What's new
By:
Filters
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Clinic visit today

N

NYCLawGirl

New member
So I went to clinic this morning and my pfts (fev1) were up from my baseline 36% to 40%! NOt only that but I have gained weight and am feeling great.

I credit the AL study for this. I just managed to get on under expanded access this past february and I feel like a whole new person! I still have to get evaluated for transplant, but honestly I feel like I'm walking on air!

Just wanted to share. I hope everyone is feeling well <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
N

NYCLawGirl

New member
So I went to clinic this morning and my pfts (fev1) were up from my baseline 36% to 40%! NOt only that but I have gained weight and am feeling great.

I credit the AL study for this. I just managed to get on under expanded access this past february and I feel like a whole new person! I still have to get evaluated for transplant, but honestly I feel like I'm walking on air!

Just wanted to share. I hope everyone is feeling well <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
N

NYCLawGirl

New member
So I went to clinic this morning and my pfts (fev1) were up from my baseline 36% to 40%! NOt only that but I have gained weight and am feeling great.

I credit the AL study for this. I just managed to get on under expanded access this past february and I feel like a whole new person! I still have to get evaluated for transplant, but honestly I feel like I'm walking on air!

Just wanted to share. I hope everyone is feeling well <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
N

NYCLawGirl

New member
So I went to clinic this morning and my pfts (fev1) were up from my baseline 36% to 40%! NOt only that but I have gained weight and am feeling great.

I credit the AL study for this. I just managed to get on under expanded access this past february and I feel like a whole new person! I still have to get evaluated for transplant, but honestly I feel like I'm walking on air!

Just wanted to share. I hope everyone is feeling well <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
N

NYCLawGirl

New member
So I went to clinic this morning and my pfts (fev1) were up from my baseline 36% to 40%! NOt only that but I have gained weight and am feeling great.
<br />
<br />I credit the AL study for this. I just managed to get on under expanded access this past february and I feel like a whole new person! I still have to get evaluated for transplant, but honestly I feel like I'm walking on air!
<br />
<br />Just wanted to share. I hope everyone is feeling well <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
J

jamie6girl

New member
Yay! I'm proud of you! It's always a great feeling to have a good visit after so many crappy ones. Congratulations! <img src="i/expressions/heart.gif" border="0">
 
J

jamie6girl

New member
Yay! I'm proud of you! It's always a great feeling to have a good visit after so many crappy ones. Congratulations! <img src="i/expressions/heart.gif" border="0">
 
J

jamie6girl

New member
Yay! I'm proud of you! It's always a great feeling to have a good visit after so many crappy ones. Congratulations! <img src="i/expressions/heart.gif" border="0">
 
J

jamie6girl

New member
Yay! I'm proud of you! It's always a great feeling to have a good visit after so many crappy ones. Congratulations! <img src="i/expressions/heart.gif" border="0">
 
J

jamie6girl

New member
Yay! I'm proud of you! It's always a great feeling to have a good visit after so many crappy ones. Congratulations! <img src="i/expressions/heart.gif" border="0">
 
S

Skye

New member
Oh, Piper I am sooooo happy for you. I know exactly where you are at and I know you must feel soo good right now. Keep going and keep going! AL is awesome isn't it. You can feel really good about taking the first step and getting evaluated and then you can keep moving toward stayin' off that list<img src="i/expressions/face-icon-small-smile.gif" border="0">

Hugs and big congrats,
Karen
 
S

Skye

New member
Oh, Piper I am sooooo happy for you. I know exactly where you are at and I know you must feel soo good right now. Keep going and keep going! AL is awesome isn't it. You can feel really good about taking the first step and getting evaluated and then you can keep moving toward stayin' off that list<img src="i/expressions/face-icon-small-smile.gif" border="0">

Hugs and big congrats,
Karen
 
S

Skye

New member
Oh, Piper I am sooooo happy for you. I know exactly where you are at and I know you must feel soo good right now. Keep going and keep going! AL is awesome isn't it. You can feel really good about taking the first step and getting evaluated and then you can keep moving toward stayin' off that list<img src="i/expressions/face-icon-small-smile.gif" border="0">

Hugs and big congrats,
Karen
 
S

Skye

New member
Oh, Piper I am sooooo happy for you. I know exactly where you are at and I know you must feel soo good right now. Keep going and keep going! AL is awesome isn't it. You can feel really good about taking the first step and getting evaluated and then you can keep moving toward stayin' off that list<img src="i/expressions/face-icon-small-smile.gif" border="0">

Hugs and big congrats,
Karen
 
S

Skye

New member
Oh, Piper I am sooooo happy for you. I know exactly where you are at and I know you must feel soo good right now. Keep going and keep going! AL is awesome isn't it. You can feel really good about taking the first step and getting evaluated and then you can keep moving toward stayin' off that list<img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />Hugs and big congrats,
<br />Karen
 
You must log in or register to reply here.
Top