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could it be?

A

Alyssa

New member
Well... that was exactly my thoughts "how did a doctor miss this for so long" ... but I thought it might be rude to comment... but since you said it first.... :)

I would be mad too - I think you have a right to be angry... but unfortunately it's not really going to be productive at this point :) Keep pressing on... hopefully he can get the correct diagnosis and treatment soon.
 
A

Alyssa

New member
Well... that was exactly my thoughts "how did a doctor miss this for so long" ... but I thought it might be rude to comment... but since you said it first.... :)

I would be mad too - I think you have a right to be angry... but unfortunately it's not really going to be productive at this point :) Keep pressing on... hopefully he can get the correct diagnosis and treatment soon.
 
A

Alyssa

New member
Well... that was exactly my thoughts "how did a doctor miss this for so long" ... but I thought it might be rude to comment... but since you said it first.... :)

I would be mad too - I think you have a right to be angry... but unfortunately it's not really going to be productive at this point :) Keep pressing on... hopefully he can get the correct diagnosis and treatment soon.
 
A

Alyssa

New member
Well... that was exactly my thoughts "how did a doctor miss this for so long" ... but I thought it might be rude to comment... but since you said it first.... :)

I would be mad too - I think you have a right to be angry... but unfortunately it's not really going to be productive at this point :) Keep pressing on... hopefully he can get the correct diagnosis and treatment soon.
 
A

Alyssa

New member
Well... that was exactly my thoughts "how did a doctor miss this for so long" ... but I thought it might be rude to comment... but since you said it first.... :)
<br />
<br />I would be mad too - I think you have a right to be angry... but unfortunately it's not really going to be productive at this point :) Keep pressing on... hopefully he can get the correct diagnosis and treatment soon.
 
J

JORDYSMOM

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CJsmom</b></i>


Also, does CF affect bone structure in any way? He walks hunched over, almost like a little old man and his chest midline in off center and he has a weird bone structure in his chest, one side protrudes more than the other.</end quote></div>

My son Jordan started to hunch over when he hit his puberty growth spurt. I was told it was a spine disorder called Sherman's Kyphosis. He had an 8 hour spine surgery to correct it. It was during the pre-surgery testing that we found out our son has CF. He was 15 yo, and I questioned if the two were related, and was told no. I'm still not convinced, since CF causes malabsorption issues. Jordan is PS, and is not under weight, but I still feel there may be a connection.

I agree that you should get your son tested for CF. I also understand you saying it would be nice to get a diagnosis, even though nobody wants to have CF. It helps me to know there is a real condition that has caused my son's problems all of these years. I knew I wasn't completely crazy! (I have to admit to a little crazy though <img src="i/expressions/face-icon-small-tongue.gif" border="0"> LOL) Anyway, I hope you get the answers you need, and that your son can start to feel better.

Stacey
 
J

JORDYSMOM

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CJsmom</b></i>


Also, does CF affect bone structure in any way? He walks hunched over, almost like a little old man and his chest midline in off center and he has a weird bone structure in his chest, one side protrudes more than the other.</end quote></div>

My son Jordan started to hunch over when he hit his puberty growth spurt. I was told it was a spine disorder called Sherman's Kyphosis. He had an 8 hour spine surgery to correct it. It was during the pre-surgery testing that we found out our son has CF. He was 15 yo, and I questioned if the two were related, and was told no. I'm still not convinced, since CF causes malabsorption issues. Jordan is PS, and is not under weight, but I still feel there may be a connection.

I agree that you should get your son tested for CF. I also understand you saying it would be nice to get a diagnosis, even though nobody wants to have CF. It helps me to know there is a real condition that has caused my son's problems all of these years. I knew I wasn't completely crazy! (I have to admit to a little crazy though <img src="i/expressions/face-icon-small-tongue.gif" border="0"> LOL) Anyway, I hope you get the answers you need, and that your son can start to feel better.

Stacey
 
J

JORDYSMOM

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CJsmom</b></i>


Also, does CF affect bone structure in any way? He walks hunched over, almost like a little old man and his chest midline in off center and he has a weird bone structure in his chest, one side protrudes more than the other.</end quote></div>

My son Jordan started to hunch over when he hit his puberty growth spurt. I was told it was a spine disorder called Sherman's Kyphosis. He had an 8 hour spine surgery to correct it. It was during the pre-surgery testing that we found out our son has CF. He was 15 yo, and I questioned if the two were related, and was told no. I'm still not convinced, since CF causes malabsorption issues. Jordan is PS, and is not under weight, but I still feel there may be a connection.

