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CF awareness days and walks

LisaV

New member
<a target=_blank class=ftalternatingbarlinklarge href="http://www.insidebayarea.com/ci_7901889?source=rss">http://www.insidebayarea.com/ci_7901889?source=rss</a>

I found the article when I was searching the news for "marfan" (one of my late husband's illnesses).....

The paras I found most interesting are:

"The majority of events, however, are sponsored by well-meaning health advocates and associations. Some can be quite successful, particularly if they offer free medical screenings or other services.

Others, Weiss sighs, are simply media campaigns that offer little news or help for consumers.

While television and radio programs might pick up on the disease of the week, particularly if the sponsors provide camera-ready patients, many newspapers refuse to cover them, with reporters saying they're not newsworthy, public relations industry observers say.

"If you're only going with the disease of the day to get your message out, it's not going to work," Weiss says. "These groups put so much into that one day, sometimes the resources aren't available the rest of the year."

Weiss lauds National Depression Screening Day, because mental health professionals around the country offer free evaluations for an illness estimated to affect 19 million Americans a year. The screening offers a concrete, valuable service to consumers. They clearly find it valuable: Since starting in 1991, the screening day has grown to serve about 85,000 people at 3,000 locations around the country. "

I like the idea of having some service offered during the day - rather than having the day just be for fundraising, education, news. And I do wonder about families using up so much of their emotional resources for just a single day.
 

LisaV

New member
<a target=_blank class=ftalternatingbarlinklarge href="http://www.insidebayarea.com/ci_7901889?source=rss">http://www.insidebayarea.com/ci_7901889?source=rss</a>

I found the article when I was searching the news for "marfan" (one of my late husband's illnesses).....

The paras I found most interesting are:

"The majority of events, however, are sponsored by well-meaning health advocates and associations. Some can be quite successful, particularly if they offer free medical screenings or other services.

Others, Weiss sighs, are simply media campaigns that offer little news or help for consumers.

While television and radio programs might pick up on the disease of the week, particularly if the sponsors provide camera-ready patients, many newspapers refuse to cover them, with reporters saying they're not newsworthy, public relations industry observers say.

"If you're only going with the disease of the day to get your message out, it's not going to work," Weiss says. "These groups put so much into that one day, sometimes the resources aren't available the rest of the year."

Weiss lauds National Depression Screening Day, because mental health professionals around the country offer free evaluations for an illness estimated to affect 19 million Americans a year. The screening offers a concrete, valuable service to consumers. They clearly find it valuable: Since starting in 1991, the screening day has grown to serve about 85,000 people at 3,000 locations around the country. "

I like the idea of having some service offered during the day - rather than having the day just be for fundraising, education, news. And I do wonder about families using up so much of their emotional resources for just a single day.
 

LisaV

New member
<a target=_blank class=ftalternatingbarlinklarge href="http://www.insidebayarea.com/ci_7901889?source=rss">http://www.insidebayarea.com/ci_7901889?source=rss</a>

I found the article when I was searching the news for "marfan" (one of my late husband's illnesses).....

The paras I found most interesting are:

"The majority of events, however, are sponsored by well-meaning health advocates and associations. Some can be quite successful, particularly if they offer free medical screenings or other services.

Others, Weiss sighs, are simply media campaigns that offer little news or help for consumers.

While television and radio programs might pick up on the disease of the week, particularly if the sponsors provide camera-ready patients, many newspapers refuse to cover them, with reporters saying they're not newsworthy, public relations industry observers say.

"If you're only going with the disease of the day to get your message out, it's not going to work," Weiss says. "These groups put so much into that one day, sometimes the resources aren't available the rest of the year."

Weiss lauds National Depression Screening Day, because mental health professionals around the country offer free evaluations for an illness estimated to affect 19 million Americans a year. The screening offers a concrete, valuable service to consumers. They clearly find it valuable: Since starting in 1991, the screening day has grown to serve about 85,000 people at 3,000 locations around the country. "

I like the idea of having some service offered during the day - rather than having the day just be for fundraising, education, news. And I do wonder about families using up so much of their emotional resources for just a single day.
 

LisaV

New member
<a target=_blank class=ftalternatingbarlinklarge href="http://www.insidebayarea.com/ci_7901889?source=rss">http://www.insidebayarea.com/ci_7901889?source=rss</a>

I found the article when I was searching the news for "marfan" (one of my late husband's illnesses).....

The paras I found most interesting are:

"The majority of events, however, are sponsored by well-meaning health advocates and associations. Some can be quite successful, particularly if they offer free medical screenings or other services.

Others, Weiss sighs, are simply media campaigns that offer little news or help for consumers.

