What's new
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

College

HBanana

New member
I recently found out that CF is on one of the "lists" the colleges have as a disability... those with disabilties are more likely to get in that someone healthy cuz the college has to meet a certin diversity requirement. Did any of you use this to your advantage? Did it affect how the college treated you (i heard of some CFers getting their own dorm room b/c the college didn't want to be held liable for getting them sick). any other aspects it affected???
 

HBanana

New member
I recently found out that CF is on one of the "lists" the colleges have as a disability... those with disabilties are more likely to get in that someone healthy cuz the college has to meet a certin diversity requirement. Did any of you use this to your advantage? Did it affect how the college treated you (i heard of some CFers getting their own dorm room b/c the college didn't want to be held liable for getting them sick). any other aspects it affected???
 

HBanana

New member
I recently found out that CF is on one of the "lists" the colleges have as a disability... those with disabilties are more likely to get in that someone healthy cuz the college has to meet a certin diversity requirement. Did any of you use this to your advantage? Did it affect how the college treated you (i heard of some CFers getting their own dorm room b/c the college didn't want to be held liable for getting them sick). any other aspects it affected???
 

HBanana

New member
I recently found out that CF is on one of the "lists" the colleges have as a disability... those with disabilties are more likely to get in that someone healthy cuz the college has to meet a certin diversity requirement. Did any of you use this to your advantage? Did it affect how the college treated you (i heard of some CFers getting their own dorm room b/c the college didn't want to be held liable for getting them sick). any other aspects it affected???
 

HBanana

New member
I recently found out that CF is on one of the "lists" the colleges have as a disability... those with disabilties are more likely to get in that someone healthy cuz the college has to meet a certin diversity requirement. Did any of you use this to your advantage? Did it affect how the college treated you (i heard of some CFers getting their own dorm room b/c the college didn't want to be held liable for getting them sick). any other aspects it affected???
 

HBanana

New member
I recently found out that CF is on one of the "lists" the colleges have as a disability... those with disabilties are more likely to get in that someone healthy cuz the college has to meet a certin diversity requirement. Did any of you use this to your advantage? Did it affect how the college treated you (i heard of some CFers getting their own dorm room b/c the college didn't want to be held liable for getting them sick). any other aspects it affected???
 

lightNlife

New member
I used my experience with CF to write a great essay that was part of my application. I did not live in the dorms in college, however, my parents and I did look into getting a single dorm room if I did live on campus. We would not have even considered that an option, except for the fact that the housing director at the school I went to has a daughter with CF, so he was willing to work something out for us.

At first I didn't tell people at college I had CF. Then there was a quarter where I needed to retroactively withdraw from my classes because I got sick and missed my final exams. At that point I went to the dean of student affairs with a letter from my doctor explaining CF and what reasonable accommodations I needed in order to get the most out of my college experience. That letter went in my file, and we also brought a copy of it to the student special services office. They arranged for me to have a note-taker in class, or in some cases, for my professor to provide his lecture slides to me so in case I missed class. I also had a tutor come to the hospital when I was having a tune-up.

One of the most important things that student special services was able to do for me was to arrange with the environmental health and safety office to get me a specially fit respirator mask to wear in organic chemistry lab. I was a science major, and o-chem was something I had to take (I LOVED it by the way.) However, nearly all the chemicals we worked with were aromatic hydrocarbons, which are a respiratory concern. Even with the fume hoods, I had to be careful, especially if someone dropped their test tube or spilled something like acetone.

I don't think I used CF to gain an advantage, but I did make sure to ask for assistance on the things that I needed to stay competitive in my class. When you're a science major at a research university, things can be pretty cut-throat. I was a very serious student, but without the note-taking services and tutoring when I missed class, I would have had a more frustrating time than I already did.

One of the best things I did, knowing that I'd have to work hard to keep up when CF slowed me down, was that I started taking college courses as a high school student. By the time I was actually in college, I had already knocked out 10 classes toward my degree. That way my academic standing never faltered. I took full loads (12 unites) every quarter my first year because I needed to in order to stay on my parents' insurance. The first quarter of my sophomore year I got a part-time job at a environmental engineering and research lab. I worked anywhere from 12-20 hours a week for the next few years. My senior year I was recommended for another research position at UC Irvine, and like an idiot, I thought I could handle that, my lab job and classes at UC Riverside, my health, being a newlywed, and commuting 200 miles a day.

