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Did insurance cover genetic testing for your kids?

B

beleache

New member
My husband it going to be test soon through Ambry (we have the script, just have to go) My younger sons are 15 and 18. The 15 y/o was sweat tested twice and the 18 y/o once.. Since we have found that the gene does run on my husbands side i have been worried about my sons.. Soooo , if my husband it neg. we won't go any farther w/ testing. If he carries the gene the boys will get genetically tested... I hope our ins. will cover the costs. I think they will. If it turns out that they don't i will let you know (if i remember,lol) I hope and pray your daughter is neg.. <img src="i/expressions/heart.gif" border="0"> joni
 
B

beleache

New member
My husband it going to be test soon through Ambry (we have the script, just have to go) My younger sons are 15 and 18. The 15 y/o was sweat tested twice and the 18 y/o once.. Since we have found that the gene does run on my husbands side i have been worried about my sons.. Soooo , if my husband it neg. we won't go any farther w/ testing. If he carries the gene the boys will get genetically tested... I hope our ins. will cover the costs. I think they will. If it turns out that they don't i will let you know (if i remember,lol) I hope and pray your daughter is neg.. <img src="i/expressions/heart.gif" border="0"> joni
 
B

beleache

New member
My husband it going to be test soon through Ambry (we have the script, just have to go) My younger sons are 15 and 18. The 15 y/o was sweat tested twice and the 18 y/o once.. Since we have found that the gene does run on my husbands side i have been worried about my sons.. Soooo , if my husband it neg. we won't go any farther w/ testing. If he carries the gene the boys will get genetically tested... I hope our ins. will cover the costs. I think they will. If it turns out that they don't i will let you know (if i remember,lol) I hope and pray your daughter is neg.. <img src="i/expressions/heart.gif" border="0"> joni
 
B

beleache

New member
My husband it going to be test soon through Ambry (we have the script, just have to go) My younger sons are 15 and 18. The 15 y/o was sweat tested twice and the 18 y/o once.. Since we have found that the gene does run on my husbands side i have been worried about my sons.. Soooo , if my husband it neg. we won't go any farther w/ testing. If he carries the gene the boys will get genetically tested... I hope our ins. will cover the costs. I think they will. If it turns out that they don't i will let you know (if i remember,lol) I hope and pray your daughter is neg.. <img src="i/expressions/heart.gif" border="0"> joni
 
B

beleache

New member
My husband it going to be test soon through Ambry (we have the script, just have to go) My younger sons are 15 and 18. The 15 y/o was sweat tested twice and the 18 y/o once.. Since we have found that the gene does run on my husbands side i have been worried about my sons.. Soooo , if my husband it neg. we won't go any farther w/ testing. If he carries the gene the boys will get genetically tested... I hope our ins. will cover the costs. I think they will. If it turns out that they don't i will let you know (if i remember,lol) I hope and pray your daughter is neg.. <img src="i/expressions/heart.gif" border="0"> joni
 
M

Momtana

New member
Juliet - my insurance company did, and covered it quite well. We had the advantage (of sorts) that our medical expenses were pretty high that year as it was the year of my diagnosis. My own genetic testing only showed Df506 so the first child to be tested had the big screen - $3000 with Ambry. The other two, tested a few weeks later, were only tested for my two mutations: Df505 and 1336K.
My daughter in law just paid $260 to have the basic panel - she paid because she hadn't yet met her deductible. Let us know about your mother in law, very interesting ...
 
M

Momtana

New member
Juliet - my insurance company did, and covered it quite well. We had the advantage (of sorts) that our medical expenses were pretty high that year as it was the year of my diagnosis. My own genetic testing only showed Df506 so the first child to be tested had the big screen - $3000 with Ambry. The other two, tested a few weeks later, were only tested for my two mutations: Df505 and 1336K.
My daughter in law just paid $260 to have the basic panel - she paid because she hadn't yet met her deductible. Let us know about your mother in law, very interesting ...
 
M

Momtana

New member
Juliet - my insurance company did, and covered it quite well. We had the advantage (of sorts) that our medical expenses were pretty high that year as it was the year of my diagnosis. My own genetic testing only showed Df506 so the first child to be tested had the big screen - $3000 with Ambry. The other two, tested a few weeks later, were only tested for my two mutations: Df505 and 1336K.
My daughter in law just paid $260 to have the basic panel - she paid because she hadn't yet met her deductible. Let us know about your mother in law, very interesting ...
 
M

Momtana

New member
Juliet - my insurance company did, and covered it quite well. We had the advantage (of sorts) that our medical expenses were pretty high that year as it was the year of my diagnosis. My own genetic testing only showed Df506 so the first child to be tested had the big screen - $3000 with Ambry. The other two, tested a few weeks later, were only tested for my two mutations: Df505 and 1336K.
My daughter in law just paid $260 to have the basic panel - she paid because she hadn't yet met her deductible. Let us know about your mother in law, very interesting ...
 
