CF appointment update...

[jbrandonAW]

blah - though Im doing good I am bummed...

weight: 114 (up from 97 in july).
FEV1: 52% (up from 51% on discharge august 13th)

Well I am glad for the weight. So hopefully Ill get to 125 soon enough.

On the worse note I am sad for my FEV1 nummber. 52% thats ONE LUNG...thats it... I have been feeling great (lung wise) and I was expecting ATLEAST something over 55 if not 60%... I just wanted to cry when I say 52% (in fact the first time I blew it was only 45, though I HATE the offices machine its a REALLY old version of the machine/hand held) so I swear its the machine and not my real lung function.

But I am just said this may actually be my baseline...I want by OLD baseline of 70%!!!!!

I think I may try a really aggressive treatment to see what it brings my lung function to by Oct 20th...

On another note they gave me some nasal irritations and a script for allegra. They also gave me some vitamins so I don't have to pay $22 for them.

O and on another note they didn't give me a glucose test -Im annoyed about it. So I am demanding that I get one since the last time I got one was when I was preggo! Hopefully the issues will get better and Ill start sleeping and peeing less...

 

[jbrandonAW]

blah - though Im doing good I am bummed...

weight: 114 (up from 97 in july).
FEV1: 52% (up from 51% on discharge august 13th)

Well I am glad for the weight. So hopefully Ill get to 125 soon enough.

On the worse note I am sad for my FEV1 nummber. 52% thats ONE LUNG...thats it... I have been feeling great (lung wise) and I was expecting ATLEAST something over 55 if not 60%... I just wanted to cry when I say 52% (in fact the first time I blew it was only 45, though I HATE the offices machine its a REALLY old version of the machine/hand held) so I swear its the machine and not my real lung function.

But I am just said this may actually be my baseline...I want by OLD baseline of 70%!!!!!

I think I may try a really aggressive treatment to see what it brings my lung function to by Oct 20th...

On another note they gave me some nasal irritations and a script for allegra. They also gave me some vitamins so I don't have to pay $22 for them.

O and on another note they didn't give me a glucose test -Im annoyed about it. So I am demanding that I get one since the last time I got one was when I was preggo! Hopefully the issues will get better and Ill start sleeping and peeing less...

 

[jbrandonAW]

blah - though Im doing good I am bummed...

weight: 114 (up from 97 in july).
FEV1: 52% (up from 51% on discharge august 13th)

Well I am glad for the weight. So hopefully Ill get to 125 soon enough.

On the worse note I am sad for my FEV1 nummber. 52% thats ONE LUNG...thats it... I have been feeling great (lung wise) and I was expecting ATLEAST something over 55 if not 60%... I just wanted to cry when I say 52% (in fact the first time I blew it was only 45, though I HATE the offices machine its a REALLY old version of the machine/hand held) so I swear its the machine and not my real lung function.

But I am just said this may actually be my baseline...I want by OLD baseline of 70%!!!!!

I think I may try a really aggressive treatment to see what it brings my lung function to by Oct 20th...

On another note they gave me some nasal irritations and a script for allegra. They also gave me some vitamins so I don't have to pay $22 for them.

O and on another note they didn't give me a glucose test -Im annoyed about it. So I am demanding that I get one since the last time I got one was when I was preggo! Hopefully the issues will get better and Ill start sleeping and peeing less...

 

[jbrandonAW]

blah - though Im doing good I am bummed...

weight: 114 (up from 97 in july).
FEV1: 52% (up from 51% on discharge august 13th)

Well I am glad for the weight. So hopefully Ill get to 125 soon enough.

On the worse note I am sad for my FEV1 nummber. 52% thats ONE LUNG...thats it... I have been feeling great (lung wise) and I was expecting ATLEAST something over 55 if not 60%... I just wanted to cry when I say 52% (in fact the first time I blew it was only 45, though I HATE the offices machine its a REALLY old version of the machine/hand held) so I swear its the machine and not my real lung function.

