Thanks for replying.
<br />I know its not the best survey/questionnaire in the world, but heres just a few questions

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<br />Do you (as a parent or as someone who has CF) recieve any financial support? or any benefits that help you?
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<br />Do they teach you on things such as how to massage in the correct way? and about the disease and how to cope with having it or having to look after someone with it.
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<br />Is there any emotional support available to both suffers and family and friends of sufferers?
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<br />Are there any meetings or social groups that you can go to to meet people who are in simiar situations?
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<br />Also, an overview of the disease and how you as a parent are effected by it, if thats possible. Ive had a bit of trouble finding websites and support groups for CF!!!
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<br />Thank you !!