Cystic Fibrosis! I hate CF!

[ElizabethlovesChris]

I completely agree with all of the above, especially the "8 - Dealing with Insurance Companies, Drs, Medical Supply Companies, etc." (considering I am the one who deals with <b>all </b>of his insurance issues, deductibles, max out of pockets, Rx refills, etc.)

And the title of this post "I hate CF" is truly the cry of my heart. My #1 reason for hating this disease: it is stealing, day by day, the absolute love of my life, my best friend, my soulmate, my everything, my husband. I love every single molecule of his body, and I hate what this disease does to those molecules.

Keep fighting. He doesn't deserve this, none of you deserve this.
Liz

 

[ElizabethlovesChris]

I completely agree with all of the above, especially the "8 - Dealing with Insurance Companies, Drs, Medical Supply Companies, etc." (considering I am the one who deals with <b>all </b>of his insurance issues, deductibles, max out of pockets, Rx refills, etc.)

And the title of this post "I hate CF" is truly the cry of my heart. My #1 reason for hating this disease: it is stealing, day by day, the absolute love of my life, my best friend, my soulmate, my everything, my husband. I love every single molecule of his body, and I hate what this disease does to those molecules.

Keep fighting. He doesn't deserve this, none of you deserve this.
Liz

 

[ElizabethlovesChris]

I completely agree with all of the above, especially the "8 - Dealing with Insurance Companies, Drs, Medical Supply Companies, etc." (considering I am the one who deals with <b>all </b>of his insurance issues, deductibles, max out of pockets, Rx refills, etc.)

And the title of this post "I hate CF" is truly the cry of my heart. My #1 reason for hating this disease: it is stealing, day by day, the absolute love of my life, my best friend, my soulmate, my everything, my husband. I love every single molecule of his body, and I hate what this disease does to those molecules.

Keep fighting. He doesn't deserve this, none of you deserve this.
Liz

 

[ElizabethlovesChris]

I completely agree with all of the above, especially the "8 - Dealing with Insurance Companies, Drs, Medical Supply Companies, etc." (considering I am the one who deals with <b>all </b>of his insurance issues, deductibles, max out of pockets, Rx refills, etc.)

And the title of this post "I hate CF" is truly the cry of my heart. My #1 reason for hating this disease: it is stealing, day by day, the absolute love of my life, my best friend, my soulmate, my everything, my husband. I love every single molecule of his body, and I hate what this disease does to those molecules.

Keep fighting. He doesn't deserve this, none of you deserve this.
Liz

 

[ElizabethlovesChris]

I completely agree with all of the above, especially the "8 - Dealing with Insurance Companies, Drs, Medical Supply Companies, etc." (considering I am the one who deals with <b>all </b>of his insurance issues, deductibles, max out of pockets, Rx refills, etc.)

And the title of this post "I hate CF" is truly the cry of my heart. My #1 reason for hating this disease: it is stealing, day by day, the absolute love of my life, my best friend, my soulmate, my everything, my husband. I love every single molecule of his body, and I hate what this disease does to those molecules.

Keep fighting. He doesn't deserve this, none of you deserve this.
Liz

 

[missT]

Aka, I have this strong need to reply to you and just say "I hate CF too". I just vomitted in the sink just a second ago and I am all grossed out (which I am soooo used to being with CF). I think to myself how can anyone ever want to be with me with this disease? I am a single 37 year old woman. When I was your age I was running around "in denial" of my CF, abusing my body, not doing treatment. Anyway, I am really making up for it now. I just wanted to say to you that I am angry too...very angry. I think its good that you get it out..when I try to talk to my friends none of them understand what CF is like. I get so frustrated!!! I hate when they say "I would do this" or "I would do that". they don't know what it is like to live with this everyday. Sometimes when i just wake up in the morning I just lay in bed and breath. I try not to move and wake my lungs up so I can have a few seconds before the explosion starts. It takes me about three hours in the morning of coughing and vomitting before I can even attempt to start my day. I hope that you can find something (anything) that can give you joy each day. <img src="i/expressions/rose.gif" border="0">

