cfrd

[CaliSally]

I love all the comments and personal experience here - I have CFRD and HATE it. If God came to me and told me He would miraculously (sp?) heal one disease - I'd pick the diabetes over the CF, hands down.


Anyway - the only comment I have about feeling the highs and lows>
I was told that our body becomes accustomed to whatever our "normal" is.
For example, in the beginning when mine were over 400, and then drop to 300, I thought I was crashing and would eat, without testing. Same goes the other way. If you normally run low, it will feel like THAT is normal..therefore dropping 20 points doesn't feel like much (like if you were 140 and went to 120 - you might not feel a "crash") However if it's 60 to begin with and you drop 20...well, I hope you understand the thinking here.

Thankfully I learned this early on, about 20 years ago, and I'm surprised how little the doctors tell you these days.

well, hope that is beneficial. Testing IS the key.

Best wishes to all

 

[JustDucky]

I too am relatively new to the dibetes issues too, diagnosed this summer after feeling funny....my sugars were 500 at the time! What is strange is that sometimes my body goes through a period of highs and then I will get alot of near normal readings. My doc says that my pancreas isn't quite burned out yet, that my insulin levels are still fluctuating which makes it sometimes hard to regulate the sugars. Now I am on Lantus with Novolog to cover if I am high enough. I feel really shaky and sweaty around 50. That has happened only a few times to me. I just feel like I am getting the worst sweat attack ever when my sugars plummet. I too am sensitive to insulin. I am not on really high doses, it doesn't take much to drop my sugars. The only time they get high is when I get an infection or if I am on prednisone. When I didn't have DM, prednisone shot my sugars to well over 200, thankfully I haven't had to use prednisone for some time!

I would check with your doc about your dose, dropping down to 35 is really low, I know I would feel like absolute crap if I were that low. Maybe you aren't eating enough to cover your insulin? But, if you are consistantly getting low readings, then your insulin needs to be adjusted it seems. I adjust mine when my pancreas feels like producing some insulin. I check my sugars 4 times a day and whenever I feel funny.

I hope everything turns out better for you! Hugs, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[JustDucky]

I too am relatively new to the dibetes issues too, diagnosed this summer after feeling funny....my sugars were 500 at the time! What is strange is that sometimes my body goes through a period of highs and then I will get alot of near normal readings. My doc says that my pancreas isn't quite burned out yet, that my insulin levels are still fluctuating which makes it sometimes hard to regulate the sugars. Now I am on Lantus with Novolog to cover if I am high enough. I feel really shaky and sweaty around 50. That has happened only a few times to me. I just feel like I am getting the worst sweat attack ever when my sugars plummet. I too am sensitive to insulin. I am not on really high doses, it doesn't take much to drop my sugars. The only time they get high is when I get an infection or if I am on prednisone. When I didn't have DM, prednisone shot my sugars to well over 200, thankfully I haven't had to use prednisone for some time!

I would check with your doc about your dose, dropping down to 35 is really low, I know I would feel like absolute crap if I were that low. Maybe you aren't eating enough to cover your insulin? But, if you are consistantly getting low readings, then your insulin needs to be adjusted it seems. I adjust mine when my pancreas feels like producing some insulin. I check my sugars 4 times a day and whenever I feel funny.

I hope everything turns out better for you! Hugs, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[JustDucky]

I too am relatively new to the dibetes issues too, diagnosed this summer after feeling funny....my sugars were 500 at the time! What is strange is that sometimes my body goes through a period of highs and then I will get alot of near normal readings. My doc says that my pancreas isn't quite burned out yet, that my insulin levels are still fluctuating which makes it sometimes hard to regulate the sugars. Now I am on Lantus with Novolog to cover if I am high enough. I feel really shaky and sweaty around 50. That has happened only a few times to me. I just feel like I am getting the worst sweat attack ever when my sugars plummet. I too am sensitive to insulin. I am not on really high doses, it doesn't take much to drop my sugars. The only time they get high is when I get an infection or if I am on prednisone. When I didn't have DM, prednisone shot my sugars to well over 200, thankfully I haven't had to use prednisone for some time!

I would check with your doc about your dose, dropping down to 35 is really low, I know I would feel like absolute crap if I were that low. Maybe you aren't eating enough to cover your insulin? But, if you are consistantly getting low readings, then your insulin needs to be adjusted it seems. I adjust mine when my pancreas feels like producing some insulin. I check my sugars 4 times a day and whenever I feel funny.

I hope everything turns out better for you! Hugs, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[coltsfan715]

I just came back to reread this post and thought of something else.

