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CF Center with no insurance

K

katethekid

Guest
I am 25 years old and was dx when I was 15, but the dr's tried to dx me with CF since I was 2. I went to a CF center for testing when I was still in pediatric, but never for treatment and I had insurance through my Dad back then. I am trying to get medicaid because I can't afford insurance (most won't even give it to me), but they won't approve me for medicaid. I was wondering if CF centers work with people who are uninsured? I have never even had genetic testing done, only sweat tests. At this point GP's don't want to go near me even though my lungs are doing pretty well. I haven't even been in the hospital for just over a year, dang pneumonia. Still they don't want to take me on as a patient. I live in north Georgia if that matters. I know there is a CF center at Emory, but not sure if I could afford to go. Thanks.
 
K

katethekid

Guest
I am 25 years old and was dx when I was 15, but the dr's tried to dx me with CF since I was 2. I went to a CF center for testing when I was still in pediatric, but never for treatment and I had insurance through my Dad back then. I am trying to get medicaid because I can't afford insurance (most won't even give it to me), but they won't approve me for medicaid. I was wondering if CF centers work with people who are uninsured? I have never even had genetic testing done, only sweat tests. At this point GP's don't want to go near me even though my lungs are doing pretty well. I haven't even been in the hospital for just over a year, dang pneumonia. Still they don't want to take me on as a patient. I live in north Georgia if that matters. I know there is a CF center at Emory, but not sure if I could afford to go. Thanks.
 
K

kellyga

New member
We live in Georgia as well. My daughter goes to the pediatric center in Atlanta, but they are all a part of the larger Emory system. There is a social worker at the adult clinic named Shaina Blair. She seems very nice, and she would be the perfect person to help you figure this out. I think there is a new initiative by the CF Foundation to help everyone get genetic testing done as well. Ask her about that.

Glad you are doing well. Good luck!

http://www.emoryhealthcare.org/cystic-fibrosis/contact-us.html
 
K

kellyga

New member
We live in Georgia as well. My daughter goes to the pediatric center in Atlanta, but they are all a part of the larger Emory system. There is a social worker at the adult clinic named Shaina Blair. She seems very nice, and she would be the perfect person to help you figure this out. I think there is a new initiative by the CF Foundation to help everyone get genetic testing done as well. Ask her about that.

Glad you are doing well. Good luck!

http://www.emoryhealthcare.org/cystic-fibrosis/contact-us.html
 
K

katethekid

Guest
Thank you so much, this is perfect. I hope your daughter is doing well too <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
K

katethekid

Guest
Thank you so much, this is perfect. I hope your daughter is doing well too <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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