 

[missT]

Aka, I have this strong need to reply to you and just say "I hate CF too". I just vomitted in the sink just a second ago and I am all grossed out (which I am soooo used to being with CF). I think to myself how can anyone ever want to be with me with this disease? I am a single 37 year old woman. When I was your age I was running around "in denial" of my CF, abusing my body, not doing treatment. Anyway, I am really making up for it now. I just wanted to say to you that I am angry too...very angry. I think its good that you get it out..when I try to talk to my friends none of them understand what CF is like. I get so frustrated!!! I hate when they say "I would do this" or "I would do that". they don't know what it is like to live with this everyday. Sometimes when i just wake up in the morning I just lay in bed and breath. I try not to move and wake my lungs up so I can have a few seconds before the explosion starts. It takes me about three hours in the morning of coughing and vomitting before I can even attempt to start my day. I hope that you can find something (anything) that can give you joy each day. <img src="i/expressions/rose.gif" border="0">

 

[missT]

Aka, I have this strong need to reply to you and just say "I hate CF too". I just vomitted in the sink just a second ago and I am all grossed out (which I am soooo used to being with CF). I think to myself how can anyone ever want to be with me with this disease? I am a single 37 year old woman. When I was your age I was running around "in denial" of my CF, abusing my body, not doing treatment. Anyway, I am really making up for it now. I just wanted to say to you that I am angry too...very angry. I think its good that you get it out..when I try to talk to my friends none of them understand what CF is like. I get so frustrated!!! I hate when they say "I would do this" or "I would do that". they don't know what it is like to live with this everyday. Sometimes when i just wake up in the morning I just lay in bed and breath. I try not to move and wake my lungs up so I can have a few seconds before the explosion starts. It takes me about three hours in the morning of coughing and vomitting before I can even attempt to start my day. I hope that you can find something (anything) that can give you joy each day. <img src="i/expressions/rose.gif" border="0">

 

[missT]

Aka, I have this strong need to reply to you and just say "I hate CF too". I just vomitted in the sink just a second ago and I am all grossed out (which I am soooo used to being with CF). I think to myself how can anyone ever want to be with me with this disease? I am a single 37 year old woman. When I was your age I was running around "in denial" of my CF, abusing my body, not doing treatment. Anyway, I am really making up for it now. I just wanted to say to you that I am angry too...very angry. I think its good that you get it out..when I try to talk to my friends none of them understand what CF is like. I get so frustrated!!! I hate when they say "I would do this" or "I would do that". they don't know what it is like to live with this everyday. Sometimes when i just wake up in the morning I just lay in bed and breath. I try not to move and wake my lungs up so I can have a few seconds before the explosion starts. It takes me about three hours in the morning of coughing and vomitting before I can even attempt to start my day. I hope that you can find something (anything) that can give you joy each day. <img src="i/expressions/rose.gif" border="0">

 

[missT]

Aka, I have this strong need to reply to you and just say "I hate CF too". I just vomitted in the sink just a second ago and I am all grossed out (which I am soooo used to being with CF). I think to myself how can anyone ever want to be with me with this disease? I am a single 37 year old woman. When I was your age I was running around "in denial" of my CF, abusing my body, not doing treatment. Anyway, I am really making up for it now. I just wanted to say to you that I am angry too...very angry. I think its good that you get it out..when I try to talk to my friends none of them understand what CF is like. I get so frustrated!!! I hate when they say "I would do this" or "I would do that". they don't know what it is like to live with this everyday. Sometimes when i just wake up in the morning I just lay in bed and breath. I try not to move and wake my lungs up so I can have a few seconds before the explosion starts. It takes me about three hours in the morning of coughing and vomitting before I can even attempt to start my day. I hope that you can find something (anything) that can give you joy each day. <img src="i/expressions/rose.gif" border="0">