The comment that you may not be eating enough to cover your insulin made me think of this. Do you carb count? If you do I found that it was sometimes best for me to dose my insulin AFTER I ate. I would do so immediately after a meal because that way I knew EXACTLY what I had eaten and could give the proper amount of insulin. Whereas if I dosed before I ate I often dosed to high and ended up dealing with lows for hours afterwards because I was playing catch up because I had not eaten enough at meal time.

Don't know if that might be something that would be helpful.

Also a tip that my endocrinology diabetes educator gave me for carb counting was this - typically a serving size is the equivalent of your fist. So make a fist and get a good mental picture of it and the size. Think of that when you are dosing insulin ... say hmmm .. corn is 20 g of carbs per serving ... 1 serving is one fistful .. I have what looks to be 1.5 fistfuls on my plate. It is easier than thinking hmm ... is that a cup lol or 1 1/3 cups of food lol. Well it was easier for me anyway.

Take Care,
Lindsey

 

[coltsfan715]

I just came back to reread this post and thought of something else.

The comment that you may not be eating enough to cover your insulin made me think of this. Do you carb count? If you do I found that it was sometimes best for me to dose my insulin AFTER I ate. I would do so immediately after a meal because that way I knew EXACTLY what I had eaten and could give the proper amount of insulin. Whereas if I dosed before I ate I often dosed to high and ended up dealing with lows for hours afterwards because I was playing catch up because I had not eaten enough at meal time.

Don't know if that might be something that would be helpful.

Also a tip that my endocrinology diabetes educator gave me for carb counting was this - typically a serving size is the equivalent of your fist. So make a fist and get a good mental picture of it and the size. Think of that when you are dosing insulin ... say hmmm .. corn is 20 g of carbs per serving ... 1 serving is one fistful .. I have what looks to be 1.5 fistfuls on my plate. It is easier than thinking hmm ... is that a cup lol or 1 1/3 cups of food lol. Well it was easier for me anyway.

Take Care,
Lindsey

 

[coltsfan715]

I just came back to reread this post and thought of something else.

The comment that you may not be eating enough to cover your insulin made me think of this. Do you carb count? If you do I found that it was sometimes best for me to dose my insulin AFTER I ate. I would do so immediately after a meal because that way I knew EXACTLY what I had eaten and could give the proper amount of insulin. Whereas if I dosed before I ate I often dosed to high and ended up dealing with lows for hours afterwards because I was playing catch up because I had not eaten enough at meal time.

Don't know if that might be something that would be helpful.

Also a tip that my endocrinology diabetes educator gave me for carb counting was this - typically a serving size is the equivalent of your fist. So make a fist and get a good mental picture of it and the size. Think of that when you are dosing insulin ... say hmmm .. corn is 20 g of carbs per serving ... 1 serving is one fistful .. I have what looks to be 1.5 fistfuls on my plate. It is easier than thinking hmm ... is that a cup lol or 1 1/3 cups of food lol. Well it was easier for me anyway.

Take Care,
Lindsey

 

[Liamsmommy]

I dont know if this will be much help........I have a 2 year old with type one diabetes and its the pits! I can relate to how frustrating it can be....I pray every day for good sugars everything tends to be an up and down roller coaster......

Emma was dx at 14 months old her sugar was 74 that's canadian so its about 1332 in the US. she was a very sick baby! no one could believe that she was still alive let alone awake and talking. Because her sugars had run so high for so long anything below 13 (240 US) you would think she was low, she would get all sweaty very pale. After about 2 months of control she started to show her symptoms of a high over 13 (240) by just being down right nasty! and her lows Below 4 (72) by getting shaky and sweaty all the typical signs.....

After that she lost all sense of lows! the endocrine. told us that it was because she was having to many low readings and her body was getting used to being low he told us that we need to let her run between 6 and 12 (108- 220) and get rid of the lows other wise she would continue to not feel her lows.... she could be 1.8 (32) and still be happy and playing you would never know that she was low! the poor baby gets poked 8-15 times a day depending on how our morning is!

Another thing I have learned about Diabetes is that everything affects the sugar ie. stress, illness, activity ect. I find that if Emma is having a day where she's not moving around a whole lot and she's just relaxing her sugars tend to run higher then the norm. so I give her more insulin and then the next day she will be running all over the place and taking many lows! If she's not feeling well or even a few days before she gets sick her sugars run high.... Food plays a big role in everything two. I have been trying to learn more about the high and low index of foods. trying to get all meals either with a low index (food takes longer to spike the sugars so the insulin has time to work) and med. index meals so that her sugar doesn't have the chance to spike.