I got sick, but I continued to push myself because I wanted so badly to graduate. There were times when my parents and I didn't think I'd make it. Eventually I pared it all down, and by graduation I was in much better shape. I love seeing my diploma on the wall, but I wouldn't recommend ANYONE push themselves as hard as I had. I can't even stand to look at my graduation pictures because of how visibly sick I was.

That's my college experience. I'm fortunate to have survived. I couldn't have done it without the support of my husband and parents. I'm especially thankful that my parents lived so close to the campus. I ended up spending the night there many times when I was too tired to drive home to my husband.
 

lightNlife

New member
I used my experience with CF to write a great essay that was part of my application. I did not live in the dorms in college, however, my parents and I did look into getting a single dorm room if I did live on campus. We would not have even considered that an option, except for the fact that the housing director at the school I went to has a daughter with CF, so he was willing to work something out for us.

At first I didn't tell people at college I had CF. Then there was a quarter where I needed to retroactively withdraw from my classes because I got sick and missed my final exams. At that point I went to the dean of student affairs with a letter from my doctor explaining CF and what reasonable accommodations I needed in order to get the most out of my college experience. That letter went in my file, and we also brought a copy of it to the student special services office. They arranged for me to have a note-taker in class, or in some cases, for my professor to provide his lecture slides to me so in case I missed class. I also had a tutor come to the hospital when I was having a tune-up.

One of the most important things that student special services was able to do for me was to arrange with the environmental health and safety office to get me a specially fit respirator mask to wear in organic chemistry lab. I was a science major, and o-chem was something I had to take (I LOVED it by the way.) However, nearly all the chemicals we worked with were aromatic hydrocarbons, which are a respiratory concern. Even with the fume hoods, I had to be careful, especially if someone dropped their test tube or spilled something like acetone.

I don't think I used CF to gain an advantage, but I did make sure to ask for assistance on the things that I needed to stay competitive in my class. When you're a science major at a research university, things can be pretty cut-throat. I was a very serious student, but without the note-taking services and tutoring when I missed class, I would have had a more frustrating time than I already did.

One of the best things I did, knowing that I'd have to work hard to keep up when CF slowed me down, was that I started taking college courses as a high school student. By the time I was actually in college, I had already knocked out 10 classes toward my degree. That way my academic standing never faltered. I took full loads (12 unites) every quarter my first year because I needed to in order to stay on my parents' insurance. The first quarter of my sophomore year I got a part-time job at a environmental engineering and research lab. I worked anywhere from 12-20 hours a week for the next few years. My senior year I was recommended for another research position at UC Irvine, and like an idiot, I thought I could handle that, my lab job and classes at UC Riverside, my health, being a newlywed, and commuting 200 miles a day.

I got sick, but I continued to push myself because I wanted so badly to graduate. There were times when my parents and I didn't think I'd make it. Eventually I pared it all down, and by graduation I was in much better shape. I love seeing my diploma on the wall, but I wouldn't recommend ANYONE push themselves as hard as I had. I can't even stand to look at my graduation pictures because of how visibly sick I was.

That's my college experience. I'm fortunate to have survived. I couldn't have done it without the support of my husband and parents. I'm especially thankful that my parents lived so close to the campus. I ended up spending the night there many times when I was too tired to drive home to my husband.
 

lightNlife

New member
I used my experience with CF to write a great essay that was part of my application. I did not live in the dorms in college, however, my parents and I did look into getting a single dorm room if I did live on campus. We would not have even considered that an option, except for the fact that the housing director at the school I went to has a daughter with CF, so he was willing to work something out for us.

At first I didn't tell people at college I had CF. Then there was a quarter where I needed to retroactively withdraw from my classes because I got sick and missed my final exams. At that point I went to the dean of student affairs with a letter from my doctor explaining CF and what reasonable accommodations I needed in order to get the most out of my college experience. That letter went in my file, and we also brought a copy of it to the student special services office. They arranged for me to have a note-taker in class, or in some cases, for my professor to provide his lecture slides to me so in case I missed class. I also had a tutor come to the hospital when I was having a tune-up.

