Dave, I'm sorry my post opened a can of worms, I had a funny feeling it would, but i posted that link anyway, because it contained the answers you were looking for. I have to agree with what Nate said. If we sit around waiting for doctors and scientists to find a "cure", we will be waiting forever. Remember WE have the disease not them. We suffer from it, we feel the effects, and sometimes we have to be the ones to find our own answers when noone else can. I am not one to go out and just start taking something because someone told me to . I studied all about gsh before i started taking it and discussed it with my doctors. I came to the realization when i had to have two embolizations that if i dont do something NOW, RIGHT NOW, (other than sitting around and waiting for someone else to help my situation) by the time someone finally does find a way to help us, it may be way too late to make any difference. Lets face it, even if there was a "cure" by the time you have irreversible damage , a cure wont cure you. We cant turn back time, and reverse the damage thats already done. A cure will only stop more damage (hopefully). The only way to truely "cure" a genetic illness is to get rid of the faulty gene before the child is born, Once you are born with it, you are stuck with it. I dont think there will ever be a cure, BUT i do think there will be a treatment somewhere out there that will do amazing things for us. In the meantime while waiting for it, I am going to use whatever i can to maintain as much as i can of my life. Im sorry dave, for getting off track, but i felt i had to say all this...... ~ Diane 39 / cf / diabetes / b.cepacia