One last thing (sorry this is so long) My bigest blessing is the insulin pump. Since pump her sugar have been very good its easier to get controll on sick days and all if at all possible I would look into it she is now starting to feel her lows again..

Hope some of this help good luck!

thoughts and prayers
Shawna

 

[Liamsmommy]

I dont know if this will be much help........I have a 2 year old with type one diabetes and its the pits! I can relate to how frustrating it can be....I pray every day for good sugars everything tends to be an up and down roller coaster......

Emma was dx at 14 months old her sugar was 74 that's canadian so its about 1332 in the US. she was a very sick baby! no one could believe that she was still alive let alone awake and talking. Because her sugars had run so high for so long anything below 13 (240 US) you would think she was low, she would get all sweaty very pale. After about 2 months of control she started to show her symptoms of a high over 13 (240) by just being down right nasty! and her lows Below 4 (72) by getting shaky and sweaty all the typical signs.....

After that she lost all sense of lows! the endocrine. told us that it was because she was having to many low readings and her body was getting used to being low he told us that we need to let her run between 6 and 12 (108- 220) and get rid of the lows other wise she would continue to not feel her lows.... she could be 1.8 (32) and still be happy and playing you would never know that she was low! the poor baby gets poked 8-15 times a day depending on how our morning is!

Another thing I have learned about Diabetes is that everything affects the sugar ie. stress, illness, activity ect. I find that if Emma is having a day where she's not moving around a whole lot and she's just relaxing her sugars tend to run higher then the norm. so I give her more insulin and then the next day she will be running all over the place and taking many lows! If she's not feeling well or even a few days before she gets sick her sugars run high.... Food plays a big role in everything two. I have been trying to learn more about the high and low index of foods. trying to get all meals either with a low index (food takes longer to spike the sugars so the insulin has time to work) and med. index meals so that her sugar doesn't have the chance to spike.

One last thing (sorry this is so long) My bigest blessing is the insulin pump. Since pump her sugar have been very good its easier to get controll on sick days and all if at all possible I would look into it she is now starting to feel her lows again..

Hope some of this help good luck!

thoughts and prayers
Shawna

 

[Liamsmommy]

I dont know if this will be much help........I have a 2 year old with type one diabetes and its the pits! I can relate to how frustrating it can be....I pray every day for good sugars everything tends to be an up and down roller coaster......

Emma was dx at 14 months old her sugar was 74 that's canadian so its about 1332 in the US. she was a very sick baby! no one could believe that she was still alive let alone awake and talking. Because her sugars had run so high for so long anything below 13 (240 US) you would think she was low, she would get all sweaty very pale. After about 2 months of control she started to show her symptoms of a high over 13 (240) by just being down right nasty! and her lows Below 4 (72) by getting shaky and sweaty all the typical signs.....

After that she lost all sense of lows! the endocrine. told us that it was because she was having to many low readings and her body was getting used to being low he told us that we need to let her run between 6 and 12 (108- 220) and get rid of the lows other wise she would continue to not feel her lows.... she could be 1.8 (32) and still be happy and playing you would never know that she was low! the poor baby gets poked 8-15 times a day depending on how our morning is!

Another thing I have learned about Diabetes is that everything affects the sugar ie. stress, illness, activity ect. I find that if Emma is having a day where she's not moving around a whole lot and she's just relaxing her sugars tend to run higher then the norm. so I give her more insulin and then the next day she will be running all over the place and taking many lows! If she's not feeling well or even a few days before she gets sick her sugars run high.... Food plays a big role in everything two. I have been trying to learn more about the high and low index of foods. trying to get all meals either with a low index (food takes longer to spike the sugars so the insulin has time to work) and med. index meals so that her sugar doesn't have the chance to spike.

One last thing (sorry this is so long) My bigest blessing is the insulin pump. Since pump her sugar have been very good its easier to get controll on sick days and all if at all possible I would look into it she is now starting to feel her lows again..

Hope some of this help good luck!

thoughts and prayers
Shawna

 

[scabaskiblio]

Erin: I was recently diagnosed with CFRD, as well. I got put on insulin about two months ago. It's hard to believe you can't feel when you are as low as 35. When I get low I shake and sweat like crazy! Alternately, I can tell when I am high because I get a 'tight' feeling in my forehead and my vision gets really swimmy. My doctor made me go to diabetes education right after I was diagnosed. I think this is protocol at most CF centers. Anyway, they will teach you there how to dose yourself for meals. Mostly it has to do with how much you eat and the amount of carbs in the food. You may be eating/drinking the same things but getting different results due to the quantity you are consuming. Also, things like stress, menstruation, exercise and illness have an effect on blood sugar readings. But the real reason I am responding to your post: Are you from Cleveland? I noticed you mention you are a Browns fan. I was born and raised in Cleveland. You must really appreciate "the underdog" if you are a Browns fan!