M

Momtana

New member
Juliet - my insurance company did, and covered it quite well. We had the advantage (of sorts) that our medical expenses were pretty high that year as it was the year of my diagnosis. My own genetic testing only showed Df506 so the first child to be tested had the big screen - $3000 with Ambry. The other two, tested a few weeks later, were only tested for my two mutations: Df505 and 1336K.
<br />My daughter in law just paid $260 to have the basic panel - she paid because she hadn't yet met her deductible. Let us know about your mother in law, very interesting ...
 
H

hopesiris

Guest
Yes. Insurance covered testing Amelias cord blood at birth. We needed to check for 5T because I wasnt diagnosed with CF until after prenatal genetic testing was done. Ambry tested for the 5T and Df508, the cost was only $300 since we knew what to look for.

I had the full panel and it cost $3K, so definitely clarify what test they are running.
 
H

hopesiris

Guest
Yes. Insurance covered testing Amelias cord blood at birth. We needed to check for 5T because I wasnt diagnosed with CF until after prenatal genetic testing was done. Ambry tested for the 5T and Df508, the cost was only $300 since we knew what to look for.

I had the full panel and it cost $3K, so definitely clarify what test they are running.
 
H

hopesiris

Guest
Yes. Insurance covered testing Amelias cord blood at birth. We needed to check for 5T because I wasnt diagnosed with CF until after prenatal genetic testing was done. Ambry tested for the 5T and Df508, the cost was only $300 since we knew what to look for.

I had the full panel and it cost $3K, so definitely clarify what test they are running.
 
H

hopesiris

Guest
Yes. Insurance covered testing Amelias cord blood at birth. We needed to check for 5T because I wasnt diagnosed with CF until after prenatal genetic testing was done. Ambry tested for the 5T and Df508, the cost was only $300 since we knew what to look for.

I had the full panel and it cost $3K, so definitely clarify what test they are running.
 
H

hopesiris

Guest
Yes. Insurance covered testing Amelias cord blood at birth. We needed to check for 5T because I wasnt diagnosed with CF until after prenatal genetic testing was done. Ambry tested for the 5T and Df508, the cost was only $300 since we knew what to look for.
<br />
<br />I had the full panel and it cost $3K, so definitely clarify what test they are running.
 
J

Juliet

New member
Thanks for the input. When my CF center sends in her test they'll be listing my genetic results / info so Ambry can link us up together and know what to look for. I thought about getting my husband tested, but he has no symptoms either. I figured it would be best to test my daughter since she's the one I'm concerned about. If my MIL decides to get tested then we can think about having DH tested depending on Grandma's results. She'll be out visiting us next month so we'll talk about it then. There's no rush on any of this. ~Juliet
 
J

Juliet

New member
Thanks for the input. When my CF center sends in her test they'll be listing my genetic results / info so Ambry can link us up together and know what to look for. I thought about getting my husband tested, but he has no symptoms either. I figured it would be best to test my daughter since she's the one I'm concerned about. If my MIL decides to get tested then we can think about having DH tested depending on Grandma's results. She'll be out visiting us next month so we'll talk about it then. There's no rush on any of this. ~Juliet
 
J

Juliet

New member
Thanks for the input. When my CF center sends in her test they'll be listing my genetic results / info so Ambry can link us up together and know what to look for. I thought about getting my husband tested, but he has no symptoms either. I figured it would be best to test my daughter since she's the one I'm concerned about. If my MIL decides to get tested then we can think about having DH tested depending on Grandma's results. She'll be out visiting us next month so we'll talk about it then. There's no rush on any of this. ~Juliet
 
J

Juliet

New member
Thanks for the input. When my CF center sends in her test they'll be listing my genetic results / info so Ambry can link us up together and know what to look for. I thought about getting my husband tested, but he has no symptoms either. I figured it would be best to test my daughter since she's the one I'm concerned about. If my MIL decides to get tested then we can think about having DH tested depending on Grandma's results. She'll be out visiting us next month so we'll talk about it then. There's no rush on any of this. ~Juliet
 
J

Juliet

New member
Thanks for the input. When my CF center sends in her test they'll be listing my genetic results / info so Ambry can link us up together and know what to look for. I thought about getting my husband tested, but he has no symptoms either. I figured it would be best to test my daughter since she's the one I'm concerned about. If my MIL decides to get tested then we can think about having DH tested depending on Grandma's results. She'll be out visiting us next month so we'll talk about it then. There's no rush on any of this. ~Juliet
 
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