What's new
By:
Filters
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

eflow

N

NYCLawGirl

New member
I think you can buy from foundation care, although maybe the policies have changed since I discussed it with them. But I was also warned not to use TOBI with the eflow, so before you do anything you may want to confirm that doing so is safe. I believe the dose of tobramyacin in TOBI is too high for the eflow's more efficient delivery. Someone please correct me if I'm wrong on that.
 
N

NYCLawGirl

New member
I think you can buy from foundation care, although maybe the policies have changed since I discussed it with them. But I was also warned not to use TOBI with the eflow, so before you do anything you may want to confirm that doing so is safe. I believe the dose of tobramyacin in TOBI is too high for the eflow's more efficient delivery. Someone please correct me if I'm wrong on that.
 
N

NYCLawGirl

New member
I think you can buy from foundation care, although maybe the policies have changed since I discussed it with them. But I was also warned not to use TOBI with the eflow, so before you do anything you may want to confirm that doing so is safe. I believe the dose of tobramyacin in TOBI is too high for the eflow's more efficient delivery. Someone please correct me if I'm wrong on that.
 
N

NYCLawGirl

New member
I think you can buy from foundation care, although maybe the policies have changed since I discussed it with them. But I was also warned not to use TOBI with the eflow, so before you do anything you may want to confirm that doing so is safe. I believe the dose of tobramyacin in TOBI is too high for the eflow's more efficient delivery. Someone please correct me if I'm wrong on that.
 
N

NYCLawGirl

New member
I think you can buy from foundation care, although maybe the policies have changed since I discussed it with them. But I was also warned not to use TOBI with the eflow, so before you do anything you may want to confirm that doing so is safe. I believe the dose of tobramyacin in TOBI is too high for the eflow's more efficient delivery. Someone please correct me if I'm wrong on that.
 
N

nu65

New member
I just found out today that my old pediatric doctors and the Cystic Fibrosis Foundation don't advocate the E-flow at all. I have one but do not use it anymore because it was a pain in the ass to use. You have clean it all the time and it gets clogged easy. Yes, treatments take like 1/2 the time, but I was so frustrated with the process!!

Just a warning, I know other people have complained about the E-flow on other threads.
 
N

nu65

New member
I just found out today that my old pediatric doctors and the Cystic Fibrosis Foundation don't advocate the E-flow at all. I have one but do not use it anymore because it was a pain in the ass to use. You have clean it all the time and it gets clogged easy. Yes, treatments take like 1/2 the time, but I was so frustrated with the process!!

Just a warning, I know other people have complained about the E-flow on other threads.
 
N

nu65

New member
I just found out today that my old pediatric doctors and the Cystic Fibrosis Foundation don't advocate the E-flow at all. I have one but do not use it anymore because it was a pain in the ass to use. You have clean it all the time and it gets clogged easy. Yes, treatments take like 1/2 the time, but I was so frustrated with the process!!

Just a warning, I know other people have complained about the E-flow on other threads.
 
N

nu65

New member
I just found out today that my old pediatric doctors and the Cystic Fibrosis Foundation don't advocate the E-flow at all. I have one but do not use it anymore because it was a pain in the ass to use. You have clean it all the time and it gets clogged easy. Yes, treatments take like 1/2 the time, but I was so frustrated with the process!!

Just a warning, I know other people have complained about the E-flow on other threads.
 
N

nu65

New member
I just found out today that my old pediatric doctors and the Cystic Fibrosis Foundation don't advocate the E-flow at all. I have one but do not use it anymore because it was a pain in the ass to use. You have clean it all the time and it gets clogged easy. Yes, treatments take like 1/2 the time, but I was so frustrated with the process!!
<br />
<br />Just a warning, I know other people have complained about the E-flow on other threads.
 
You must log in or register to reply here.
Top