While television and radio programs might pick up on the disease of the week, particularly if the sponsors provide camera-ready patients, many newspapers refuse to cover them, with reporters saying they're not newsworthy, public relations industry observers say.

"If you're only going with the disease of the day to get your message out, it's not going to work," Weiss says. "These groups put so much into that one day, sometimes the resources aren't available the rest of the year."

Weiss lauds National Depression Screening Day, because mental health professionals around the country offer free evaluations for an illness estimated to affect 19 million Americans a year. The screening offers a concrete, valuable service to consumers. They clearly find it valuable: Since starting in 1991, the screening day has grown to serve about 85,000 people at 3,000 locations around the country. "

I like the idea of having some service offered during the day - rather than having the day just be for fundraising, education, news. And I do wonder about families using up so much of their emotional resources for just a single day.
 

LisaV

New member
<a target=_blank class=ftalternatingbarlinklarge href="http://www.insidebayarea.com/ci_7901889?source=rss">http://www.insidebayarea.com/ci_7901889?source=rss</a>

I found the article when I was searching the news for "marfan" (one of my late husband's illnesses).....

The paras I found most interesting are:

"The majority of events, however, are sponsored by well-meaning health advocates and associations. Some can be quite successful, particularly if they offer free medical screenings or other services.

Others, Weiss sighs, are simply media campaigns that offer little news or help for consumers.

While television and radio programs might pick up on the disease of the week, particularly if the sponsors provide camera-ready patients, many newspapers refuse to cover them, with reporters saying they're not newsworthy, public relations industry observers say.

"If you're only going with the disease of the day to get your message out, it's not going to work," Weiss says. "These groups put so much into that one day, sometimes the resources aren't available the rest of the year."

Weiss lauds National Depression Screening Day, because mental health professionals around the country offer free evaluations for an illness estimated to affect 19 million Americans a year. The screening offers a concrete, valuable service to consumers. They clearly find it valuable: Since starting in 1991, the screening day has grown to serve about 85,000 people at 3,000 locations around the country. "

I like the idea of having some service offered during the day - rather than having the day just be for fundraising, education, news. And I do wonder about families using up so much of their emotional resources for just a single day.
 

bittyhorse23

New member
"Indeed, what started out as a highly regarded disease-awareness event is now facing criticism for its increased emphasis on pink lipstick sales and other product tie-ins that raise little money for breast cancer research and prevention but do boost sales for participating companies."

"It does become overwhelming," says Sternheimer, who also runs the Everyday Sociology blog. "Yes, it was Breast Cancer Awareness Month, but how many millions of women don't have access to mammograms? It's almost like a Band-Aid over our troubled health care system."

-----------------------------

These two paragraphs really caught my attention. It seems true. Everywhere you turn there is something about Breast Cancer but it makes you wonder just how much of that money is going into the research for it, or like the article stated, into free mammograms for those who can't afford them.

It's nice to have a cause and want to work hard for it, but there is a point when you have to step back and say "just what am I doing for the cause?"

To me it is a way for the pharmacuetical (sp) companies to make money. I always wonder if there will ever be a true "cure" for any diseases because if there are, how would the companies make money? There would be no need for say all of the drugs us CFers use. And we all know money rules in this country and NOT humanity.

That was a rant sorry <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

bittyhorse23

New member
"Indeed, what started out as a highly regarded disease-awareness event is now facing criticism for its increased emphasis on pink lipstick sales and other product tie-ins that raise little money for breast cancer research and prevention but do boost sales for participating companies."

"It does become overwhelming," says Sternheimer, who also runs the Everyday Sociology blog. "Yes, it was Breast Cancer Awareness Month, but how many millions of women don't have access to mammograms? It's almost like a Band-Aid over our troubled health care system."

-----------------------------

These two paragraphs really caught my attention. It seems true. Everywhere you turn there is something about Breast Cancer but it makes you wonder just how much of that money is going into the research for it, or like the article stated, into free mammograms for those who can't afford them.

It's nice to have a cause and want to work hard for it, but there is a point when you have to step back and say "just what am I doing for the cause?"

To me it is a way for the pharmacuetical (sp) companies to make money. I always wonder if there will ever be a true "cure" for any diseases because if there are, how would the companies make money? There would be no need for say all of the drugs us CFers use. And we all know money rules in this country and NOT humanity.

That was a rant sorry <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

bittyhorse23

New member
"Indeed, what started out as a highly regarded disease-awareness event is now facing criticism for its increased emphasis on pink lipstick sales and other product tie-ins that raise little money for breast cancer research and prevention but do boost sales for participating companies."

"It does become overwhelming," says Sternheimer, who also runs the Everyday Sociology blog. "Yes, it was Breast Cancer Awareness Month, but how many millions of women don't have access to mammograms? It's almost like a Band-Aid over our troubled health care system."

