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CF Parents with CF Children

A

alegris

Guest
Hi,

So as I'm getting older, I've been thinking about starting a family (naturally). My husband goes in to get his carrier test done in a month so we don't know anything yet, but as always, I'm hoping for the best but expecting the worst. My question is are there any parents out there with CF who also have a child/children with CF? Would you care to share a little about your experience, difficulties, health changes, etc.

Much appreciated,

Adrienne - 25/CF
 
A

alegris

Guest
Hi,

So as I'm getting older, I've been thinking about starting a family (naturally). My husband goes in to get his carrier test done in a month so we don't know anything yet, but as always, I'm hoping for the best but expecting the worst. My question is are there any parents out there with CF who also have a child/children with CF? Would you care to share a little about your experience, difficulties, health changes, etc.

Much appreciated,

Adrienne - 25/CF
 
A

alegris

Guest
Hi,

So as I'm getting older, I've been thinking about starting a family (naturally). My husband goes in to get his carrier test done in a month so we don't know anything yet, but as always, I'm hoping for the best but expecting the worst. My question is are there any parents out there with CF who also have a child/children with CF? Would you care to share a little about your experience, difficulties, health changes, etc.

Much appreciated,

Adrienne - 25/CF
 
A

alegris

Guest
Hi,

So as I'm getting older, I've been thinking about starting a family (naturally). My husband goes in to get his carrier test done in a month so we don't know anything yet, but as always, I'm hoping for the best but expecting the worst. My question is are there any parents out there with CF who also have a child/children with CF? Would you care to share a little about your experience, difficulties, health changes, etc.

Much appreciated,

Adrienne - 25/CF
 
A

alegris

Guest
Hi,

So as I'm getting older, I've been thinking about starting a family (naturally). My husband goes in to get his carrier test done in a month so we don't know anything yet, but as always, I'm hoping for the best but expecting the worst. My question is are there any parents out there with CF who also have a child/children with CF? Would you care to share a little about your experience, difficulties, health changes, etc.

Much appreciated,

Adrienne - 25/CF
 
K

kayleesgrandma

New member
This is a sensitive subject, and needs to be approached with care. So, I write with trepidation, as to my feelings about this subject....

I don't in any way object to cfrs having children. But it is hard for me to wrap my mind around a concept of <b>planning</b> on bringing in a child with cf, <b>when you have cf.</b> It's different if both parents are healthy, and you decide to take the chance. But if one of you has CF, and you WANT to have a child with cf?????

I can understand wanting to have a child--and no one should judge you on those feelings--but there is the adoption option--and you could make a difference in another child's life...

How is your husband planning to deal with this? What support system do you have in place? What if you have something in your lungs and you pass it on to your child--maybe shortening her/his life because of this? Everytime you kiss your child, as a cfr--you are placing their life in danger...

Maybe I'm wrong about this, and it will certainly be good to hear from others that are in this kind of situation.

PLEASE NOTE--I AM BY NO MEANS CONDEMNING YOU! THIS IS JUST AN OPINION EXPRESSED BY SOMEONE WHO DOESN'T KNOW THAT MUCH ABOUT IT.

PLEASE KEEP THIS THREAD CIVIL!
 
K

kayleesgrandma

New member
This is a sensitive subject, and needs to be approached with care. So, I write with trepidation, as to my feelings about this subject....

I don't in any way object to cfrs having children. But it is hard for me to wrap my mind around a concept of <b>planning</b> on bringing in a child with cf, <b>when you have cf.</b> It's different if both parents are healthy, and you decide to take the chance. But if one of you has CF, and you WANT to have a child with cf?????

I can understand wanting to have a child--and no one should judge you on those feelings--but there is the adoption option--and you could make a difference in another child's life...

How is your husband planning to deal with this? What support system do you have in place? What if you have something in your lungs and you pass it on to your child--maybe shortening her/his life because of this? Everytime you kiss your child, as a cfr--you are placing their life in danger...

Maybe I'm wrong about this, and it will certainly be good to hear from others that are in this kind of situation.

PLEASE NOTE--I AM BY NO MEANS CONDEMNING YOU! THIS IS JUST AN OPINION EXPRESSED BY SOMEONE WHO DOESN'T KNOW THAT MUCH ABOUT IT.

PLEASE KEEP THIS THREAD CIVIL!
 
K

kayleesgrandma

New member
This is a sensitive subject, and needs to be approached with care. So, I write with trepidation, as to my feelings about this subject....

I don't in any way object to cfrs having children. But it is hard for me to wrap my mind around a concept of <b>planning</b> on bringing in a child with cf, <b>when you have cf.</b> It's different if both parents are healthy, and you decide to take the chance. But if one of you has CF, and you WANT to have a child with cf?????

I can understand wanting to have a child--and no one should judge you on those feelings--but there is the adoption option--and you could make a difference in another child's life...

How is your husband planning to deal with this? What support system do you have in place? What if you have something in your lungs and you pass it on to your child--maybe shortening her/his life because of this? Everytime you kiss your child, as a cfr--you are placing their life in danger...

Maybe I'm wrong about this, and it will certainly be good to hear from others that are in this kind of situation.