I agree that you should get your son tested for CF. I also understand you saying it would be nice to get a diagnosis, even though nobody wants to have CF. It helps me to know there is a real condition that has caused my son's problems all of these years. I knew I wasn't completely crazy! (I have to admit to a little crazy though <img src="i/expressions/face-icon-small-tongue.gif" border="0"> LOL) Anyway, I hope you get the answers you need, and that your son can start to feel better.

Stacey
 
J

JORDYSMOM

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CJsmom</b></i>


Also, does CF affect bone structure in any way? He walks hunched over, almost like a little old man and his chest midline in off center and he has a weird bone structure in his chest, one side protrudes more than the other.</end quote>

My son Jordan started to hunch over when he hit his puberty growth spurt. I was told it was a spine disorder called Sherman's Kyphosis. He had an 8 hour spine surgery to correct it. It was during the pre-surgery testing that we found out our son has CF. He was 15 yo, and I questioned if the two were related, and was told no. I'm still not convinced, since CF causes malabsorption issues. Jordan is PS, and is not under weight, but I still feel there may be a connection.

I agree that you should get your son tested for CF. I also understand you saying it would be nice to get a diagnosis, even though nobody wants to have CF. It helps me to know there is a real condition that has caused my son's problems all of these years. I knew I wasn't completely crazy! (I have to admit to a little crazy though <img src="i/expressions/face-icon-small-tongue.gif" border="0"> LOL) Anyway, I hope you get the answers you need, and that your son can start to feel better.

Stacey
 
J

JORDYSMOM

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CJsmom</b></i>
<br />
<br />
<br />Also, does CF affect bone structure in any way? He walks hunched over, almost like a little old man and his chest midline in off center and he has a weird bone structure in his chest, one side protrudes more than the other.</end quote>
<br />
<br />My son Jordan started to hunch over when he hit his puberty growth spurt. I was told it was a spine disorder called Sherman's Kyphosis. He had an 8 hour spine surgery to correct it. It was during the pre-surgery testing that we found out our son has CF. He was 15 yo, and I questioned if the two were related, and was told no. I'm still not convinced, since CF causes malabsorption issues. Jordan is PS, and is not under weight, but I still feel there may be a connection.
<br />
<br />I agree that you should get your son tested for CF. I also understand you saying it would be nice to get a diagnosis, even though nobody wants to have CF. It helps me to know there is a real condition that has caused my son's problems all of these years. I knew I wasn't completely crazy! (I have to admit to a little crazy though <img src="i/expressions/face-icon-small-tongue.gif" border="0"> LOL) Anyway, I hope you get the answers you need, and that your son can start to feel better.
<br />
<br />Stacey
<br />
<br />
 
C

CJsmom

New member
thanks! Heard from his GP today. They refered him to a peds pulminary specialist and he is scheduled for a sweat test on June 5. The doc will also do a consult with us at that time. I'll be sure to update you on whats going on. Now we just have to get thru almost 5 weeks of waiting...I HATE waiting <img src="i/expressions/face-icon-small-smile.gif" border="0">

How long does it take to get sweat test results back??
 
C

CJsmom

New member
thanks! Heard from his GP today. They refered him to a peds pulminary specialist and he is scheduled for a sweat test on June 5. The doc will also do a consult with us at that time. I'll be sure to update you on whats going on. Now we just have to get thru almost 5 weeks of waiting...I HATE waiting <img src="i/expressions/face-icon-small-smile.gif" border="0">

How long does it take to get sweat test results back??
 
C

CJsmom

New member
thanks! Heard from his GP today. They refered him to a peds pulminary specialist and he is scheduled for a sweat test on June 5. The doc will also do a consult with us at that time. I'll be sure to update you on whats going on. Now we just have to get thru almost 5 weeks of waiting...I HATE waiting <img src="i/expressions/face-icon-small-smile.gif" border="0">

How long does it take to get sweat test results back??
 
C

CJsmom

New member
thanks! Heard from his GP today. They refered him to a peds pulminary specialist and he is scheduled for a sweat test on June 5. The doc will also do a consult with us at that time. I'll be sure to update you on whats going on. Now we just have to get thru almost 5 weeks of waiting...I HATE waiting <img src="i/expressions/face-icon-small-smile.gif" border="0">

How long does it take to get sweat test results back??
 
C

CJsmom

New member
thanks! Heard from his GP today. They refered him to a peds pulminary specialist and he is scheduled for a sweat test on June 5. The doc will also do a consult with us at that time. I'll be sure to update you on whats going on. Now we just have to get thru almost 5 weeks of waiting...I HATE waiting <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />How long does it take to get sweat test results back??
 
P

pjspiegle

New member
We got ours within a couple hours, while we were at the pulmos doing a consult the results came back.
<br />
<br />LOL
<br />
 
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