don't belong?

[anonymous]

I am the one who wrote the post on suspicions. I have been hunting for some place that I may belong. Do you know a chat room with similar symptoms but no CF dx? i have FEV1 of 30%. No Dx yet of CF because as of yet only had a sweat test @ 18. I know you wrote I should get tested. I can't believe all the stuff you write how I can relate. I had to say that again. Any way I woke last night with even another thought. My mom has had lung symptoms all her life and sinus problems severe. And then I thought about my brother who has lung symptoms of a mild nature but has been married for 25 years and have no children. My sister-in-law said I guess we aren't having them. It just popped into my head. Is it CF also? I know thats not the only reason people don't have children but it was just a thought as I comtemplated all this. I feel as though I have invaded your site, and I am sorry. Just one last question. My doctor has talked to me about transplant, at what point does this happen?Thanx again for reading.

 

[anonymous]

<blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i>I am the one who wrote the post on suspicions. I have been hunting for some place that I may belong. Do you know a chat room with similar symptoms but no CF dx? i have FEV1 of 30%. No Dx yet of CF because as of yet only had a sweat test @ 18. I know you wrote I should get tested. I can't believe all the stuff you write how I can relate. I had to say that again. Any way I woke last night with even another thought. My mom has had lung symptoms all her life and sinus problems severe. And then I thought about my brother who has lung symptoms of a mild nature but has been married for 25 years and have no children. My sister-in-law said I guess we aren't having them. It just popped into my head. Is it CF also? I know thats not the only reason people don't have children but it was just a thought as I comtemplated all this. I feel as though I have invaded your site, and I am sorry. Just one last question. My doctor has talked to me about transplant, at what point does this happen?Thanx again for reading.<hr></blockquote>I forgot something, this is really important to me. Is pseudomonas contagious?

 

[anonymous]

Concerning your quuestion if pseudomonas is contagious it is absolutely not except among CFers. Pseudomonas is found everywhere and on your skin but you dont get it unless you have CF

 

[anonymous]

Concerning your quuestion if pseudomonas is contagious it is absolutely not except among CFers. Pseudomonas is found everywhere and on your skin but you dont get it unless you have CF

 

[anonymous]

Actually, non-cfers do get pseudomonas, but it's usually in the immune compromised (ie those with cancer, immune deficiencies, people on a vent or those who've been in ICU). It almost never causes problems in a healthy person. Have you been tested for a primary immune deficiency? That could cause some of the problems you're experiencing. It's a series of blood tests. I'm assuming that the biopsy you referred to in your earlier post was to make sure the cilia lining your respiratory tract functions properly? If the cilia doesn't function properly, it can cause symptoms almost identical to cf. (Look up immotile cilia or primary ciliary dyskinesia on google or yahoo), and could explain the symptoms your family has. Personally, I would request a genetics test for cf. In the US, Ambry is the only genetics test that checks for all 1000+ mutations. It costs about $300-$500 US. Just tell your dr that you know he's treating you as if you were a cf patient but for your own peace of mind and for the health of your family you need to KNOW for certain. HTH.