mbrandazzo
New member
Hi All,
I can't tell you how happy I am to have found this website. As a mom to a newly diagnosed son, I have many, many questions and don't always know who to turn to. I appreciate anyone who will take the time to answer a question of mine... I am sure there will also be MANY more in the future!
My son Logan (DDF508) was diagnosed at 2 1/2 months. He was not showing any of the respitory signs of cf, but our pediatrician reccomended he be tested because he was not gaining weight and failing to thrive. We are thankful for her being so proactive.
A couple weeks after he was diagnosed, he was hospitalized because MRSA showed up in his culture. We stayed in the hospital for two weeks of IV treatment, and he seemed to be on the right track. Every time a doctor would come in to listen to his lungs, they said he sounded "great".
Now it is a couple months later, and I know that cf kids are going to cough more than the norm, but when do you know if it is something more serious than them just clearing out their lungs. He used to cough just a few times a day, but now he seems to be doing it a bit more and I am just worried that we may be missing something. We live pretty far from our CF center so I just thought I would ask you all before I contact his specialists...
Thank you so much for any advice you have to give to a new mom.
Megan - Mom to beautiful boy Logan - 5 1/2 months w/cf
I can't tell you how happy I am to have found this website. As a mom to a newly diagnosed son, I have many, many questions and don't always know who to turn to. I appreciate anyone who will take the time to answer a question of mine... I am sure there will also be MANY more in the future!
My son Logan (DDF508) was diagnosed at 2 1/2 months. He was not showing any of the respitory signs of cf, but our pediatrician reccomended he be tested because he was not gaining weight and failing to thrive. We are thankful for her being so proactive.
A couple weeks after he was diagnosed, he was hospitalized because MRSA showed up in his culture. We stayed in the hospital for two weeks of IV treatment, and he seemed to be on the right track. Every time a doctor would come in to listen to his lungs, they said he sounded "great".
Now it is a couple months later, and I know that cf kids are going to cough more than the norm, but when do you know if it is something more serious than them just clearing out their lungs. He used to cough just a few times a day, but now he seems to be doing it a bit more and I am just worried that we may be missing something. We live pretty far from our CF center so I just thought I would ask you all before I contact his specialists...
Thank you so much for any advice you have to give to a new mom.
Megan - Mom to beautiful boy Logan - 5 1/2 months w/cf