One of the most important things that student special services was able to do for me was to arrange with the environmental health and safety office to get me a specially fit respirator mask to wear in organic chemistry lab. I was a science major, and o-chem was something I had to take (I LOVED it by the way.) However, nearly all the chemicals we worked with were aromatic hydrocarbons, which are a respiratory concern. Even with the fume hoods, I had to be careful, especially if someone dropped their test tube or spilled something like acetone.

I don't think I used CF to gain an advantage, but I did make sure to ask for assistance on the things that I needed to stay competitive in my class. When you're a science major at a research university, things can be pretty cut-throat. I was a very serious student, but without the note-taking services and tutoring when I missed class, I would have had a more frustrating time than I already did.

One of the best things I did, knowing that I'd have to work hard to keep up when CF slowed me down, was that I started taking college courses as a high school student. By the time I was actually in college, I had already knocked out 10 classes toward my degree. That way my academic standing never faltered. I took full loads (12 unites) every quarter my first year because I needed to in order to stay on my parents' insurance. The first quarter of my sophomore year I got a part-time job at a environmental engineering and research lab. I worked anywhere from 12-20 hours a week for the next few years. My senior year I was recommended for another research position at UC Irvine, and like an idiot, I thought I could handle that, my lab job and classes at UC Riverside, my health, being a newlywed, and commuting 200 miles a day.

I got sick, but I continued to push myself because I wanted so badly to graduate. There were times when my parents and I didn't think I'd make it. Eventually I pared it all down, and by graduation I was in much better shape. I love seeing my diploma on the wall, but I wouldn't recommend ANYONE push themselves as hard as I had. I can't even stand to look at my graduation pictures because of how visibly sick I was.

That's my college experience. I'm fortunate to have survived. I couldn't have done it without the support of my husband and parents. I'm especially thankful that my parents lived so close to the campus. I ended up spending the night there many times when I was too tired to drive home to my husband.
 

lightNlife

New member
I used my experience with CF to write a great essay that was part of my application. I did not live in the dorms in college, however, my parents and I did look into getting a single dorm room if I did live on campus. We would not have even considered that an option, except for the fact that the housing director at the school I went to has a daughter with CF, so he was willing to work something out for us.

At first I didn't tell people at college I had CF. Then there was a quarter where I needed to retroactively withdraw from my classes because I got sick and missed my final exams. At that point I went to the dean of student affairs with a letter from my doctor explaining CF and what reasonable accommodations I needed in order to get the most out of my college experience. That letter went in my file, and we also brought a copy of it to the student special services office. They arranged for me to have a note-taker in class, or in some cases, for my professor to provide his lecture slides to me so in case I missed class. I also had a tutor come to the hospital when I was having a tune-up.

One of the most important things that student special services was able to do for me was to arrange with the environmental health and safety office to get me a specially fit respirator mask to wear in organic chemistry lab. I was a science major, and o-chem was something I had to take (I LOVED it by the way.) However, nearly all the chemicals we worked with were aromatic hydrocarbons, which are a respiratory concern. Even with the fume hoods, I had to be careful, especially if someone dropped their test tube or spilled something like acetone.

I don't think I used CF to gain an advantage, but I did make sure to ask for assistance on the things that I needed to stay competitive in my class. When you're a science major at a research university, things can be pretty cut-throat. I was a very serious student, but without the note-taking services and tutoring when I missed class, I would have had a more frustrating time than I already did.

One of the best things I did, knowing that I'd have to work hard to keep up when CF slowed me down, was that I started taking college courses as a high school student. By the time I was actually in college, I had already knocked out 10 classes toward my degree. That way my academic standing never faltered. I took full loads (12 unites) every quarter my first year because I needed to in order to stay on my parents' insurance. The first quarter of my sophomore year I got a part-time job at a environmental engineering and research lab. I worked anywhere from 12-20 hours a week for the next few years. My senior year I was recommended for another research position at UC Irvine, and like an idiot, I thought I could handle that, my lab job and classes at UC Riverside, my health, being a newlywed, and commuting 200 miles a day.

