Feeling careless

jbrandonAW · Sep 15, 2009

man sometimes coming onto the board I feel so careless with my health. I mean I try and eat good. I do my treatments 2 times a day, I try and get an exercise in every day or atleast 3 times a week. But I read some of these posts and it REALLY makes me feel like I am being so careless....however I feel like if I was SOOO careful and just did away with everything so my health was great...what would my life be?

Cold Showers? No pets? 5 hours a day doing treatments?

I feel like I would spend most of my time doing treatments, scrubbing neb cups and my house... and where would that leave my daughter and husband???

I dunno... maybe Im the only one that feels this way.

jbrandonAW · Sep 15, 2009

man sometimes coming onto the board I feel so careless with my health. I mean I try and eat good. I do my treatments 2 times a day, I try and get an exercise in every day or atleast 3 times a week. But I read some of these posts and it REALLY makes me feel like I am being so careless....however I feel like if I was SOOO careful and just did away with everything so my health was great...what would my life be?

Cold Showers? No pets? 5 hours a day doing treatments?

I feel like I would spend most of my time doing treatments, scrubbing neb cups and my house... and where would that leave my daughter and husband???

I dunno... maybe Im the only one that feels this way.

jbrandonAW · Sep 15, 2009

man sometimes coming onto the board I feel so careless with my health. I mean I try and eat good. I do my treatments 2 times a day, I try and get an exercise in every day or atleast 3 times a week. But I read some of these posts and it REALLY makes me feel like I am being so careless....however I feel like if I was SOOO careful and just did away with everything so my health was great...what would my life be?

Cold Showers? No pets? 5 hours a day doing treatments?

I feel like I would spend most of my time doing treatments, scrubbing neb cups and my house... and where would that leave my daughter and husband???

I dunno... maybe Im the only one that feels this way.

jbrandonAW · Sep 15, 2009

man sometimes coming onto the board I feel so careless with my health. I mean I try and eat good. I do my treatments 2 times a day, I try and get an exercise in every day or atleast 3 times a week. But I read some of these posts and it REALLY makes me feel like I am being so careless....however I feel like if I was SOOO careful and just did away with everything so my health was great...what would my life be?

Cold Showers? No pets? 5 hours a day doing treatments?

I feel like I would spend most of my time doing treatments, scrubbing neb cups and my house... and where would that leave my daughter and husband???

I dunno... maybe Im the only one that feels this way.

jbrandonAW · Sep 15, 2009

man sometimes coming onto the board I feel so careless with my health. I mean I try and eat good. I do my treatments 2 times a day, I try and get an exercise in every day or atleast 3 times a week. But I read some of these posts and it REALLY makes me feel like I am being so careless....however I feel like if I was SOOO careful and just did away with everything so my health was great...what would my life be?
 
 Cold Showers? No pets? 5 hours a day doing treatments?
 
 I feel like I would spend most of my time doing treatments, scrubbing neb cups and my house... and where would that leave my daughter and husband???
 
 I dunno... maybe Im the only one that feels this way.

hmw · Sep 15, 2009

I can kind of relate to what you are saying. I sometimes feel this way too as the parent of a child with CF. I want to be careful make sure she is doing her treatments and not expose her to all kinds of risks... but at the same time I want her to have a full childhood and not grow up afraid to live, too... and my attitudes/approach to care are going to shape her early impressions about how to live with CF. It's an awfully hard balance to strike and I still feel like I am feeling my way along in the dark less than a year into this, not knowing what is reasonable- for us- and what is just too much impact on qol vs. how much it may help her. (And I know that this line will be different for everyone.

I know parents are in a different situation than adults with the disease but I wanted to let you know you weren't the only one who sometimes had feelings similar to this.

eta: my issues would be, for starters... no swimming unless it's their own pool? no playing outside in the winter? what kind of childhood is that- provided, of course, if she's healthy enough to enjoy these things? (many many do not believe in that, of course- but some do, and I just could not do that to my daughter.) how about gardening w/ mom, something she's loved since she was a toddler (I'm still conflicted on that... arghhhhh.... I feel like I'm force-feeding her PA if I allow her to dig in the dirt. <img src="i/expressions/face-icon-small-sad.gif" border="0"> )

hmw · Sep 15, 2009

I can kind of relate to what you are saying. I sometimes feel this way too as the parent of a child with CF. I want to be careful make sure she is doing her treatments and not expose her to all kinds of risks... but at the same time I want her to have a full childhood and not grow up afraid to live, too... and my attitudes/approach to care are going to shape her early impressions about how to live with CF. It's an awfully hard balance to strike and I still feel like I am feeling my way along in the dark less than a year into this, not knowing what is reasonable- for us- and what is just too much impact on qol vs. how much it may help her. (And I know that this line will be different for everyone.

