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CFI

A

anonymous

New member
CFI is a new foundation started by the Chicago CF Care specialist. This foundation is located in Hoffman Estates, Illinois. They will be having their first annual CFI Education retreat. At the Retreat, Dr. David Oenstein, the author of the "CF: A Guide for Patient and Family" will be delivering the keynote lecture. Also for any of you that are from the Chicago area may know Dr. Hans Wessel. He will be honored for his lifetime commitment to caring for those with CF.
CFI is a foundation that will assist in direct need of people with CF.
If you are interested in attending the retreat or hearing more about CFI call 866-269-1105
the retreat is being held Febuary 18th
Michelle
 
A

anonymous

New member
CFI is a new foundation started by the Chicago CF Care specialist. This foundation is located in Hoffman Estates, Illinois. They will be having their first annual CFI Education retreat. At the Retreat, Dr. David Oenstein, the author of the "CF: A Guide for Patient and Family" will be delivering the keynote lecture. Also for any of you that are from the Chicago area may know Dr. Hans Wessel. He will be honored for his lifetime commitment to caring for those with CF.
CFI is a foundation that will assist in direct need of people with CF.
If you are interested in attending the retreat or hearing more about CFI call 866-269-1105
the retreat is being held Febuary 18th
Michelle
 
D

debs2girls

New member
I think that would be awesome to attend, but since I live a couple of states away and cant afford to go...I will just have to read about it from all of you that are closer and able to attend....thanks for the info tho.
Debbie
 
D

debs2girls

New member
I think that would be awesome to attend, but since I live a couple of states away and cant afford to go...I will just have to read about it from all of you that are closer and able to attend....thanks for the info tho.
Debbie
 
A

anonymous

New member
Michelle,

Will you please post more information on the website? Where, when, etc? Can patients attend (those who have not cultured cepacia)
 
A

anonymous

New member
Michelle,

Will you please post more information on the website? Where, when, etc? Can patients attend (those who have not cultured cepacia)
 
A

anonymous

New member
I will gladly post the information that I have.
St. Alexius Medical Hospital approached the Chicago CF care specialist about helping develop a foundation that would assist with direct need of patients. The outcome is CFI (Cystic Fibrosis Institute). The director the foundation is Melinda Bicchinella, a former nurse at Children's memorial hospital that has been very active with patients and families with CF for many years.
The first annual education retreat is being held at the Stonegate Conference Center. This is located at 2401 Higins Road, Hoffman Estates. Mindy would gladly give you more information on the conference and the CFI. Her number is 866-269-1105. It will be held on Feburary 18th. You do need to RSVP with Mindy at the institute. Registration begins a 8:30 am
As far as person with CF attending. The CFI follow the same guide lines as those seen at Great Strides and other outdoor events. They ask that if person with CF attend that they do not culture B. Cepacia.
I do have some flyers about the institute if you would like me to mail some out to you. Send me your email. If you would rather send me your email privately, send to mmohr@sprovieris.com. I can mail or fax the information I have or you can contact Mindy for information.
the institute has been actively working on getting Illinois a state to mandate Cf newborn testing.
Let me know if there are any other questions
Personally, I looking forward and very excited to the the retreat
 
A

anonymous

New member
I will gladly post the information that I have.
St. Alexius Medical Hospital approached the Chicago CF care specialist about helping develop a foundation that would assist with direct need of patients. The outcome is CFI (Cystic Fibrosis Institute). The director the foundation is Melinda Bicchinella, a former nurse at Children's memorial hospital that has been very active with patients and families with CF for many years.
The first annual education retreat is being held at the Stonegate Conference Center. This is located at 2401 Higins Road, Hoffman Estates. Mindy would gladly give you more information on the conference and the CFI. Her number is 866-269-1105. It will be held on Feburary 18th. You do need to RSVP with Mindy at the institute. Registration begins a 8:30 am
As far as person with CF attending. The CFI follow the same guide lines as those seen at Great Strides and other outdoor events. They ask that if person with CF attend that they do not culture B. Cepacia.
I do have some flyers about the institute if you would like me to mail some out to you. Send me your email. If you would rather send me your email privately, send to mmohr@sprovieris.com. I can mail or fax the information I have or you can contact Mindy for information.
the institute has been actively working on getting Illinois a state to mandate Cf newborn testing.
Let me know if there are any other questions
Personally, I looking forward and very excited to the the retreat
 
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