Child life intern - help with CF project

[Jess21]

Hi everyone, I am currently a Child life intern in WA. I am working on my intern project and wanted to focus on teenagers who are critically ill and Cystic Fibrosis came to mind.

so if you don't mind could you please reply to some questions or just give me some advice or thoughts. i won't use any names in my project and it will remain confidential. I would just like to create some sort of resource for teens here who are strugglin with this.

What motivates you to continue with your treatment and keep your spirits up? Is there anything that child life does or can do to help you?

what helps you get throug

thank you so much and once again, please feel free to add anything you feel would be important.

 

[Jess21]

Hi everyone, I am currently a Child life intern in WA. I am working on my intern project and wanted to focus on teenagers who are critically ill and Cystic Fibrosis came to mind.

so if you don't mind could you please reply to some questions or just give me some advice or thoughts. i won't use any names in my project and it will remain confidential. I would just like to create some sort of resource for teens here who are strugglin with this.

What motivates you to continue with your treatment and keep your spirits up? Is there anything that child life does or can do to help you?

what helps you get throug

thank you so much and once again, please feel free to add anything you feel would be important.

 

[Jess21]

Hi everyone, I am currently a Child life intern in WA. I am working on my intern project and wanted to focus on teenagers who are critically ill and Cystic Fibrosis came to mind.

so if you don't mind could you please reply to some questions or just give me some advice or thoughts. i won't use any names in my project and it will remain confidential. I would just like to create some sort of resource for teens here who are strugglin with this.

What motivates you to continue with your treatment and keep your spirits up? Is there anything that child life does or can do to help you?

what helps you get throug

thank you so much and once again, please feel free to add anything you feel would be important.

 

[Jess21]

Hi everyone, I am currently a Child life intern in WA. I am working on my intern project and wanted to focus on teenagers who are critically ill and Cystic Fibrosis came to mind.

so if you don't mind could you please reply to some questions or just give me some advice or thoughts. i won't use any names in my project and it will remain confidential. I would just like to create some sort of resource for teens here who are strugglin with this.

What motivates you to continue with your treatment and keep your spirits up? Is there anything that child life does or can do to help you?

what helps you get throug

thank you so much and once again, please feel free to add anything you feel would be important.

 

[Jess21]

Hi everyone, I am currently a Child life intern in WA. I am working on my intern project and wanted to focus on teenagers who are critically ill and Cystic Fibrosis came to mind.
<br />
<br />so if you don't mind could you please reply to some questions or just give me some advice or thoughts. i won't use any names in my project and it will remain confidential. I would just like to create some sort of resource for teens here who are strugglin with this.
<br />
<br />What motivates you to continue with your treatment and keep your spirits up? Is there anything that child life does or can do to help you?
<br />
<br />what helps you get throug
<br />
<br />thank you so much and once again, please feel free to add anything you feel would be important.

 

[Mommy2Zeke]

Jess, you might post this in the teenage section of the forums.

 

[Mommy2Zeke]

Jess, you might post this in the teenage section of the forums.

 

[Mommy2Zeke]

Jess, you might post this in the teenage section of the forums.

 

[Mommy2Zeke]

Jess, you might post this in the teenage section of the forums.

 

[Mommy2Zeke]

Jess, you might post this in the teenage section of the forums.

 

[Jess21]

I posted it in adult and teenager section.

 

[Jess21]

I posted it in adult and teenager section.

 

[Jess21]

I posted it in adult and teenager section.

 

[Jess21]

I posted it in adult and teenager section.

 

[Jess21]

I posted it in adult and teenager section.

 

[LouLou]

Hi Jess, I'm 31 but was hospitalized when I was 18. I'll think back to then and comment as such. I was not in-patient at any other time during my teen years.

What motivated me to be compliant was that I wanted to one day be able to get married and have a baby. I knew if I was sickly I wouldn't be as attractive as a spouse. Nor would I be able to do the activities I enjoy and attract the type of person I wanted. If I was too sick it wouldn't be recommended for me to have a baby nor would I be around in the future to care for my child. Big picture, I've always been motivated by a seed my parents planted in my head that is coming true now with V770 (I'm G551D) that if and when a cure came through it would stop the progression in it's tracks but not fix the damage done.

