OK, so I've not been on for awhile cause of vacations and getting a fever when on vacation and ending up in the ER and ...... long story.....
Anyway, my question has to do with a post Amy posted regarding what CFF accredited centers do in order to become or continuing being accredited in terms of CF care.
I noticed they are supposed to do bone scans and OGGTs for diabetes every year.... Hmmmm... I've been to 3 clinics now (all for more than one year) and none of these tests are even considered. These are all accredited centers. So, what gives??? How do they continue to be accredited if they are not following the guidelines for yearly exams? Does anyone's accredited clinic do dexa-scans and OGTTs every year? How about EKGs and tests on your heart? Or, liver tests? Or CT-scans? Bronchs? I guess what I'm getting at is, I've not been to a single clinic that FOLLOWS the rules of the CFF and yet they are still accredited. I actually used to go to a NON-accredited center that DID do such things every year! So, how is it that the 3 clinics that are supposed to be recognized by CFF are falling short, and the one that isn't actually DOES these tests on a regular basis? I'm also curious what, of the above-mentioned tests your center does on a regular basis? I know all the tests I mentioned are not required or recommended by CFF, but I am curious just how comprehensive our care really is.
I usually do PFTs and x-rays and blood work and sputum culture every clinic. Nothing more, nothing less (unless there is a problem). And, I consider my clinics VERY competent and VERY learned on CF care. The one I go to now sees upwards of 500 patients! So, I don't for one moment doubt their care, but I do worry that if you say CFF ONLY accredits clinics that follow these guidelines, this simply is not true. Mine never have and all but one has been accredited. Hmmmm....
Anyway, my question has to do with a post Amy posted regarding what CFF accredited centers do in order to become or continuing being accredited in terms of CF care.
I noticed they are supposed to do bone scans and OGGTs for diabetes every year.... Hmmmm... I've been to 3 clinics now (all for more than one year) and none of these tests are even considered. These are all accredited centers. So, what gives??? How do they continue to be accredited if they are not following the guidelines for yearly exams? Does anyone's accredited clinic do dexa-scans and OGTTs every year? How about EKGs and tests on your heart? Or, liver tests? Or CT-scans? Bronchs? I guess what I'm getting at is, I've not been to a single clinic that FOLLOWS the rules of the CFF and yet they are still accredited. I actually used to go to a NON-accredited center that DID do such things every year! So, how is it that the 3 clinics that are supposed to be recognized by CFF are falling short, and the one that isn't actually DOES these tests on a regular basis? I'm also curious what, of the above-mentioned tests your center does on a regular basis? I know all the tests I mentioned are not required or recommended by CFF, but I am curious just how comprehensive our care really is.
I usually do PFTs and x-rays and blood work and sputum culture every clinic. Nothing more, nothing less (unless there is a problem). And, I consider my clinics VERY competent and VERY learned on CF care. The one I go to now sees upwards of 500 patients! So, I don't for one moment doubt their care, but I do worry that if you say CFF ONLY accredits clinics that follow these guidelines, this simply is not true. Mine never have and all but one has been accredited. Hmmmm....