I know parents are in a different situation than adults with the disease but I wanted to let you know you weren't the only one who sometimes had feelings similar to this.

eta: my issues would be, for starters... no swimming unless it's their own pool? no playing outside in the winter? what kind of childhood is that- provided, of course, if she's healthy enough to enjoy these things? (many many do not believe in that, of course- but some do, and I just could not do that to my daughter.) how about gardening w/ mom, something she's loved since she was a toddler (I'm still conflicted on that... arghhhhh.... I feel like I'm force-feeding her PA if I allow her to dig in the dirt. <img src="i/expressions/face-icon-small-sad.gif" border="0"> )

hmw · Sep 15, 2009

I can kind of relate to what you are saying. I sometimes feel this way too as the parent of a child with CF. I want to be careful make sure she is doing her treatments and not expose her to all kinds of risks... but at the same time I want her to have a full childhood and not grow up afraid to live, too... and my attitudes/approach to care are going to shape her early impressions about how to live with CF. It's an awfully hard balance to strike and I still feel like I am feeling my way along in the dark less than a year into this, not knowing what is reasonable- for us- and what is just too much impact on qol vs. how much it may help her. (And I know that this line will be different for everyone.

I know parents are in a different situation than adults with the disease but I wanted to let you know you weren't the only one who sometimes had feelings similar to this.

eta: my issues would be, for starters... no swimming unless it's their own pool? no playing outside in the winter? what kind of childhood is that- provided, of course, if she's healthy enough to enjoy these things? (many many do not believe in that, of course- but some do, and I just could not do that to my daughter.) how about gardening w/ mom, something she's loved since she was a toddler (I'm still conflicted on that... arghhhhh.... I feel like I'm force-feeding her PA if I allow her to dig in the dirt. <img src="i/expressions/face-icon-small-sad.gif" border="0"> )

hmw · Sep 15, 2009

I can kind of relate to what you are saying. I sometimes feel this way too as the parent of a child with CF. I want to be careful make sure she is doing her treatments and not expose her to all kinds of risks... but at the same time I want her to have a full childhood and not grow up afraid to live, too... and my attitudes/approach to care are going to shape her early impressions about how to live with CF. It's an awfully hard balance to strike and I still feel like I am feeling my way along in the dark less than a year into this, not knowing what is reasonable- for us- and what is just too much impact on qol vs. how much it may help her. (And I know that this line will be different for everyone.

I know parents are in a different situation than adults with the disease but I wanted to let you know you weren't the only one who sometimes had feelings similar to this.

eta: my issues would be, for starters... no swimming unless it's their own pool? no playing outside in the winter? what kind of childhood is that- provided, of course, if she's healthy enough to enjoy these things? (many many do not believe in that, of course- but some do, and I just could not do that to my daughter.) how about gardening w/ mom, something she's loved since she was a toddler (I'm still conflicted on that... arghhhhh.... I feel like I'm force-feeding her PA if I allow her to dig in the dirt. <img src="i/expressions/face-icon-small-sad.gif" border="0"> )

hmw · Sep 15, 2009

I can kind of relate to what you are saying. I sometimes feel this way too as the parent of a child with CF. I want to be careful make sure she is doing her treatments and not expose her to all kinds of risks... but at the same time I want her to have a full childhood and not grow up afraid to live, too... and my attitudes/approach to care are going to shape her early impressions about how to live with CF. It's an awfully hard balance to strike and I still feel like I am feeling my way along in the dark less than a year into this, not knowing what is reasonable- for us- and what is just too much impact on qol vs. how much it may help her. (And I know that this line will be different for everyone.
 
 I know parents are in a different situation than adults with the disease but I wanted to let you know you weren't the only one who sometimes had feelings similar to this.
 
 eta: my issues would be, for starters... no swimming unless it's their own pool? no playing outside in the winter? what kind of childhood is that- provided, of course, if she's healthy enough to enjoy these things? (many many do not believe in that, of course- but some do, and I just could not do that to my daughter.) how about gardening w/ mom, something she's loved since she was a toddler (I'm still conflicted on that... arghhhhh.... I feel like I'm force-feeding her PA if I allow her to dig in the dirt. <img src="i/expressions/face-icon-small-sad.gif" border="0"> )

ej0820 · Sep 15, 2009

I don't really have anything much to reply with, except, I know exactly how you feel.

ej0820 · Sep 15, 2009

I don't really have anything much to reply with, except, I know exactly how you feel.

ej0820 · Sep 15, 2009

I don't really have anything much to reply with, except, I know exactly how you feel.

ej0820 · Sep 15, 2009

I don't really have anything much to reply with, except, I know exactly how you feel.

ej0820 · Sep 15, 2009

I don't really have anything much to reply with, except, I know exactly how you feel.

Jeana · Sep 15, 2009