Childlife having crafts for me helped my spirits while in patient. Now I think it would be fun to skype with other patients also "in the hole" if I were a teen. Additionally, I enjoyed being bestowed gifts each day (handmade blanket, giftcards, and such). I think this was child life but perhaps some other group.

 

[LouLou]

Hi Jess, I'm 31 but was hospitalized when I was 18. I'll think back to then and comment as such. I was not in-patient at any other time during my teen years.

What motivated me to be compliant was that I wanted to one day be able to get married and have a baby. I knew if I was sickly I wouldn't be as attractive as a spouse. Nor would I be able to do the activities I enjoy and attract the type of person I wanted. If I was too sick it wouldn't be recommended for me to have a baby nor would I be around in the future to care for my child. Big picture, I've always been motivated by a seed my parents planted in my head that is coming true now with V770 (I'm G551D) that if and when a cure came through it would stop the progression in it's tracks but not fix the damage done.

Childlife having crafts for me helped my spirits while in patient. Now I think it would be fun to skype with other patients also "in the hole" if I were a teen. Additionally, I enjoyed being bestowed gifts each day (handmade blanket, giftcards, and such). I think this was child life but perhaps some other group.

 

[LouLou]

Hi Jess, I'm 31 but was hospitalized when I was 18. I'll think back to then and comment as such. I was not in-patient at any other time during my teen years.

What motivated me to be compliant was that I wanted to one day be able to get married and have a baby. I knew if I was sickly I wouldn't be as attractive as a spouse. Nor would I be able to do the activities I enjoy and attract the type of person I wanted. If I was too sick it wouldn't be recommended for me to have a baby nor would I be around in the future to care for my child. Big picture, I've always been motivated by a seed my parents planted in my head that is coming true now with V770 (I'm G551D) that if and when a cure came through it would stop the progression in it's tracks but not fix the damage done.

Childlife having crafts for me helped my spirits while in patient. Now I think it would be fun to skype with other patients also "in the hole" if I were a teen. Additionally, I enjoyed being bestowed gifts each day (handmade blanket, giftcards, and such). I think this was child life but perhaps some other group.

 

[LouLou]

Hi Jess, I'm 31 but was hospitalized when I was 18. I'll think back to then and comment as such. I was not in-patient at any other time during my teen years.

What motivated me to be compliant was that I wanted to one day be able to get married and have a baby. I knew if I was sickly I wouldn't be as attractive as a spouse. Nor would I be able to do the activities I enjoy and attract the type of person I wanted. If I was too sick it wouldn't be recommended for me to have a baby nor would I be around in the future to care for my child. Big picture, I've always been motivated by a seed my parents planted in my head that is coming true now with V770 (I'm G551D) that if and when a cure came through it would stop the progression in it's tracks but not fix the damage done.

Childlife having crafts for me helped my spirits while in patient. Now I think it would be fun to skype with other patients also "in the hole" if I were a teen. Additionally, I enjoyed being bestowed gifts each day (handmade blanket, giftcards, and such). I think this was child life but perhaps some other group.

 

[LouLou]

Hi Jess, I'm 31 but was hospitalized when I was 18. I'll think back to then and comment as such. I was not in-patient at any other time during my teen years.
<br />
<br />What motivated me to be compliant was that I wanted to one day be able to get married and have a baby. I knew if I was sickly I wouldn't be as attractive as a spouse. Nor would I be able to do the activities I enjoy and attract the type of person I wanted. If I was too sick it wouldn't be recommended for me to have a baby nor would I be around in the future to care for my child. Big picture, I've always been motivated by a seed my parents planted in my head that is coming true now with V770 (I'm G551D) that if and when a cure came through it would stop the progression in it's tracks but not fix the damage done.
<br />
<br />Childlife having crafts for me helped my spirits while in patient. Now I think it would be fun to skype with other patients also "in the hole" if I were a teen. Additionally, I enjoyed being bestowed gifts each day (handmade blanket, giftcards, and such). I think this was child life but perhaps some other group.