I got sick, but I continued to push myself because I wanted so badly to graduate. There were times when my parents and I didn't think I'd make it. Eventually I pared it all down, and by graduation I was in much better shape. I love seeing my diploma on the wall, but I wouldn't recommend ANYONE push themselves as hard as I had. I can't even stand to look at my graduation pictures because of how visibly sick I was.

That's my college experience. I'm fortunate to have survived. I couldn't have done it without the support of my husband and parents. I'm especially thankful that my parents lived so close to the campus. I ended up spending the night there many times when I was too tired to drive home to my husband.
 

lightNlife

New member
I used my experience with CF to write a great essay that was part of my application. I did not live in the dorms in college, however, my parents and I did look into getting a single dorm room if I did live on campus. We would not have even considered that an option, except for the fact that the housing director at the school I went to has a daughter with CF, so he was willing to work something out for us.

At first I didn't tell people at college I had CF. Then there was a quarter where I needed to retroactively withdraw from my classes because I got sick and missed my final exams. At that point I went to the dean of student affairs with a letter from my doctor explaining CF and what reasonable accommodations I needed in order to get the most out of my college experience. That letter went in my file, and we also brought a copy of it to the student special services office. They arranged for me to have a note-taker in class, or in some cases, for my professor to provide his lecture slides to me so in case I missed class. I also had a tutor come to the hospital when I was having a tune-up.

One of the most important things that student special services was able to do for me was to arrange with the environmental health and safety office to get me a specially fit respirator mask to wear in organic chemistry lab. I was a science major, and o-chem was something I had to take (I LOVED it by the way.) However, nearly all the chemicals we worked with were aromatic hydrocarbons, which are a respiratory concern. Even with the fume hoods, I had to be careful, especially if someone dropped their test tube or spilled something like acetone.

I don't think I used CF to gain an advantage, but I did make sure to ask for assistance on the things that I needed to stay competitive in my class. When you're a science major at a research university, things can be pretty cut-throat. I was a very serious student, but without the note-taking services and tutoring when I missed class, I would have had a more frustrating time than I already did.

One of the best things I did, knowing that I'd have to work hard to keep up when CF slowed me down, was that I started taking college courses as a high school student. By the time I was actually in college, I had already knocked out 10 classes toward my degree. That way my academic standing never faltered. I took full loads (12 unites) every quarter my first year because I needed to in order to stay on my parents' insurance. The first quarter of my sophomore year I got a part-time job at a environmental engineering and research lab. I worked anywhere from 12-20 hours a week for the next few years. My senior year I was recommended for another research position at UC Irvine, and like an idiot, I thought I could handle that, my lab job and classes at UC Riverside, my health, being a newlywed, and commuting 200 miles a day.

I got sick, but I continued to push myself because I wanted so badly to graduate. There were times when my parents and I didn't think I'd make it. Eventually I pared it all down, and by graduation I was in much better shape. I love seeing my diploma on the wall, but I wouldn't recommend ANYONE push themselves as hard as I had. I can't even stand to look at my graduation pictures because of how visibly sick I was.

That's my college experience. I'm fortunate to have survived. I couldn't have done it without the support of my husband and parents. I'm especially thankful that my parents lived so close to the campus. I ended up spending the night there many times when I was too tired to drive home to my husband.
 

lightNlife

New member
I used my experience with CF to write a great essay that was part of my application. I did not live in the dorms in college, however, my parents and I did look into getting a single dorm room if I did live on campus. We would not have even considered that an option, except for the fact that the housing director at the school I went to has a daughter with CF, so he was willing to work something out for us.

At first I didn't tell people at college I had CF. Then there was a quarter where I needed to retroactively withdraw from my classes because I got sick and missed my final exams. At that point I went to the dean of student affairs with a letter from my doctor explaining CF and what reasonable accommodations I needed in order to get the most out of my college experience. That letter went in my file, and we also brought a copy of it to the student special services office. They arranged for me to have a note-taker in class, or in some cases, for my professor to provide his lecture slides to me so in case I missed class. I also had a tutor come to the hospital when I was having a tune-up.

