E-flow

CaliSally · May 8, 2008

I don't know where you got your info, but my paperwork says for Disinfecting, you CAN do either of those: boil or dishwasher:

"After cleaning the eflow nebulizer, place the plastic pieces (exluding the aerosol head - the metal piece) into a pan filled with distilled water and boil for 5 minutes
OR
After cleaning the eflow nebulizer, place the pieces (exluding the aerosol head) into a dishwasher basket. Place the dishwasher basket on the top rack of your clean empty dishwasher. Your nebulizer should be in the dishwasher for at least 30 minutes at a water temp of 158* (70*C) or higher, without soap and without dishes."

This is DIRECTLY from THEIR paperwork.

CaliSally · May 8, 2008

I don't know where you got your info, but my paperwork says for Disinfecting, you CAN do either of those: boil or dishwasher:

"After cleaning the eflow nebulizer, place the plastic pieces (exluding the aerosol head - the metal piece) into a pan filled with distilled water and boil for 5 minutes
OR
After cleaning the eflow nebulizer, place the pieces (exluding the aerosol head) into a dishwasher basket. Place the dishwasher basket on the top rack of your clean empty dishwasher. Your nebulizer should be in the dishwasher for at least 30 minutes at a water temp of 158* (70*C) or higher, without soap and without dishes."

This is DIRECTLY from THEIR paperwork.

CaliSally · May 8, 2008

I don't know where you got your info, but my paperwork says for Disinfecting, you CAN do either of those: boil or dishwasher:

"After cleaning the eflow nebulizer, place the plastic pieces (exluding the aerosol head - the metal piece) into a pan filled with distilled water and boil for 5 minutes
OR
After cleaning the eflow nebulizer, place the pieces (exluding the aerosol head) into a dishwasher basket. Place the dishwasher basket on the top rack of your clean empty dishwasher. Your nebulizer should be in the dishwasher for at least 30 minutes at a water temp of 158* (70*C) or higher, without soap and without dishes."

This is DIRECTLY from THEIR paperwork.

CaliSally · May 8, 2008

I don't know where you got your info, but my paperwork says for Disinfecting, you CAN do either of those: boil or dishwasher:

"After cleaning the eflow nebulizer, place the plastic pieces (exluding the aerosol head - the metal piece) into a pan filled with distilled water and boil for 5 minutes
OR
After cleaning the eflow nebulizer, place the pieces (exluding the aerosol head) into a dishwasher basket. Place the dishwasher basket on the top rack of your clean empty dishwasher. Your nebulizer should be in the dishwasher for at least 30 minutes at a water temp of 158* (70*C) or higher, without soap and without dishes."

This is DIRECTLY from THEIR paperwork.

CaliSally · May 8, 2008

I don't know where you got your info, but my paperwork says for Disinfecting, you CAN do either of those: boil or dishwasher:
 
 "After cleaning the eflow nebulizer, place the plastic pieces (exluding the aerosol head - the metal piece) into a pan filled with distilled water and boil for 5 minutes
 OR
 After cleaning the eflow nebulizer, place the pieces (exluding the aerosol head) into a dishwasher basket. Place the dishwasher basket on the top rack of your clean empty dishwasher. Your nebulizer should be in the dishwasher for at least 30 minutes at a water temp of 158* (70*C) or higher, without soap and without dishes."
 
 This is DIRECTLY from THEIR paperwork.

Giggles · May 8, 2008

I know people probably won't like this but I have looked into the Eflow myself and based on my research I decided not to use it. My doctor said pulmozyme and TOBI have not been studied using the Eflow so therefore I am not comfortable using this device. My doc did say that Albuterol should be okay but the other two meds are not approved with the device and for me I am not comfortable taking any chances.

Good luck. Again, everyone is different and need to decide for themselves what they are comfortable with but for me Eflow scares me.

Jennifer 36 years old with CF and CFRD

Giggles · May 8, 2008

I know people probably won't like this but I have looked into the Eflow myself and based on my research I decided not to use it. My doctor said pulmozyme and TOBI have not been studied using the Eflow so therefore I am not comfortable using this device. My doc did say that Albuterol should be okay but the other two meds are not approved with the device and for me I am not comfortable taking any chances.

