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Cystic Fibrosis Forum (EXP)

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Feeding Tube Help

anonymous

New member
Hello,I have a gj-tube in my belly. I was told that once the track had formed i could get it changed from being about 6 inches of bulk hanging out of me to a button on my skin. Now that it has healed i have been told that they can't put in a button, ya wanna know thier reasoning?? Because the tried it in ONE, only ONE other person and it didn't work. What a bunch of crap, they continuously tell us that each case is unique but at the same time when it is convenient they cluster cases together. I am moving in 2 weeks, so i am going to talk to docs and the hospital there to see if they can do it. I am just wondering if anyone else has this type of feeding tube and if they were able to get a button placed. MSG here or email me at juliebowers007@hotmail.comYour fellow CFer,Julie
 

anonymous

New member
My son had one put in at age five they immediately put a Mikey (Brand name) button in. My son is now 12 and still has a button. But most people I know start with a tube like yours and then once healed go to the mikey button. Good luck.MOM to 3
 

anonymous

New member
We just had one put in our daughter...it is working well but started as a disaster! Anyhow, we had a tube, to small. then they pulled that out..really hurt! now she has a Micky as well. it is soooo much better, you deflate and in flate to take out. much better!!!! Get a Micky!!!!!!<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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