But I am just said this may actually be my baseline...I want by OLD baseline of 70%!!!!!

I think I may try a really aggressive treatment to see what it brings my lung function to by Oct 20th...

On another note they gave me some nasal irritations and a script for allegra. They also gave me some vitamins so I don't have to pay $22 for them.

O and on another note they didn't give me a glucose test -Im annoyed about it. So I am demanding that I get one since the last time I got one was when I was preggo! Hopefully the issues will get better and Ill start sleeping and peeing less...

 

[jbrandonAW]

blah - though Im doing good I am bummed...
<br />
<br />weight: 114 (up from 97 in july).
<br />FEV1: 52% (up from 51% on discharge august 13th)
<br />
<br />Well I am glad for the weight. So hopefully Ill get to 125 soon enough.
<br />
<br />On the worse note I am sad for my FEV1 nummber. 52% thats ONE LUNG...thats it... I have been feeling great (lung wise) and I was expecting ATLEAST something over 55 if not 60%... I just wanted to cry when I say 52% (in fact the first time I blew it was only 45, though I HATE the offices machine its a REALLY old version of the machine/hand held) so I swear its the machine and not my real lung function.
<br />
<br />But I am just said this may actually be my baseline...I want by OLD baseline of 70%!!!!!
<br />
<br />I think I may try a really aggressive treatment to see what it brings my lung function to by Oct 20th...
<br />
<br />On another note they gave me some nasal irritations and a script for allegra. They also gave me some vitamins so I don't have to pay $22 for them.
<br />
<br />O and on another note they didn't give me a glucose test -Im annoyed about it. So I am demanding that I get one since the last time I got one was when I was preggo! Hopefully the issues will get better and Ill start sleeping and peeing less...

 

[Jeana]

Do you do bloodwork at every clinic? My doc has me do it and why wouldn't they just add that on to the bloodwork? I would be upfront about the recommendations of the CFF. It's been well over a year for you. How aggravating.

I'm sorry about your FEV1. Sometimes we try so hard and it's disheartening when our FEV1 doesn't reflect our effort. I guess I know how my students feel when they try so hard and aren't always successful in math. <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Jeana]

Do you do bloodwork at every clinic? My doc has me do it and why wouldn't they just add that on to the bloodwork? I would be upfront about the recommendations of the CFF. It's been well over a year for you. How aggravating.

I'm sorry about your FEV1. Sometimes we try so hard and it's disheartening when our FEV1 doesn't reflect our effort. I guess I know how my students feel when they try so hard and aren't always successful in math. <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Jeana]

Do you do bloodwork at every clinic? My doc has me do it and why wouldn't they just add that on to the bloodwork? I would be upfront about the recommendations of the CFF. It's been well over a year for you. How aggravating.

I'm sorry about your FEV1. Sometimes we try so hard and it's disheartening when our FEV1 doesn't reflect our effort. I guess I know how my students feel when they try so hard and aren't always successful in math. <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Jeana]

Do you do bloodwork at every clinic? My doc has me do it and why wouldn't they just add that on to the bloodwork? I would be upfront about the recommendations of the CFF. It's been well over a year for you. How aggravating.

I'm sorry about your FEV1. Sometimes we try so hard and it's disheartening when our FEV1 doesn't reflect our effort. I guess I know how my students feel when they try so hard and aren't always successful in math. <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Jeana]

Do you do bloodwork at every clinic? My doc has me do it and why wouldn't they just add that on to the bloodwork? I would be upfront about the recommendations of the CFF. It's been well over a year for you. How aggravating.
<br />
<br />I'm sorry about your FEV1. Sometimes we try so hard and it's disheartening when our FEV1 doesn't reflect our effort. I guess I know how my students feel when they try so hard and aren't always successful in math. <img src="i/expressions/face-icon-small-smile.gif" border="0">