Good luck. Again, everyone is different and need to decide for themselves what they are comfortable with but for me Eflow scares me.

Jennifer 36 years old with CF and CFRD

Giggles · May 8, 2008

I know people probably won't like this but I have looked into the Eflow myself and based on my research I decided not to use it. My doctor said pulmozyme and TOBI have not been studied using the Eflow so therefore I am not comfortable using this device. My doc did say that Albuterol should be okay but the other two meds are not approved with the device and for me I am not comfortable taking any chances.

Good luck. Again, everyone is different and need to decide for themselves what they are comfortable with but for me Eflow scares me.

Jennifer 36 years old with CF and CFRD

Giggles · May 8, 2008

I know people probably won't like this but I have looked into the Eflow myself and based on my research I decided not to use it. My doctor said pulmozyme and TOBI have not been studied using the Eflow so therefore I am not comfortable using this device. My doc did say that Albuterol should be okay but the other two meds are not approved with the device and for me I am not comfortable taking any chances.

Good luck. Again, everyone is different and need to decide for themselves what they are comfortable with but for me Eflow scares me.

Jennifer 36 years old with CF and CFRD

Giggles · May 8, 2008

I know people probably won't like this but I have looked into the Eflow myself and based on my research I decided not to use it. My doctor said pulmozyme and TOBI have not been studied using the Eflow so therefore I am not comfortable using this device. My doc did say that Albuterol should be okay but the other two meds are not approved with the device and for me I am not comfortable taking any chances.
 
 Good luck. Again, everyone is different and need to decide for themselves what they are comfortable with but for me Eflow scares me.
 
 Jennifer 36 years old with CF and CFRD

ladybug · May 8, 2008

<div class="FTQUOTE"><begin quote>Originally posted by: CaliSally

I don't know where you got your info, but my paperwork says for Disinfecting, you CAN do either of those: boil or dishwasher:

"After cleaning the eflow nebulizer, place the plastic pieces (exluding the aerosol head - the metal piece) into a pan filled with distilled water and boil for 5 minutes

OR

After cleaning the eflow nebulizer, place the pieces (exluding the aerosol head) into a dishwasher basket. Place the dishwasher basket on the top rack of your clean empty dishwasher. Your nebulizer should be in the dishwasher for at least 30 minutes at a water temp of 158* (70*C) or higher, without soap and without dishes."

This is DIRECTLY from THEIR paperwork.</end quote></div>

What kind of paperwork? I have the instructions for use booklet, which is completely opposite the IV solutions sales rep told me anyway (i.e. on pages 22-23 it says to run it under tap water... a no-no for pseudomonas and it also says to rinse after disinfecting with warm tap water... huh? are you kidding me?) so, I'm not using the literature and instead going by what I was told via phone when I set this thing up. She said it cannot be boiled nor can you put the parts in the dishwasher and to run distilled water over it and use distilled soapy water to clean and then rinse with sterile water. Once a week to soak in 70% isopropyl alcohol. 

It worries me a lot that the E-flow has such conflicting information. That in itself worries me that either their sales reps or their literature, in some cases, is wrong or inconsitent with CF germ control practices.

I disagree that it is worth the 2-3 minutes I save on my treatments when I have to buy the sterile water (or boil my own, let it cool, and store it), and go to buy the distilled water (I needed about a gallon of the stuff every 3 days or so cause you have to rinse it over the top of the pieces) and find somewhere to store that as well. It just seems like a hassle to me, when PARI LC-PLUS is soooo easy to clean and disinfect every day and doesn't cost me a thing since I can wash it with my dishes. The only extra step is if I boil them to disinfect, but even then I'm disinfecting a bunch of nebs and not just one "special" one. JMO.

ladybug · May 8, 2008

<div class="FTQUOTE"><begin quote>Originally posted by: CaliSally

I don't know where you got your info, but my paperwork says for Disinfecting, you CAN do either of those: boil or dishwasher:

"After cleaning the eflow nebulizer, place the plastic pieces (exluding the aerosol head - the metal piece) into a pan filled with distilled water and boil for 5 minutes

OR

After cleaning the eflow nebulizer, place the pieces (exluding the aerosol head) into a dishwasher basket. Place the dishwasher basket on the top rack of your clean empty dishwasher. Your nebulizer should be in the dishwasher for at least 30 minutes at a water temp of 158* (70*C) or higher, without soap and without dishes."

