What's new
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

denufosol

rvm1212

New member
HI. I remember some people on this forum were on denufosol´s trial. I was wondering how the thing is going so far.
Thank you
 

rvm1212

New member
HI. I remember some people on this forum were on denufosol´s trial. I was wondering how the thing is going so far.
Thank you
 

rvm1212

New member
HI. I remember some people on this forum were on denufosol´s trial. I was wondering how the thing is going so far.
Thank you
 

rvm1212

New member
HI. I remember some people on this forum were on denufosol´s trial. I was wondering how the thing is going so far.
Thank you
 

rvm1212

New member
HI. I remember some people on this forum were on denufosol´s trial. I was wondering how the thing is going so far.
Thank you
 

DarbSkull

New member
I've been in the trial a little over a month now. I don't know whether I'm on the drug or the placebo but I kinda suspect the placebo. I'm doing my best to make all my doses though. You have to do it 3 times a day, so sometimes that middle one is tough. I think I've only missed 2 doses in 5 weeks though.
 

DarbSkull

New member
I've been in the trial a little over a month now. I don't know whether I'm on the drug or the placebo but I kinda suspect the placebo. I'm doing my best to make all my doses though. You have to do it 3 times a day, so sometimes that middle one is tough. I think I've only missed 2 doses in 5 weeks though.
 

DarbSkull

New member
I've been in the trial a little over a month now. I don't know whether I'm on the drug or the placebo but I kinda suspect the placebo. I'm doing my best to make all my doses though. You have to do it 3 times a day, so sometimes that middle one is tough. I think I've only missed 2 doses in 5 weeks though.
 

DarbSkull

New member
I've been in the trial a little over a month now. I don't know whether I'm on the drug or the placebo but I kinda suspect the placebo. I'm doing my best to make all my doses though. You have to do it 3 times a day, so sometimes that middle one is tough. I think I've only missed 2 doses in 5 weeks though.
 

DarbSkull

New member
I've been in the trial a little over a month now. I don't know whether I'm on the drug or the placebo but I kinda suspect the placebo. I'm doing my best to make all my doses though. You have to do it 3 times a day, so sometimes that middle one is tough. I think I've only missed 2 doses in 5 weeks though.
 

treehugger

New member
I did the 6 month period when you don't know what you are getting and now I am getting the drug and have used it for 3 months with 3 months to go. I asked the doctor if I should expect higher lung function from it (which I didn't get but I am in the low 90s to begin with) and he told me that they expect the drug to reduce the number of excacerbations. The next trial with be with a powder to reduce the 15 minutes to an Advair like puff. The middle of the day dose is the hardest and the one I miss the most.
 

treehugger

New member
I did the 6 month period when you don't know what you are getting and now I am getting the drug and have used it for 3 months with 3 months to go. I asked the doctor if I should expect higher lung function from it (which I didn't get but I am in the low 90s to begin with) and he told me that they expect the drug to reduce the number of excacerbations. The next trial with be with a powder to reduce the 15 minutes to an Advair like puff. The middle of the day dose is the hardest and the one I miss the most.
 

treehugger

New member
I did the 6 month period when you don't know what you are getting and now I am getting the drug and have used it for 3 months with 3 months to go. I asked the doctor if I should expect higher lung function from it (which I didn't get but I am in the low 90s to begin with) and he told me that they expect the drug to reduce the number of excacerbations. The next trial with be with a powder to reduce the 15 minutes to an Advair like puff. The middle of the day dose is the hardest and the one I miss the most.
 

treehugger

New member
I did the 6 month period when you don't know what you are getting and now I am getting the drug and have used it for 3 months with 3 months to go. I asked the doctor if I should expect higher lung function from it (which I didn't get but I am in the low 90s to begin with) and he told me that they expect the drug to reduce the number of excacerbations. The next trial with be with a powder to reduce the 15 minutes to an Advair like puff. The middle of the day dose is the hardest and the one I miss the most.
 

treehugger

New member
I did the 6 month period when you don't know what you are getting and now I am getting the drug and have used it for 3 months with 3 months to go. I asked the doctor if I should expect higher lung function from it (which I didn't get but I am in the low 90s to begin with) and he told me that they expect the drug to reduce the number of excacerbations. The next trial with be with a powder to reduce the 15 minutes to an Advair like puff. The middle of the day dose is the hardest and the one I miss the most.
 
B

Brian1986

Guest
I have about a month left, and it hasn't cured my CF (I wish!) but it has increased my lung function and (maybe?) kept me from illness. It really is a nice drug. I hope it's approved and sold on the market soon. The main problem with it, as has been said, is that it's a three times a day treatment. Very irritating. But it works!

Denufosol works on the chloride channel, right? I safety tested a drug on the sodium channel last year... I wonder how progress on that drug's going.
 
B

Brian1986

Guest
I have about a month left, and it hasn't cured my CF (I wish!) but it has increased my lung function and (maybe?) kept me from illness. It really is a nice drug. I hope it's approved and sold on the market soon. The main problem with it, as has been said, is that it's a three times a day treatment. Very irritating. But it works!

Denufosol works on the chloride channel, right? I safety tested a drug on the sodium channel last year... I wonder how progress on that drug's going.
 
B

Brian1986

Guest
I have about a month left, and it hasn't cured my CF (I wish!) but it has increased my lung function and (maybe?) kept me from illness. It really is a nice drug. I hope it's approved and sold on the market soon. The main problem with it, as has been said, is that it's a three times a day treatment. Very irritating. But it works!

Denufosol works on the chloride channel, right? I safety tested a drug on the sodium channel last year... I wonder how progress on that drug's going.
 
B

Brian1986

Guest
I have about a month left, and it hasn't cured my CF (I wish!) but it has increased my lung function and (maybe?) kept me from illness. It really is a nice drug. I hope it's approved and sold on the market soon. The main problem with it, as has been said, is that it's a three times a day treatment. Very irritating. But it works!

Denufosol works on the chloride channel, right? I safety tested a drug on the sodium channel last year... I wonder how progress on that drug's going.
 
B

Brian1986

Guest
I have about a month left, and it hasn't cured my CF (I wish!) but it has increased my lung function and (maybe?) kept me from illness. It really is a nice drug. I hope it's approved and sold on the market soon. The main problem with it, as has been said, is that it's a three times a day treatment. Very irritating. But it works!

Denufosol works on the chloride channel, right? I safety tested a drug on the sodium channel last year... I wonder how progress on that drug's going.
 
Top