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Curcumin tablets

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anonymous

New member
Since the news about Curcumin has anyone started taking Curcumin tablets and if so what can you tell us about it?Dave 29 w/cf
 
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anonymous

New member
i started taking it around 6 days ago. it's too early to tell, but i'll post here in a few weeks and let you know
 
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anonymous

New member
Are you doing this with the approval of the cf team or is it something you are just doing on your own?? We talked to our cf team about it and they said the doses you would need are almost dangerously high. They said not to get too excited about it and that the only reason it is moving so fast is that it is not considered "medicinal".
 
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anonymous

New member
I had a friend that tried the Curry tablets for 2 months & quit because he couldn't tell a difference. I guess every case is different, there may be some that have had good results? Does it mainly benefit the digestional part of CF or lungs too?
 
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kybert

New member
well said 3rd reply. i have had a big argument on the glutathione board about people going against their docs advice and pumping themselves and their kids full of glutathione and making drastic changes to their treament routines. although i copped a pile of abuse from them i didnt care. i told them they can shove their dangerous views, im not going to be involved one bit. some of them have cut all their cf meds out, there was a discussion on how to avoid child services and there are no discussions about the possible downfalls of the treatment, they refuse to know about that part. and if you bring the downfalls up, you get accused of being negative. i suggest people just be patient and wait till solid evidence and clinical trials come out for these new therapies. natural doesnt really mean safe.
 
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anonymous

New member
I wanted to clarify something in Emily's post cause it was only half way correct. In mice it did work in the GI system. Mice with CF do NOT have lung involvment so its not that it didnt work in their lungs, its that there was nothing wrong with their lungs to begin with. So scientists are hoping or making "educated" guesses that it will work in the lungs if it works at all...okay that all I wanted to say!<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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anonymous

New member
Hi Everyone. I had a bronch this past Friday as part of another CF study, and my doc was aking me if i had heard of the curcumin thing. Of course i had. He advised me NOT to run out to my healthfood/vitamin store and get tablets or anything. It's still being studied and it's just been studied in mice, NOT humans yet. I would wait until it's been studied in humans first.Caren
 
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anonymous

New member
I know that you are not supposed to run out and buy this stuff, but not everyone does what they are supposed to do. I initialy posted this message because I was wondering if anybody had tried the stuff and what the results were. So I will ask the question again, Is there anybody out there who is taking this stuff and what has it done for you? Dave
 
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anonymous

New member
Hi Dave, Copy and paste this website...... http://members5.boardhost.com/CFGSH/ scroll down about 3/4 the way and you will find some stuff on people who have been usng it. <img src="i/expressions/face-icon-small-smile.gif" border="0"> ~ Diane 39 / cf / diabetes / b.cepacia
 
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kybert

New member
lol diane, you will also find crazies forgoing medicines and discussing how to avoid child services. as i said on there NOT MY CUP OF TEA! im staying well away from forums like that now. i shall wait for my doctors green light and not get involved with people who take it too far.
 
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anonymous

New member
word to the wise here people. Kylie has very strong opinions and has mistaken what the purpose of the Glutathione board isshe has expressed some very immature opinions there that were just negative toward others.....And that is why she is not allowed to post there .......http://members5.boardhost.com/CFGSH/if you are really interested in the use of Glutatathione check this place out because we all(almost all) really help each other out.
 
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kybert

New member
get your facts right. i am worried about parents cutting out important factors in their childs cf treatment. i am worried about people discussing how to avoid child services. i am worried that people dont know the side effects of gsh. oh, and i left the board at my own accord, no one has ever 'banned' me. i dont want to get involved with dangeorus behaviour, i dont want to be held responsible. if you want to thats ok, dont bring YOUR immature argument here, and dont drag others into your rotten attitude about proven cf meds and responsible doctors who are just trying to do whats right by their patients. people wont stand for it here.
 
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kybert

New member
they do actually speak for themselves, my posts come out of genuine concern for children who have no say over their treatment. if it werent for the fact that i know who you are i would mistake you for that angie character, who pitted everyone against each other. stay on your own board and leave this one in peace. if you want to argue go be a politician. you are not even worth replying to anymore, your intentions are clear to me.
 
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anonymous

New member
If we waited around for doctors to find a cure it would be forever. You need to try things on your own. Remember they will never find a "cure" , only things that will control the disease. They would lose way too much money if there was a cure, so you need to take charge of yourself and do what you think is right. I started gsh orally about 3 weeks ago and about 4 days ago started the inhaled as of Dr. Bishops program. I am noticing a little difference in mucus amount. It is said to take anywhere from a month or so to see any results. I haven't told my doctor yet but I will next time I see him! Just do your research before starting something and start slow. Remember you are the one that knows your body the best, not the docs!!!! Thanks guys, Nate 25y/m CF
 
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