PLEASE NOTE--I AM BY NO MEANS CONDEMNING YOU! THIS IS JUST AN OPINION EXPRESSED BY SOMEONE WHO DOESN'T KNOW THAT MUCH ABOUT IT.

PLEASE KEEP THIS THREAD CIVIL!
 
K

kayleesgrandma

New member
This is a sensitive subject, and needs to be approached with care. So, I write with trepidation, as to my feelings about this subject....

I don't in any way object to cfrs having children. But it is hard for me to wrap my mind around a concept of <b>planning</b> on bringing in a child with cf, <b>when you have cf.</b> It's different if both parents are healthy, and you decide to take the chance. But if one of you has CF, and you WANT to have a child with cf?????

I can understand wanting to have a child--and no one should judge you on those feelings--but there is the adoption option--and you could make a difference in another child's life...

How is your husband planning to deal with this? What support system do you have in place? What if you have something in your lungs and you pass it on to your child--maybe shortening her/his life because of this? Everytime you kiss your child, as a cfr--you are placing their life in danger...

Maybe I'm wrong about this, and it will certainly be good to hear from others that are in this kind of situation.

PLEASE NOTE--I AM BY NO MEANS CONDEMNING YOU! THIS IS JUST AN OPINION EXPRESSED BY SOMEONE WHO DOESN'T KNOW THAT MUCH ABOUT IT.

PLEASE KEEP THIS THREAD CIVIL!
 
K

kayleesgrandma

New member
This is a sensitive subject, and needs to be approached with care. So, I write with trepidation, as to my feelings about this subject....

I don't in any way object to cfrs having children. But it is hard for me to wrap my mind around a concept of <b>planning</b> on bringing in a child with cf, <b>when you have cf.</b> It's different if both parents are healthy, and you decide to take the chance. But if one of you has CF, and you WANT to have a child with cf?????

I can understand wanting to have a child--and no one should judge you on those feelings--but there is the adoption option--and you could make a difference in another child's life...

How is your husband planning to deal with this? What support system do you have in place? What if you have something in your lungs and you pass it on to your child--maybe shortening her/his life because of this? Everytime you kiss your child, as a cfr--you are placing their life in danger...

Maybe I'm wrong about this, and it will certainly be good to hear from others that are in this kind of situation.

PLEASE NOTE--I AM BY NO MEANS CONDEMNING YOU! THIS IS JUST AN OPINION EXPRESSED BY SOMEONE WHO DOESN'T KNOW THAT MUCH ABOUT IT.

PLEASE KEEP THIS THREAD CIVIL!
 
A

alegris

Guest
Just want to clarify - I'm not saying that I WANT to have a child with CF or that I'm PLANNING on having a child with CF. This is my thought process this far - thinking about having kids, got the ok from the doctor, next step is my husband getting tested to see if he's a carrier (which we don't know yet!). If he is a carrier, then we will look into alternative options. But through all this thinking, I simply got to thinking if there were CF parents out there who also had a child with CF. Just simply wondering what that would be like. I'm not saying I'm knowlingly going to do it myself! Just wanted to clarify. Adrienne - 25/CF
 
A

alegris

Guest
Just want to clarify - I'm not saying that I WANT to have a child with CF or that I'm PLANNING on having a child with CF. This is my thought process this far - thinking about having kids, got the ok from the doctor, next step is my husband getting tested to see if he's a carrier (which we don't know yet!). If he is a carrier, then we will look into alternative options. But through all this thinking, I simply got to thinking if there were CF parents out there who also had a child with CF. Just simply wondering what that would be like. I'm not saying I'm knowlingly going to do it myself! Just wanted to clarify. Adrienne - 25/CF
 
A

alegris

Guest
Just want to clarify - I'm not saying that I WANT to have a child with CF or that I'm PLANNING on having a child with CF. This is my thought process this far - thinking about having kids, got the ok from the doctor, next step is my husband getting tested to see if he's a carrier (which we don't know yet!). If he is a carrier, then we will look into alternative options. But through all this thinking, I simply got to thinking if there were CF parents out there who also had a child with CF. Just simply wondering what that would be like. I'm not saying I'm knowlingly going to do it myself! Just wanted to clarify. Adrienne - 25/CF
 
A

alegris

Guest
Just want to clarify - I'm not saying that I WANT to have a child with CF or that I'm PLANNING on having a child with CF. This is my thought process this far - thinking about having kids, got the ok from the doctor, next step is my husband getting tested to see if he's a carrier (which we don't know yet!). If he is a carrier, then we will look into alternative options. But through all this thinking, I simply got to thinking if there were CF parents out there who also had a child with CF. Just simply wondering what that would be like. I'm not saying I'm knowlingly going to do it myself! Just wanted to clarify. Adrienne - 25/CF
 
A

alegris

Guest
Just want to clarify - I'm not saying that I WANT to have a child with CF or that I'm PLANNING on having a child with CF. This is my thought process this far - thinking about having kids, got the ok from the doctor, next step is my husband getting tested to see if he's a carrier (which we don't know yet!). If he is a carrier, then we will look into alternative options. But through all this thinking, I simply got to thinking if there were CF parents out there who also had a child with CF. Just simply wondering what that would be like. I'm not saying I'm knowlingly going to do it myself! Just wanted to clarify. Adrienne - 25/CF
 
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