cysticfibrosisgirl

[cysticfibrosisgirl]

You guys are soooo kind to be there for me. My mom keeps telling me get off the computer and stop talking about your CF all the thime..
What does she think anyway that I should never talk about it??? She's making me real mad!!!!

Then she tells me arn't you sick of calling doctors and going to the ER...
WELL of corse I am but what eals am I going to do sit in the house and cry in chest pain..

I asked her to come over to my computer and look at what you nice people did, and she's like cystic fibrosis agin??? I am like yah.. why.. well your always on some web page about CF... I HAVE CF WHY WOULD I NOT BE TALKING WITH PEOPLE LIKE ME ABOUT IT..... Also how is someone with CF not let CF become you.. And take over your life.. It is such a bad illness that it just does take over your like...

 

[JazzysMom]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>cysticfibrosisgirl</b></i>

You guys are soooo kind to be there for me. My mom keeps telling me get off the computer and stop talking about your CF all the thime..

What does she think anyway that I should never talk about it??? She's making me real mad!!!!

Then she tells me arn't you sick of calling doctors and going to the ER...

WELL of corse I am but what eals am I going to do sit in the house and cry in chest pain..

I asked her to come over to my computer and look at what you nice people did, and she's like cystic fibrosis agin??? I am like yah.. why.. well your always on some web page about CF... I HAVE CF WHY WOULD I NOT BE TALKING WITH PEOPLE LIKE ME ABOUT IT..... Also how is someone with CF not let CF become you.. And take over your life.. It is such a bad illness that it just does take over your like...</end quote></div>


Some people feel that seeking others with similar problems just compounds negative thoughts. At times it can. It depends on the individual. BUT I know from personal experience that NO ONE knows all the little things like another CFer. The mental thoughts (big or small), the constant physical issues of something or another (big or small) and the "confusion" that comes with it all at times. I have seen people come to the internet seeking "support" and end up in worse shape emotionally then when they started. BUT as I said its depends on the individual. IF you are looking for someone just to "get it" then you are in the right spot. If you are seeking something other then support, education or empowerment then maybe your Mom is right. Given how she seems to not even be able to grasp the idea of your having CF IMHO puts her in denial and that denial is easier to maintain of you also are in it. KUDOS for doing what you feel is right for YOU! As far as not letting CF take over your life....it is hard. When you cant miss a treatment or eat spotaneously without enzymes or be on the go like someone else.....its a constant reminder. HOWEVER; if you can seperate activities that would remind you of CF (running or lack of being able to run) versus playing cards with a group of friends then you have the upper hand. Basically do what is best for you, but try to do it responsibly! Sometimes an alcholic benefits from going to AA meetings and sometimes its too much of a reminder how alcohol has consumed their life....CF is no different!

 

[JazzysMom]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>cysticfibrosisgirl</b></i>

You guys are soooo kind to be there for me. My mom keeps telling me get off the computer and stop talking about your CF all the thime..

What does she think anyway that I should never talk about it??? She's making me real mad!!!!

Then she tells me arn't you sick of calling doctors and going to the ER...

WELL of corse I am but what eals am I going to do sit in the house and cry in chest pain..

I asked her to come over to my computer and look at what you nice people did, and she's like cystic fibrosis agin??? I am like yah.. why.. well your always on some web page about CF... I HAVE CF WHY WOULD I NOT BE TALKING WITH PEOPLE LIKE ME ABOUT IT..... Also how is someone with CF not let CF become you.. And take over your life.. It is such a bad illness that it just does take over your like...</end quote></div>


Some people feel that seeking others with similar problems just compounds negative thoughts. At times it can. It depends on the individual. BUT I know from personal experience that NO ONE knows all the little things like another CFer. The mental thoughts (big or small), the constant physical issues of something or another (big or small) and the "confusion" that comes with it all at times. I have seen people come to the internet seeking "support" and end up in worse shape emotionally then when they started. BUT as I said its depends on the individual. IF you are looking for someone just to "get it" then you are in the right spot. If you are seeking something other then support, education or empowerment then maybe your Mom is right. Given how she seems to not even be able to grasp the idea of your having CF IMHO puts her in denial and that denial is easier to maintain of you also are in it. KUDOS for doing what you feel is right for YOU! As far as not letting CF take over your life....it is hard. When you cant miss a treatment or eat spotaneously without enzymes or be on the go like someone else.....its a constant reminder. HOWEVER; if you can seperate activities that would remind you of CF (running or lack of being able to run) versus playing cards with a group of friends then you have the upper hand. Basically do what is best for you, but try to do it responsibly! Sometimes an alcholic benefits from going to AA meetings and sometimes its too much of a reminder how alcohol has consumed their life....CF is no different!

 

[JazzysMom]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>cysticfibrosisgirl</b></i>

You guys are soooo kind to be there for me. My mom keeps telling me get off the computer and stop talking about your CF all the thime..

What does she think anyway that I should never talk about it??? She's making me real mad!!!!

Then she tells me arn't you sick of calling doctors and going to the ER...

WELL of corse I am but what eals am I going to do sit in the house and cry in chest pain..

I asked her to come over to my computer and look at what you nice people did, and she's like cystic fibrosis agin??? I am like yah.. why.. well your always on some web page about CF... I HAVE CF WHY WOULD I NOT BE TALKING WITH PEOPLE LIKE ME ABOUT IT..... Also how is someone with CF not let CF become you.. And take over your life.. It is such a bad illness that it just does take over your like...</end quote></div>


Some people feel that seeking others with similar problems just compounds negative thoughts. At times it can. It depends on the individual. BUT I know from personal experience that NO ONE knows all the little things like another CFer. The mental thoughts (big or small), the constant physical issues of something or another (big or small) and the "confusion" that comes with it all at times. I have seen people come to the internet seeking "support" and end up in worse shape emotionally then when they started. BUT as I said its depends on the individual. IF you are looking for someone just to "get it" then you are in the right spot. If you are seeking something other then support, education or empowerment then maybe your Mom is right. Given how she seems to not even be able to grasp the idea of your having CF IMHO puts her in denial and that denial is easier to maintain of you also are in it. KUDOS for doing what you feel is right for YOU! As far as not letting CF take over your life....it is hard. When you cant miss a treatment or eat spotaneously without enzymes or be on the go like someone else.....its a constant reminder. HOWEVER; if you can seperate activities that would remind you of CF (running or lack of being able to run) versus playing cards with a group of friends then you have the upper hand. Basically do what is best for you, but try to do it responsibly! Sometimes an alcholic benefits from going to AA meetings and sometimes its too much of a reminder how alcohol has consumed their life....CF is no different!