One of the most important things that student special services was able to do for me was to arrange with the environmental health and safety office to get me a specially fit respirator mask to wear in organic chemistry lab. I was a science major, and o-chem was something I had to take (I LOVED it by the way.) However, nearly all the chemicals we worked with were aromatic hydrocarbons, which are a respiratory concern. Even with the fume hoods, I had to be careful, especially if someone dropped their test tube or spilled something like acetone.

I don't think I used CF to gain an advantage, but I did make sure to ask for assistance on the things that I needed to stay competitive in my class. When you're a science major at a research university, things can be pretty cut-throat. I was a very serious student, but without the note-taking services and tutoring when I missed class, I would have had a more frustrating time than I already did.

One of the best things I did, knowing that I'd have to work hard to keep up when CF slowed me down, was that I started taking college courses as a high school student. By the time I was actually in college, I had already knocked out 10 classes toward my degree. That way my academic standing never faltered. I took full loads (12 unites) every quarter my first year because I needed to in order to stay on my parents' insurance. The first quarter of my sophomore year I got a part-time job at a environmental engineering and research lab. I worked anywhere from 12-20 hours a week for the next few years. My senior year I was recommended for another research position at UC Irvine, and like an idiot, I thought I could handle that, my lab job and classes at UC Riverside, my health, being a newlywed, and commuting 200 miles a day.

I got sick, but I continued to push myself because I wanted so badly to graduate. There were times when my parents and I didn't think I'd make it. Eventually I pared it all down, and by graduation I was in much better shape. I love seeing my diploma on the wall, but I wouldn't recommend ANYONE push themselves as hard as I had. I can't even stand to look at my graduation pictures because of how visibly sick I was.

That's my college experience. I'm fortunate to have survived. I couldn't have done it without the support of my husband and parents. I'm especially thankful that my parents lived so close to the campus. I ended up spending the night there many times when I was too tired to drive home to my husband.
 
6

65rosessamurai

Guest
I never used the CF as an advantage, though to a certain degree I should have!
I had the chance to go to Kalamazoo College, but I didn't want to go because I didn't have faith in their electronics program, but I was told I could've gone there on the State's money.
I opted for Student Loans (no grants as far as I know), and ended up paying them back as any 'normal' person would...perhaps I didn't want to deal with the living alone at a far-away place, unknown. Nor did I want to feel I went on a "free-ride" rather than work for the education myself. The parents helped out as much as they could (room and board was practically zero, but then so was my income of working part-time at minimum wage!), but I basically didn't think I looked 'sick' enough for 'disability'.
I didn't get sick during college, I didn't get sick in my junior year of high school, and only missed two days in my senior year of high school. I also became active in the martial arts when I entered college, and opted to take phys-ed classes (volleyball).
Of course, everyone's opinion varies, this was mine in a nutshell.
 
6

65rosessamurai

Guest
I never used the CF as an advantage, though to a certain degree I should have!
I had the chance to go to Kalamazoo College, but I didn't want to go because I didn't have faith in their electronics program, but I was told I could've gone there on the State's money.
I opted for Student Loans (no grants as far as I know), and ended up paying them back as any 'normal' person would...perhaps I didn't want to deal with the living alone at a far-away place, unknown. Nor did I want to feel I went on a "free-ride" rather than work for the education myself. The parents helped out as much as they could (room and board was practically zero, but then so was my income of working part-time at minimum wage!), but I basically didn't think I looked 'sick' enough for 'disability'.
I didn't get sick during college, I didn't get sick in my junior year of high school, and only missed two days in my senior year of high school. I also became active in the martial arts when I entered college, and opted to take phys-ed classes (volleyball).
Of course, everyone's opinion varies, this was mine in a nutshell.
 
6

65rosessamurai

Guest
I never used the CF as an advantage, though to a certain degree I should have!
I had the chance to go to Kalamazoo College, but I didn't want to go because I didn't have faith in their electronics program, but I was told I could've gone there on the State's money.
I opted for Student Loans (no grants as far as I know), and ended up paying them back as any 'normal' person would...perhaps I didn't want to deal with the living alone at a far-away place, unknown. Nor did I want to feel I went on a "free-ride" rather than work for the education myself. The parents helped out as much as they could (room and board was practically zero, but then so was my income of working part-time at minimum wage!), but I basically didn't think I looked 'sick' enough for 'disability'.
I didn't get sick during college, I didn't get sick in my junior year of high school, and only missed two days in my senior year of high school. I also became active in the martial arts when I entered college, and opted to take phys-ed classes (volleyball).
Of course, everyone's opinion varies, this was mine in a nutshell.
 