 

[scabaskiblio]

Erin: I was recently diagnosed with CFRD, as well. I got put on insulin about two months ago. It's hard to believe you can't feel when you are as low as 35. When I get low I shake and sweat like crazy! Alternately, I can tell when I am high because I get a 'tight' feeling in my forehead and my vision gets really swimmy. My doctor made me go to diabetes education right after I was diagnosed. I think this is protocol at most CF centers. Anyway, they will teach you there how to dose yourself for meals. Mostly it has to do with how much you eat and the amount of carbs in the food. You may be eating/drinking the same things but getting different results due to the quantity you are consuming. Also, things like stress, menstruation, exercise and illness have an effect on blood sugar readings. But the real reason I am responding to your post: Are you from Cleveland? I noticed you mention you are a Browns fan. I was born and raised in Cleveland. You must really appreciate "the underdog" if you are a Browns fan!

 

[scabaskiblio]

Erin: I was recently diagnosed with CFRD, as well. I got put on insulin about two months ago. It's hard to believe you can't feel when you are as low as 35. When I get low I shake and sweat like crazy! Alternately, I can tell when I am high because I get a 'tight' feeling in my forehead and my vision gets really swimmy. My doctor made me go to diabetes education right after I was diagnosed. I think this is protocol at most CF centers. Anyway, they will teach you there how to dose yourself for meals. Mostly it has to do with how much you eat and the amount of carbs in the food. You may be eating/drinking the same things but getting different results due to the quantity you are consuming. Also, things like stress, menstruation, exercise and illness have an effect on blood sugar readings. But the real reason I am responding to your post: Are you from Cleveland? I noticed you mention you are a Browns fan. I was born and raised in Cleveland. You must really appreciate "the underdog" if you are a Browns fan!

 

[scabaskiblio]

Erin: I was recently diagnosed with CFRD, as well. I got put on insulin about two months ago. It's hard to believe you can't feel when you are as low as 35. When I get low I shake and sweat like crazy! Alternately, I can tell when I am high because I get a 'tight' feeling in my forehead and my vision gets really swimmy. My doctor made me go to diabetes education right after I was diagnosed. I think this is protocol at most CF centers. Anyway, they will teach you there how to dose yourself for meals. Mostly it has to do with how much you eat and the amount of carbs in the food. You may be eating/drinking the same things but getting different results due to the quantity you are consuming. Also, things like stress, menstruation, exercise and illness have an effect on blood sugar readings. But the real reason I am responding to your post: Are you from Cleveland? I noticed you mention you are a Browns fan. I was born and raised in Cleveland. You must really appreciate "the underdog" if you are a Browns fan!

 

[scabaskiblio]

Erin: I was recently diagnosed with CFRD, as well. I got put on insulin about two months ago. It's hard to believe you can't feel when you are as low as 35. When I get low I shake and sweat like crazy! Alternately, I can tell when I am high because I get a 'tight' feeling in my forehead and my vision gets really swimmy. My doctor made me go to diabetes education right after I was diagnosed. I think this is protocol at most CF centers. Anyway, they will teach you there how to dose yourself for meals. Mostly it has to do with how much you eat and the amount of carbs in the food. You may be eating/drinking the same things but getting different results due to the quantity you are consuming. Also, things like stress, menstruation, exercise and illness have an effect on blood sugar readings. But the real reason I am responding to your post: Are you from Cleveland? I noticed you mention you are a Browns fan. I was born and raised in Cleveland. You must really appreciate "the underdog" if you are a Browns fan!

 

[scabaskiblio]

Erin: I was recently diagnosed with CFRD, as well. I got put on insulin about two months ago. It's hard to believe you can't feel when you are as low as 35. When I get low I shake and sweat like crazy! Alternately, I can tell when I am high because I get a 'tight' feeling in my forehead and my vision gets really swimmy. My doctor made me go to diabetes education right after I was diagnosed. I think this is protocol at most CF centers. Anyway, they will teach you there how to dose yourself for meals. Mostly it has to do with how much you eat and the amount of carbs in the food. You may be eating/drinking the same things but getting different results due to the quantity you are consuming. Also, things like stress, menstruation, exercise and illness have an effect on blood sugar readings. But the real reason I am responding to your post: Are you from Cleveland? I noticed you mention you are a Browns fan. I was born and raised in Cleveland. You must really appreciate "the underdog" if you are a Browns fan!