time? Was it that he was spending too much time in the basement (good environment for mold) Who knows for sure.

Good luck in your search for answers :)
 
A

Alyssa

New member
Our doc in Seattle says there is no clear data to substantiate any one climate being better than another for people with CF. He says the more important items are compliance, regular visits & proximity to a certified CF center (tied closely to regular visits if getting there is easier) Of course we are all aware of the benefits of living near salt water (at least for the Australian surfers with CF - since that's how they figured out everyone should be doing hypertonic saline) so perhaps the coastal lines are better for people.

Having said that - many people claim all sorts of differences - some do better in hot dry, others do better in cool moist. I would imagine that allergies do play a big part in this since I've seen the maps/charts at the allergists office - different things in different parts of the county at different times of the years.... could be problems for one person and not the next.

On another interesting side note -- my son had little to no symptoms while living in Seattle (he is 21 years old) - Now that we have moved to North Dakota, he started having a productive cough -- and his PFT's fell 10% or more. He started all the usual CF treatments (vest, pulmozyme, saline and symbicort - similar to advair) His PFT's came back up -- was it climate change? or was it just his time? Was it that he was spending too much time in the basement (good environment for mold) Who knows for sure.

Good luck in your search for answers :)
 
A

Alyssa

New member
Our doc in Seattle says there is no clear data to substantiate any one climate being better than another for people with CF. He says the more important items are compliance, regular visits & proximity to a certified CF center (tied closely to regular visits if getting there is easier) Of course we are all aware of the benefits of living near salt water (at least for the Australian surfers with CF - since that's how they figured out everyone should be doing hypertonic saline) so perhaps the coastal lines are better for people.

Having said that - many people claim all sorts of differences - some do better in hot dry, others do better in cool moist. I would imagine that allergies do play a big part in this since I've seen the maps/charts at the allergists office - different things in different parts of the county at different times of the years.... could be problems for one person and not the next.

On another interesting side note -- my son had little to no symptoms while living in Seattle (he is 21 years old) - Now that we have moved to North Dakota, he started having a productive cough -- and his PFT's fell 10% or more. He started all the usual CF treatments (vest, pulmozyme, saline and symbicort - similar to advair) His PFT's came back up -- was it climate change? or was it just his time? Was it that he was spending too much time in the basement (good environment for mold) Who knows for sure.

Good luck in your search for answers :)
 
A

Aspiemom

Guest
How do you know when it's the change in climate, or if it's the aging process with CF. Many of us tend to get worse as we get older. When I lived in PA I wasn't nearly as bad as since I've moved to GA, where it's known for poor air quality and bad allergies. I've been nothing but sick since moving here.

<b>BUT</b>, maybe if I was still in PA I would still be this sick. Do you understand what I'm saying?
 
A

Aspiemom

Guest
How do you know when it's the change in climate, or if it's the aging process with CF. Many of us tend to get worse as we get older. When I lived in PA I wasn't nearly as bad as since I've moved to GA, where it's known for poor air quality and bad allergies. I've been nothing but sick since moving here.

<b>BUT</b>, maybe if I was still in PA I would still be this sick. Do you understand what I'm saying?
 
A

Aspiemom

Guest
How do you know when it's the change in climate, or if it's the aging process with CF. Many of us tend to get worse as we get older. When I lived in PA I wasn't nearly as bad as since I've moved to GA, where it's known for poor air quality and bad allergies. I've been nothing but sick since moving here.

<b>BUT</b>, maybe if I was still in PA I would still be this sick. Do you understand what I'm saying?
 
A

Aspiemom

Guest
How do you know when it's the change in climate, or if it's the aging process with CF. Many of us tend to get worse as we get older. When I lived in PA I wasn't nearly as bad as since I've moved to GA, where it's known for poor air quality and bad allergies. I've been nothing but sick since moving here.

<b>BUT</b>, maybe if I was still in PA I would still be this sick. Do you understand what I'm saying?
 
A

Aspiemom

Guest
How do you know when it's the change in climate, or if it's the aging process with CF. Many of us tend to get worse as we get older. When I lived in PA I wasn't nearly as bad as since I've moved to GA, where it's known for poor air quality and bad allergies. I've been nothing but sick since moving here.

<b>BUT</b>, maybe if I was still in PA I would still be this sick. Do you understand what I'm saying?
 
S

SEANP

New member
I have noticed that a lot of the CF centers in the North of the US seem to have better lung function % for children per the care center data that is compiled by the CF Foundation. Better than the South anyway. I know that there are a lot of variables that play into this (wages, compliance, mobile population, etc.) But I had wondered if the longer winter, colder temperatures might act as a natural anti-inflammatory effect on the lungs.
Sean
 
S

SEANP

New member
I have noticed that a lot of the CF centers in the North of the US seem to have better lung function % for children per the care center data that is compiled by the CF Foundation. Better than the South anyway. I know that there are a lot of variables that play into this (wages, compliance, mobile population, etc.) But I had wondered if the longer winter, colder temperatures might act as a natural anti-inflammatory effect on the lungs.
Sean
 
S

SEANP

New member
I have noticed that a lot of the CF centers in the North of the US seem to have better lung function % for children per the care center data that is compiled by the CF Foundation. Better than the South anyway. I know that there are a lot of variables that play into this (wages, compliance, mobile population, etc.) But I had wondered if the longer winter, colder temperatures might act as a natural anti-inflammatory effect on the lungs.
Sean
 
S

SEANP

New member
I have noticed that a lot of the CF centers in the North of the US seem to have better lung function % for children per the care center data that is compiled by the CF Foundation. Better than the South anyway. I know that there are a lot of variables that play into this (wages, compliance, mobile population, etc.) But I had wondered if the longer winter, colder temperatures might act as a natural anti-inflammatory effect on the lungs.
Sean
 
S

SEANP

New member
I have noticed that a lot of the CF centers in the North of the US seem to have better lung function % for children per the care center data that is compiled by the CF Foundation. Better than the South anyway. I know that there are a lot of variables that play into this (wages, compliance, mobile population, etc.) But I had wondered if the longer winter, colder temperatures might act as a natural anti-inflammatory effect on the lungs.
Sean
 
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