-----------------------------

These two paragraphs really caught my attention. It seems true. Everywhere you turn there is something about Breast Cancer but it makes you wonder just how much of that money is going into the research for it, or like the article stated, into free mammograms for those who can't afford them.

It's nice to have a cause and want to work hard for it, but there is a point when you have to step back and say "just what am I doing for the cause?"

To me it is a way for the pharmacuetical (sp) companies to make money. I always wonder if there will ever be a true "cure" for any diseases because if there are, how would the companies make money? There would be no need for say all of the drugs us CFers use. And we all know money rules in this country and NOT humanity.

That was a rant sorry <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

bittyhorse23

New member
"Indeed, what started out as a highly regarded disease-awareness event is now facing criticism for its increased emphasis on pink lipstick sales and other product tie-ins that raise little money for breast cancer research and prevention but do boost sales for participating companies."

"It does become overwhelming," says Sternheimer, who also runs the Everyday Sociology blog. "Yes, it was Breast Cancer Awareness Month, but how many millions of women don't have access to mammograms? It's almost like a Band-Aid over our troubled health care system."

-----------------------------

These two paragraphs really caught my attention. It seems true. Everywhere you turn there is something about Breast Cancer but it makes you wonder just how much of that money is going into the research for it, or like the article stated, into free mammograms for those who can't afford them.

It's nice to have a cause and want to work hard for it, but there is a point when you have to step back and say "just what am I doing for the cause?"

To me it is a way for the pharmacuetical (sp) companies to make money. I always wonder if there will ever be a true "cure" for any diseases because if there are, how would the companies make money? There would be no need for say all of the drugs us CFers use. And we all know money rules in this country and NOT humanity.

That was a rant sorry <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

bittyhorse23

New member
"Indeed, what started out as a highly regarded disease-awareness event is now facing criticism for its increased emphasis on pink lipstick sales and other product tie-ins that raise little money for breast cancer research and prevention but do boost sales for participating companies."

"It does become overwhelming," says Sternheimer, who also runs the Everyday Sociology blog. "Yes, it was Breast Cancer Awareness Month, but how many millions of women don't have access to mammograms? It's almost like a Band-Aid over our troubled health care system."

-----------------------------

These two paragraphs really caught my attention. It seems true. Everywhere you turn there is something about Breast Cancer but it makes you wonder just how much of that money is going into the research for it, or like the article stated, into free mammograms for those who can't afford them.

It's nice to have a cause and want to work hard for it, but there is a point when you have to step back and say "just what am I doing for the cause?"

To me it is a way for the pharmacuetical (sp) companies to make money. I always wonder if there will ever be a true "cure" for any diseases because if there are, how would the companies make money? There would be no need for say all of the drugs us CFers use. And we all know money rules in this country and NOT humanity.

That was a rant sorry <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

lightNlife

New member
I agree. Not that breast cancer isn't a worthy cause (we've had it in our family) but I'm so tired of seeing pink everywhere! It's tough being an orphan disease.

On a positive note, I exceeded my Great Strides goal in 2007! To date my letter writing campaign has brought in more than $10,000 for CF research! Woo hoo! I'm planning to aim even higher in 2008. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

lightNlife

New member
I agree. Not that breast cancer isn't a worthy cause (we've had it in our family) but I'm so tired of seeing pink everywhere! It's tough being an orphan disease.

On a positive note, I exceeded my Great Strides goal in 2007! To date my letter writing campaign has brought in more than $10,000 for CF research! Woo hoo! I'm planning to aim even higher in 2008. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

lightNlife

New member
I agree. Not that breast cancer isn't a worthy cause (we've had it in our family) but I'm so tired of seeing pink everywhere! It's tough being an orphan disease.

On a positive note, I exceeded my Great Strides goal in 2007! To date my letter writing campaign has brought in more than $10,000 for CF research! Woo hoo! I'm planning to aim even higher in 2008. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

lightNlife

New member
I agree. Not that breast cancer isn't a worthy cause (we've had it in our family) but I'm so tired of seeing pink everywhere! It's tough being an orphan disease.

On a positive note, I exceeded my Great Strides goal in 2007! To date my letter writing campaign has brought in more than $10,000 for CF research! Woo hoo! I'm planning to aim even higher in 2008. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

lightNlife

New member
I agree. Not that breast cancer isn't a worthy cause (we've had it in our family) but I'm so tired of seeing pink everywhere! It's tough being an orphan disease.

On a positive note, I exceeded my Great Strides goal in 2007! To date my letter writing campaign has brought in more than $10,000 for CF research! Woo hoo! I'm planning to aim even higher in 2008. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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