This is DIRECTLY from THEIR paperwork.</end quote></div>

What kind of paperwork? I have the instructions for use booklet, which is completely opposite the IV solutions sales rep told me anyway (i.e. on pages 22-23 it says to run it under tap water... a no-no for pseudomonas and it also says to rinse after disinfecting with warm tap water... huh? are you kidding me?) so, I'm not using the literature and instead going by what I was told via phone when I set this thing up. She said it cannot be boiled nor can you put the parts in the dishwasher and to run distilled water over it and use distilled soapy water to clean and then rinse with sterile water. Once a week to soak in 70% isopropyl alcohol. 

It worries me a lot that the E-flow has such conflicting information. That in itself worries me that either their sales reps or their literature, in some cases, is wrong or inconsitent with CF germ control practices.

I disagree that it is worth the 2-3 minutes I save on my treatments when I have to buy the sterile water (or boil my own, let it cool, and store it), and go to buy the distilled water (I needed about a gallon of the stuff every 3 days or so cause you have to rinse it over the top of the pieces) and find somewhere to store that as well. It just seems like a hassle to me, when PARI LC-PLUS is soooo easy to clean and disinfect every day and doesn't cost me a thing since I can wash it with my dishes. The only extra step is if I boil them to disinfect, but even then I'm disinfecting a bunch of nebs and not just one "special" one. JMO.

ladybug · May 8, 2008

<div class="FTQUOTE"><begin quote>Originally posted by: CaliSally

I don't know where you got your info, but my paperwork says for Disinfecting, you CAN do either of those: boil or dishwasher:

"After cleaning the eflow nebulizer, place the plastic pieces (exluding the aerosol head - the metal piece) into a pan filled with distilled water and boil for 5 minutes

OR

After cleaning the eflow nebulizer, place the pieces (exluding the aerosol head) into a dishwasher basket. Place the dishwasher basket on the top rack of your clean empty dishwasher. Your nebulizer should be in the dishwasher for at least 30 minutes at a water temp of 158* (70*C) or higher, without soap and without dishes."

This is DIRECTLY from THEIR paperwork.</end quote></div>

What kind of paperwork? I have the instructions for use booklet, which is completely opposite the IV solutions sales rep told me anyway (i.e. on pages 22-23 it says to run it under tap water... a no-no for pseudomonas and it also says to rinse after disinfecting with warm tap water... huh? are you kidding me?) so, I'm not using the literature and instead going by what I was told via phone when I set this thing up. She said it cannot be boiled nor can you put the parts in the dishwasher and to run distilled water over it and use distilled soapy water to clean and then rinse with sterile water. Once a week to soak in 70% isopropyl alcohol. 

It worries me a lot that the E-flow has such conflicting information. That in itself worries me that either their sales reps or their literature, in some cases, is wrong or inconsitent with CF germ control practices.

I disagree that it is worth the 2-3 minutes I save on my treatments when I have to buy the sterile water (or boil my own, let it cool, and store it), and go to buy the distilled water (I needed about a gallon of the stuff every 3 days or so cause you have to rinse it over the top of the pieces) and find somewhere to store that as well. It just seems like a hassle to me, when PARI LC-PLUS is soooo easy to clean and disinfect every day and doesn't cost me a thing since I can wash it with my dishes. The only extra step is if I boil them to disinfect, but even then I'm disinfecting a bunch of nebs and not just one "special" one. JMO.

ladybug · May 8, 2008

<div class="FTQUOTE"><begin quote>Originally posted by: CaliSally

I don't know where you got your info, but my paperwork says for Disinfecting, you CAN do either of those: boil or dishwasher:

"After cleaning the eflow nebulizer, place the plastic pieces (exluding the aerosol head - the metal piece) into a pan filled with distilled water and boil for 5 minutes

OR

After cleaning the eflow nebulizer, place the pieces (exluding the aerosol head) into a dishwasher basket. Place the dishwasher basket on the top rack of your clean empty dishwasher. Your nebulizer should be in the dishwasher for at least 30 minutes at a water temp of 158* (70*C) or higher, without soap and without dishes."

