What's new
By:
Filters
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

CFers over 40

S

Swallowtail66

Guest
I am 45.  I was dx at 37 when my children's genetic reports came back positive and different from each other.   I also have asthma.  If the asthma is under control, my FEV 1's are in the 90's.  I seem to have more digestive problems than lung problems.  I am on digestive enzymes and deal with pain and blockages.  I have started taking Amitiza for the digestive problems and I think I feel better.  I still work full-time - usually 11 hours a day 5 days a week.  I am very tired by Friday, but I make it. I feel very blessed to be so healthy at this age. 
 
S

Swallowtail66

Guest
I am 45. I was dx at 37 when my children's genetic reports came back positive and different from each other. I also haveasthma. If the asthma is under control, my FEV 1's are in the 90's. I seem to have more digestive problems than lung problems. I am on digestive enzymes and deal with pain and blockages. I have started taking Amitiza for the digestive problems and I think I feel better. I still work full-time - usually 11 hours a day 5 days a week. I am very tired by Friday, but I make it.I feel very blessed to be so healthy at this age.
 
S

Swallowtail66

Guest
<BR>I am 45. I was dx at 37 when my children's genetic reports came back positive and different from each other. I also haveasthma. If the asthma is under control, my FEV 1's are in the 90's. I seem to have more digestive problems than lung problems. I am on digestive enzymes and deal with pain and blockages. I have started taking Amitiza for the digestive problems and I think I feel better. I still work full-time - usually 11 hours a day 5 days a week. I am very tired by Friday, but I make it.I feel very blessed to be so healthy at this age.
 
D

dbsholes

New member
Hi.  I'm 44 (1/17/67); diagnosed at 8 months.  FEV1 is currently in the low to mid 80s, but it's been as low as 54 and as high as 95 in the last seven years.  Overall I've been lucky -with very mild lung-disease.  The lowest was a result of a fungal infection in 2004.<br><div><div><br></div><div>David</div></div>
 
D

dbsholes

New member
Hi. I'm 44 (1/17/67); diagnosed at 8 months. FEV1 is currently in the low to mid 80s, but it's been as low as 54 and as high as 95 in the last seven years. Overall I've been lucky -with very mild lung-disease. The lowest was a result of a fungal infection in 2004.<br><br>David
 
D

dbsholes

New member
Hi. I'm 44 (1/17/67); diagnosed at 8 months. FEV1 is currently in the low to mid 80s, but it's been as low as 54 and as high as 95 in the last seven years. Overall I've been lucky -with very mild lung-disease. The lowest was a result of a fungal infection in 2004.<br><br>David
 
M

MichaelL

New member
Thanks for creating this thread -- it's encouraging to see all the people over 40!
<br>
<br>I'm 44 and was diagnosed at 34 (10 years ago this month). My FEV1 is around 50% although it's been slightly higher and lower in the last six months. I am pancreatic sufficient. I was working 4 days a week until this year when I had to switch to 3 days (i.e., about 24 hours a week). I'm on long term IV therapy for mycobacterium abscesses and the treatments plus doctor's visits and tests were making it hard to keep up at work.
<br>
<br>My doctor was recently telling me that the CF doctors have started to share information across clinics on patients over 40. She said it helped highlight issues to look out for.
<br><div><br></div><div>PFT = pulmonary function test (i.e., breathing test). My doctor seems to focus most on FEV1 - the amount of air you blow out in the first second of the test.</div>
 
M

MichaelL

New member
Thanks for creating this thread -- it's encouraging to see all the people over 40!
<br>
<br>I'm 44 and was diagnosed at 34 (10 years ago this month). My FEV1 is around 50% although it's been slightly higher and lower in the last six months. I am pancreatic sufficient. I was working 4 days a week until this year when I had to switch to 3 days (i.e., about 24 hours a week). I'm on long term IV therapy for mycobacterium abscesses and the treatments plus doctor's visits and tests were making it hard to keep up at work.
<br>
<br>My doctor was recently telling me that the CF doctors have started to share information across clinics on patients over 40. She said it helped highlight issues to look out for.
<br><br>PFT = pulmonary function test (i.e., breathing test). My doctor seems to focus most on FEV1 - the amount of air you blow out in the first second of the test.
 
M

MichaelL

New member
Thanks for creating this thread -- it's encouraging to see all the people over 40!
<br>
<br>I'm 44 and was diagnosed at 34 (10 years ago this month). My FEV1 is around 50% although it's been slightly higher and lower in the last six months. I am pancreatic sufficient. I was working 4 days a week until this year when I had to switch to 3 days (i.e., about 24 hours a week). I'm on long term IV therapy for mycobacterium abscesses and the treatments plus doctor's visits and tests were making it hard to keep up at work.
<br>
<br>My doctor was recently telling me that the CF doctors have started to share information across clinics on patients over 40. She said it helped highlight issues to look out for.
<br><br>PFT = pulmonary function test (i.e., breathing test). My doctor seems to focus most on FEV1 - the amount of air you blow out in the first second of the test.
 
B

bookworm

Guest
Hi,

I'm 55, diagnosed at 48, borderline pancreatic sufficiency, FEV1 around 60.
 
B

bookworm

Guest
Hi,

I'm 55, diagnosed at 48, borderline pancreatic sufficiency, FEV1 around 60.
 
You must log in or register to reply here.
Top