6

65rosessamurai

Guest
I never used the CF as an advantage, though to a certain degree I should have!
I had the chance to go to Kalamazoo College, but I didn't want to go because I didn't have faith in their electronics program, but I was told I could've gone there on the State's money.
I opted for Student Loans (no grants as far as I know), and ended up paying them back as any 'normal' person would...perhaps I didn't want to deal with the living alone at a far-away place, unknown. Nor did I want to feel I went on a "free-ride" rather than work for the education myself. The parents helped out as much as they could (room and board was practically zero, but then so was my income of working part-time at minimum wage!), but I basically didn't think I looked 'sick' enough for 'disability'.
I didn't get sick during college, I didn't get sick in my junior year of high school, and only missed two days in my senior year of high school. I also became active in the martial arts when I entered college, and opted to take phys-ed classes (volleyball).
Of course, everyone's opinion varies, this was mine in a nutshell.
 
6

65rosessamurai

Guest
I never used the CF as an advantage, though to a certain degree I should have!
I had the chance to go to Kalamazoo College, but I didn't want to go because I didn't have faith in their electronics program, but I was told I could've gone there on the State's money.
I opted for Student Loans (no grants as far as I know), and ended up paying them back as any 'normal' person would...perhaps I didn't want to deal with the living alone at a far-away place, unknown. Nor did I want to feel I went on a "free-ride" rather than work for the education myself. The parents helped out as much as they could (room and board was practically zero, but then so was my income of working part-time at minimum wage!), but I basically didn't think I looked 'sick' enough for 'disability'.
I didn't get sick during college, I didn't get sick in my junior year of high school, and only missed two days in my senior year of high school. I also became active in the martial arts when I entered college, and opted to take phys-ed classes (volleyball).
Of course, everyone's opinion varies, this was mine in a nutshell.
 
6

65rosessamurai

Guest
I never used the CF as an advantage, though to a certain degree I should have!
I had the chance to go to Kalamazoo College, but I didn't want to go because I didn't have faith in their electronics program, but I was told I could've gone there on the State's money.
I opted for Student Loans (no grants as far as I know), and ended up paying them back as any 'normal' person would...perhaps I didn't want to deal with the living alone at a far-away place, unknown. Nor did I want to feel I went on a "free-ride" rather than work for the education myself. The parents helped out as much as they could (room and board was practically zero, but then so was my income of working part-time at minimum wage!), but I basically didn't think I looked 'sick' enough for 'disability'.
I didn't get sick during college, I didn't get sick in my junior year of high school, and only missed two days in my senior year of high school. I also became active in the martial arts when I entered college, and opted to take phys-ed classes (volleyball).
Of course, everyone's opinion varies, this was mine in a nutshell.
 

mom2lillian

New member
I did not know I had CF when I entered college so I cant tell you what I did. My opinion though is that I wish I would have known and qualified for help. I got pretty sick during school and there was nothing they could do to help me out. I wish I could have had access to the types of services that LightNlife describes.

Additionally, ask yourself the ? Was it harder for you to get to where you are academically because of your CF? probably Yes. Are there times where your grades achievements etc could have been higher better etc if not for stumling blocks that CF setbefore you? Probably Yes. If so then what is the harm in getting a bit of help back to level the playing field?
 

mom2lillian

New member
I did not know I had CF when I entered college so I cant tell you what I did. My opinion though is that I wish I would have known and qualified for help. I got pretty sick during school and there was nothing they could do to help me out. I wish I could have had access to the types of services that LightNlife describes.

Additionally, ask yourself the ? Was it harder for you to get to where you are academically because of your CF? probably Yes. Are there times where your grades achievements etc could have been higher better etc if not for stumling blocks that CF setbefore you? Probably Yes. If so then what is the harm in getting a bit of help back to level the playing field?
 
Top