This is DIRECTLY from THEIR paperwork.</end quote>

What kind of paperwork? I have the instructions for use booklet, which is completely opposite the IV solutions sales rep told me anyway (i.e. on pages 22-23 it says to run it under tap water... a no-no for pseudomonas and it also says to rinse after disinfecting with warm tap water... huh? are you kidding me?) so, I'm not using the literature and instead going by what I was told via phone when I set this thing up. She said it cannot be boiled nor can you put the parts in the dishwasher and to run distilled water over it and use distilled soapy water to clean and then rinse with sterile water. Once a week to soak in 70% isopropyl alcohol. 

It worries me a lot that the E-flow has such conflicting information. That in itself worries me that either their sales reps or their literature, in some cases, is wrong or inconsitent with CF germ control practices.

I disagree that it is worth the 2-3 minutes I save on my treatments when I have to buy the sterile water (or boil my own, let it cool, and store it), and go to buy the distilled water (I needed about a gallon of the stuff every 3 days or so cause you have to rinse it over the top of the pieces) and find somewhere to store that as well. It just seems like a hassle to me, when PARI LC-PLUS is soooo easy to clean and disinfect every day and doesn't cost me a thing since I can wash it with my dishes. The only extra step is if I boil them to disinfect, but even then I'm disinfecting a bunch of nebs and not just one "special" one. JMO.

ladybug · May 8, 2008

<div class="FTQUOTE"><begin quote>Originally posted by: CaliSally
 
 I don't know where you got your info, but my paperwork says for Disinfecting, you CAN do either of those: boil or dishwasher:
 
 
 
 "After cleaning the eflow nebulizer, place the plastic pieces (exluding the aerosol head - the metal piece) into a pan filled with distilled water and boil for 5 minutes
 
 OR
 
 After cleaning the eflow nebulizer, place the pieces (exluding the aerosol head) into a dishwasher basket. Place the dishwasher basket on the top rack of your clean empty dishwasher. Your nebulizer should be in the dishwasher for at least 30 minutes at a water temp of 158* (70*C) or higher, without soap and without dishes."
 
 
 
 This is DIRECTLY from THEIR paperwork.</end quote>
 
 What kind of paperwork? I have the instructions for use booklet, which is completely opposite the IV solutions sales rep told me anyway (i.e. on pages 22-23 it says to run it under tap water... a no-no for pseudomonas and it also says to rinse after disinfecting with warm tap water... huh? are you kidding me?) so, I'm not using the literature and instead going by what I was told via phone when I set this thing up. She said it cannot be boiled nor can you put the parts in the dishwasher and to run distilled water over it and use distilled soapy water to clean and then rinse with sterile water. Once a week to soak in 70% isopropyl alcohol. 
 
 It worries me a lot that the E-flow has such conflicting information. That in itself worries me that either their sales reps or their literature, in some cases, is wrong or inconsitent with CF germ control practices.
 
 I disagree that it is worth the 2-3 minutes I save on my treatments when I have to buy the sterile water (or boil my own, let it cool, and store it), and go to buy the distilled water (I needed about a gallon of the stuff every 3 days or so cause you have to rinse it over the top of the pieces) and find somewhere to store that as well. It just seems like a hassle to me, when PARI LC-PLUS is soooo easy to clean and disinfect every day and doesn't cost me a thing since I can wash it with my dishes. The only extra step is if I boil them to disinfect, but even then I'm disinfecting a bunch of nebs and not just one "special" one. JMO.

ladybug · May 8, 2008

<div class="FTQUOTE"><begin quote>Originally posted by: Giggles

I know people probably won't like this but I have looked into the Eflow myself and based on my research I decided not to use it. My doctor said pulmozyme and TOBI have not been studied using the Eflow so therefore I am not comfortable using this device. My doc did say that Albuterol should be okay but the other two meds are not approved with the device and for me I am not comfortable taking any chances.

Good luck. Again, everyone is different and need to decide for themselves what they are comfortable with but for me Eflow scares me.

