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CF and Glutathione

A

anonymous

New member
I have been reading up that people with CF have a Glutathione dysfunction. A person i know takes 'G' once a day and say's it seems to help her quite allot.

I have a few questions i want to ask you all, before i my clinic visit!

Does anyone else take 'G' supplements and do they realy help?
Is there any side affects from taking them?
How do they help a person with CF?
Has anyones doctor recommended 'G' to them?

Just Curious
 
A

anonymous

New member
I have been reading up that people with CF have a Glutathione dysfunction. A person i know takes 'G' once a day and say's it seems to help her quite allot.

I have a few questions i want to ask you all, before i my clinic visit!

Does anyone else take 'G' supplements and do they realy help?
Is there any side affects from taking them?
How do they help a person with CF?
Has anyones doctor recommended 'G' to them?

Just Curious
 
A

anonymous

New member
I have been taking Glutathione orally for a bit over 3 years now. The biggest thing i noticed was it gave me back the energy i used to have before i got cepacia. Which means i can be more active which is a good thing! I also notice i get sick less often and when i do get sick it is less severe. I have not had any side effects at all from using the glutathione. My doctor wasnt against it when i asked him about it. All he recommended was that i do not inhale it like most people do. It can be irritating to the lungs as any type of inhaled medicine. Since i have problems with hemoptysis, inhaling it was out of the question.
 
A

anonymous

New member
I have been taking Glutathione orally for a bit over 3 years now. The biggest thing i noticed was it gave me back the energy i used to have before i got cepacia. Which means i can be more active which is a good thing! I also notice i get sick less often and when i do get sick it is less severe. I have not had any side effects at all from using the glutathione. My doctor wasnt against it when i asked him about it. All he recommended was that i do not inhale it like most people do. It can be irritating to the lungs as any type of inhaled medicine. Since i have problems with hemoptysis, inhaling it was out of the question.
 
C

cdale613

New member
I take N-Acetyl L Cystein, which the body uses to produce Glutathione. I take 1 600mg tablet, twice a day. The inhaled form of this has been widely used as a mucous thinner in CF patients, especially in the pre-pulmozyme days - its called mucomyst. Oral NAC has been widely studied for use in chronic obstructive pulmonary disease, (COPD) and is currently entering Phase II testing for CF. It has been found safe for CFers in a Phase I study. I odn't know how much it helps me, but I do think I feel a little better for taking it, and it doesn't seem to have any negative side effects. I have talked to my doctors about it, and although they tow the company line of "we don't recommend you take anything that hasn't been throughly tested/approved", they don't seem to mind too much. You can find NAC at many health/supplement retail stores. Hope this helps.

Chris
25w/CF
 
C

cdale613

New member
I take N-Acetyl L Cystein, which the body uses to produce Glutathione. I take 1 600mg tablet, twice a day. The inhaled form of this has been widely used as a mucous thinner in CF patients, especially in the pre-pulmozyme days - its called mucomyst. Oral NAC has been widely studied for use in chronic obstructive pulmonary disease, (COPD) and is currently entering Phase II testing for CF. It has been found safe for CFers in a Phase I study. I odn't know how much it helps me, but I do think I feel a little better for taking it, and it doesn't seem to have any negative side effects. I have talked to my doctors about it, and although they tow the company line of "we don't recommend you take anything that hasn't been throughly tested/approved", they don't seem to mind too much. You can find NAC at many health/supplement retail stores. Hope this helps.

Chris
25w/CF
 
D

Diane

New member
<blockquote>Quote
<hr><i>Originally posted by: <b>Anonymous</b></i>
I have been taking Glutathione orally for a bit over 3 years now. The biggest thing i noticed was it gave me back the energy i used to have before i got cepacia. Which means i can be more active which is a good thing! I also notice i get sick less often and when i do get sick it is less severe. I have not had any side effects at all from using the glutathione. My doctor wasnt against it when i asked him about it. All he recommended was that i do not inhale it like most people do. It can be irritating to the lungs as any type of inhaled medicine. Since i have problems with hemoptysis, inhaling it was out of the question.<hr></blockquote> That was me , i forgot to log in
 
D

Diane

New member
<blockquote>Quote
<hr><i>Originally posted by: <b>Anonymous</b></i>
I have been taking Glutathione orally for a bit over 3 years now. The biggest thing i noticed was it gave me back the energy i used to have before i got cepacia. Which means i can be more active which is a good thing! I also notice i get sick less often and when i do get sick it is less severe. I have not had any side effects at all from using the glutathione. My doctor wasnt against it when i asked him about it. All he recommended was that i do not inhale it like most people do. It can be irritating to the lungs as any type of inhaled medicine. Since i have problems with hemoptysis, inhaling it was out of the question.<hr></blockquote> That was me , i forgot to log in
 
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