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Cf diet issues

M

MicheleGazelle

New member
I was diagnosed the month before I turned 36.

You are more than welcome to PM me. Or email me. Whatever works for you. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
M

MicheleGazelle

New member
I was diagnosed the month before I turned 36.

You are more than welcome to PM me. Or email me. Whatever works for you. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
M

MicheleGazelle

New member
I was diagnosed the month before I turned 36.

You are more than welcome to PM me. Or email me. Whatever works for you. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
M

MicheleGazelle

New member
I was diagnosed the month before I turned 36.

You are more than welcome to PM me. Or email me. Whatever works for you. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
M

MicheleGazelle

New member
I was diagnosed the month before I turned 36.
<br />
<br />You are more than welcome to PM me. Or email me. Whatever works for you. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
J

JazzysMom

New member
Jenn!

I need to ask you to keep in mind that Michelles case is quite the exception. She hasnt been able to confirm what if any mutations she has & really is completely not the typical CFer case.....

With that in mind...the things that work for her & her son may or may not help anyone else. Although I do agree with her on the inflammation issues that she often addresses, I have to be hesitant when her other ideas comes to CFers.

Sometimes I think she forgets that this has been in question before and I just want to be sure anyone new is aware.
 
J

JazzysMom

New member
Jenn!

I need to ask you to keep in mind that Michelles case is quite the exception. She hasnt been able to confirm what if any mutations she has & really is completely not the typical CFer case.....

With that in mind...the things that work for her & her son may or may not help anyone else. Although I do agree with her on the inflammation issues that she often addresses, I have to be hesitant when her other ideas comes to CFers.

Sometimes I think she forgets that this has been in question before and I just want to be sure anyone new is aware.
 
J

JazzysMom

New member
Jenn!

I need to ask you to keep in mind that Michelles case is quite the exception. She hasnt been able to confirm what if any mutations she has & really is completely not the typical CFer case.....

With that in mind...the things that work for her & her son may or may not help anyone else. Although I do agree with her on the inflammation issues that she often addresses, I have to be hesitant when her other ideas comes to CFers.

Sometimes I think she forgets that this has been in question before and I just want to be sure anyone new is aware.
 
J

JazzysMom

New member
Jenn!

I need to ask you to keep in mind that Michelles case is quite the exception. She hasnt been able to confirm what if any mutations she has & really is completely not the typical CFer case.....

With that in mind...the things that work for her & her son may or may not help anyone else. Although I do agree with her on the inflammation issues that she often addresses, I have to be hesitant when her other ideas comes to CFers.

Sometimes I think she forgets that this has been in question before and I just want to be sure anyone new is aware.
 
J

JazzysMom

New member
Jenn!
<br />
<br />I need to ask you to keep in mind that Michelles case is quite the exception. She hasnt been able to confirm what if any mutations she has & really is completely not the typical CFer case.....
<br />
<br />With that in mind...the things that work for her & her son may or may not help anyone else. Although I do agree with her on the inflammation issues that she often addresses, I have to be hesitant when her other ideas comes to CFers.
<br />
<br />Sometimes I think she forgets that this has been in question before and I just want to be sure anyone new is aware.
<br />
 
M

MicheleGazelle

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JazzysMom</b></i>

Jenn!



I need to ask you to keep in mind that Michelles case is quite the exception. She hasnt been able to confirm what if any mutations she has & really is completely not the typical CFer case.....



With that in mind...the things that work for her & her son may or may not help anyone else. Although I do agree with her on the inflammation issues that she often addresses, I have to be hesitant when her other ideas comes to CFers.



Sometimes I think she forgets that this has been in question before and I just want to be sure anyone new is aware.</end quote></div>

No, I don't ever forget it. I do my level best to speak from first hand experience -- ie "this worked for me" -- or to speak informationally -- ie "this makes me think of water poisoning". There is no treatment or practice that will work equally well for every single person. But I do not see other members suggestions being singled out in this way. I am not the only person with a diagnosis of CF who has found sea salt, alkaline diet and so on helpful.
 
M

MicheleGazelle

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JazzysMom</b></i>

Jenn!



I need to ask you to keep in mind that Michelles case is quite the exception. She hasnt been able to confirm what if any mutations she has & really is completely not the typical CFer case.....



With that in mind...the things that work for her & her son may or may not help anyone else. Although I do agree with her on the inflammation issues that she often addresses, I have to be hesitant when her other ideas comes to CFers.



Sometimes I think she forgets that this has been in question before and I just want to be sure anyone new is aware.</end quote></div>

No, I don't ever forget it. I do my level best to speak from first hand experience -- ie "this worked for me" -- or to speak informationally -- ie "this makes me think of water poisoning". There is no treatment or practice that will work equally well for every single person. But I do not see other members suggestions being singled out in this way. I am not the only person with a diagnosis of CF who has found sea salt, alkaline diet and so on helpful.
 
M

MicheleGazelle

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JazzysMom</b></i>

Jenn!



I need to ask you to keep in mind that Michelles case is quite the exception. She hasnt been able to confirm what if any mutations she has & really is completely not the typical CFer case.....



With that in mind...the things that work for her & her son may or may not help anyone else. Although I do agree with her on the inflammation issues that she often addresses, I have to be hesitant when her other ideas comes to CFers.



Sometimes I think she forgets that this has been in question before and I just want to be sure anyone new is aware.</end quote></div>

No, I don't ever forget it. I do my level best to speak from first hand experience -- ie "this worked for me" -- or to speak informationally -- ie "this makes me think of water poisoning". There is no treatment or practice that will work equally well for every single person. But I do not see other members suggestions being singled out in this way. I am not the only person with a diagnosis of CF who has found sea salt, alkaline diet and so on helpful.
 
M

MicheleGazelle

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JazzysMom</b></i>

Jenn!



I need to ask you to keep in mind that Michelles case is quite the exception. She hasnt been able to confirm what if any mutations she has & really is completely not the typical CFer case.....



With that in mind...the things that work for her & her son may or may not help anyone else. Although I do agree with her on the inflammation issues that she often addresses, I have to be hesitant when her other ideas comes to CFers.



Sometimes I think she forgets that this has been in question before and I just want to be sure anyone new is aware.</end quote>

No, I don't ever forget it. I do my level best to speak from first hand experience -- ie "this worked for me" -- or to speak informationally -- ie "this makes me think of water poisoning". There is no treatment or practice that will work equally well for every single person. But I do not see other members suggestions being singled out in this way. I am not the only person with a diagnosis of CF who has found sea salt, alkaline diet and so on helpful.
 
M

MicheleGazelle

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JazzysMom</b></i>
<br />
<br />Jenn!
<br />
<br />
<br />
<br />I need to ask you to keep in mind that Michelles case is quite the exception. She hasnt been able to confirm what if any mutations she has & really is completely not the typical CFer case.....
<br />
<br />
<br />
<br />With that in mind...the things that work for her & her son may or may not help anyone else. Although I do agree with her on the inflammation issues that she often addresses, I have to be hesitant when her other ideas comes to CFers.
<br />
<br />
<br />
<br />Sometimes I think she forgets that this has been in question before and I just want to be sure anyone new is aware.</end quote>
<br />
<br />No, I don't ever forget it. I do my level best to speak from first hand experience -- ie "this worked for me" -- or to speak informationally -- ie "this makes me think of water poisoning". There is no treatment or practice that will work equally well for every single person. But I do not see other members suggestions being singled out in this way. I am not the only person with a diagnosis of CF who has found sea salt, alkaline diet and so on helpful.
 
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