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Cystic Fibrosis Forum (EXP)

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Definitive Diagnosis and ?'s

Rebjane

Super Moderator
I'm sorry for your son's CF diagnosis, but it's great that his numbers look good and he's doing well. I do not know alot about atypical CF but I think preventative care is always a good thing. It seems reasonable to learn how to do CPT/nebs in case he gets sick. Some CF docs do put patients on CPT regardless of lung involvement because CF is a progressive disease. Of course, encourageing an active, healthy lifestyle is a good preventative thing in CF; sports, exersize, well-rounded healthy diet with good fats(omega3 fats). Your son should be very involved in learning about CF as he is so close to becoming an adult.
 

Rebjane

Super Moderator
I'm sorry for your son's CF diagnosis, but it's great that his numbers look good and he's doing well. I do not know alot about atypical CF but I think preventative care is always a good thing. It seems reasonable to learn how to do CPT/nebs in case he gets sick. Some CF docs do put patients on CPT regardless of lung involvement because CF is a progressive disease. Of course, encourageing an active, healthy lifestyle is a good preventative thing in CF; sports, exersize, well-rounded healthy diet with good fats(omega3 fats). Your son should be very involved in learning about CF as he is so close to becoming an adult.
 

Rebjane

Super Moderator
I'm sorry for your son's CF diagnosis, but it's great that his numbers look good and he's doing well. I do not know alot about atypical CF but I think preventative care is always a good thing. It seems reasonable to learn how to do CPT/nebs in case he gets sick. Some CF docs do put patients on CPT regardless of lung involvement because CF is a progressive disease. Of course, encourageing an active, healthy lifestyle is a good preventative thing in CF; sports, exersize, well-rounded healthy diet with good fats(omega3 fats). Your son should be very involved in learning about CF as he is so close to becoming an adult.
 

Rebjane

Super Moderator
I'm sorry for your son's CF diagnosis, but it's great that his numbers look good and he's doing well. I do not know alot about atypical CF but I think preventative care is always a good thing. It seems reasonable to learn how to do CPT/nebs in case he gets sick. Some CF docs do put patients on CPT regardless of lung involvement because CF is a progressive disease. Of course, encourageing an active, healthy lifestyle is a good preventative thing in CF; sports, exersize, well-rounded healthy diet with good fats(omega3 fats). Your son should be very involved in learning about CF as he is so close to becoming an adult.
 
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