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Cystic Fibrosis Forum (EXP)

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CF and...

albino15

New member
You may have guessed by my username that I have albinism in addition to CF. Anyone else have a condition that's unrelated to your CF?
 

albino15

New member
You may have guessed by my username that I have albinism in addition to CF. Anyone else have a condition that's unrelated to your CF?
 

JustDucky

New member
Yep...I have Ehlers-Danlos Syndrome, it is actually less common than CF. Basically causes joints to dislocate at will, stretchy skin, high palate, really bad eyesight as well as a cardiac problems. As I always say, I was doubly blessed!

The only other possibly genetic issue that I have is Hashimoto's disease, seems to run in my family (thyroid disease)

Jenn 40 w/CF
 

JustDucky

New member
Yep...I have Ehlers-Danlos Syndrome, it is actually less common than CF. Basically causes joints to dislocate at will, stretchy skin, high palate, really bad eyesight as well as a cardiac problems. As I always say, I was doubly blessed!

The only other possibly genetic issue that I have is Hashimoto's disease, seems to run in my family (thyroid disease)

Jenn 40 w/CF
 
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