Jennifer 36 years old with CF and CFRD</end quote></div>

I agree, Jennifer, to each their own. I was told by my clinic I could use it just for colistyn (again, conflicting information from other posters, which isn't necessarily a good sign) and maybe for trials in the future for aerosoled meds since many are tested using it. My clinic only suggested it for the time it cuts treatments, and not so much cause I'm not getting the coli through the PARI, but again, I don't think it saves me any time at all in the long run.

ladybug · May 8, 2008

<div class="FTQUOTE"><begin quote>Originally posted by: Giggles

I know people probably won't like this but I have looked into the Eflow myself and based on my research I decided not to use it. My doctor said pulmozyme and TOBI have not been studied using the Eflow so therefore I am not comfortable using this device. My doc did say that Albuterol should be okay but the other two meds are not approved with the device and for me I am not comfortable taking any chances.

Good luck. Again, everyone is different and need to decide for themselves what they are comfortable with but for me Eflow scares me.

Jennifer 36 years old with CF and CFRD</end quote></div>

I agree, Jennifer, to each their own. I was told by my clinic I could use it just for colistyn (again, conflicting information from other posters, which isn't necessarily a good sign) and maybe for trials in the future for aerosoled meds since many are tested using it. My clinic only suggested it for the time it cuts treatments, and not so much cause I'm not getting the coli through the PARI, but again, I don't think it saves me any time at all in the long run.

ladybug · May 8, 2008

<div class="FTQUOTE"><begin quote>Originally posted by: Giggles

I know people probably won't like this but I have looked into the Eflow myself and based on my research I decided not to use it. My doctor said pulmozyme and TOBI have not been studied using the Eflow so therefore I am not comfortable using this device. My doc did say that Albuterol should be okay but the other two meds are not approved with the device and for me I am not comfortable taking any chances.

Good luck. Again, everyone is different and need to decide for themselves what they are comfortable with but for me Eflow scares me.

Jennifer 36 years old with CF and CFRD</end quote></div>

I agree, Jennifer, to each their own. I was told by my clinic I could use it just for colistyn (again, conflicting information from other posters, which isn't necessarily a good sign) and maybe for trials in the future for aerosoled meds since many are tested using it. My clinic only suggested it for the time it cuts treatments, and not so much cause I'm not getting the coli through the PARI, but again, I don't think it saves me any time at all in the long run.

ladybug · May 8, 2008

<div class="FTQUOTE"><begin quote>Originally posted by: Giggles

I know people probably won't like this but I have looked into the Eflow myself and based on my research I decided not to use it. My doctor said pulmozyme and TOBI have not been studied using the Eflow so therefore I am not comfortable using this device. My doc did say that Albuterol should be okay but the other two meds are not approved with the device and for me I am not comfortable taking any chances.

Good luck. Again, everyone is different and need to decide for themselves what they are comfortable with but for me Eflow scares me.

Jennifer 36 years old with CF and CFRD</end quote>

I agree, Jennifer, to each their own. I was told by my clinic I could use it just for colistyn (again, conflicting information from other posters, which isn't necessarily a good sign) and maybe for trials in the future for aerosoled meds since many are tested using it. My clinic only suggested it for the time it cuts treatments, and not so much cause I'm not getting the coli through the PARI, but again, I don't think it saves me any time at all in the long run.

ladybug · May 8, 2008

<div class="FTQUOTE"><begin quote>Originally posted by: Giggles
 
 I know people probably won't like this but I have looked into the Eflow myself and based on my research I decided not to use it. My doctor said pulmozyme and TOBI have not been studied using the Eflow so therefore I am not comfortable using this device. My doc did say that Albuterol should be okay but the other two meds are not approved with the device and for me I am not comfortable taking any chances.
 
 
 
 Good luck. Again, everyone is different and need to decide for themselves what they are comfortable with but for me Eflow scares me.
 
 
 
 Jennifer 36 years old with CF and CFRD</end quote>
 
 I agree, Jennifer, to each their own. I was told by my clinic I could use it just for colistyn (again, conflicting information from other posters, which isn't necessarily a good sign) and maybe for trials in the future for aerosoled meds since many are tested using it. My clinic only suggested it for the time it cuts treatments, and not so much cause I'm not getting the coli through the PARI, but again, I don't think it saves me any time at all in the long run.

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